NonprofitsNorth American Association Of Central Cancer Registries Inc

Community Improvement & Capacity Building

North American Association Of Central Cancer Registries Inc

SPRINGFIELD, IL

Total revenue

$4.6M

Total expenses

$4.3M

Net assets

$2.8M

Grants received

EIN

770324654

Tax year

2024

Mission

Development/application of cancer registration

Programs

4 programs

National childhood cancer registry (nccr) - the purpose of this task order is to create a coordinating center supporting the nccr - an aggregated national level childhood cancer patient database in partnership with many leading pediatric oncology organizations across the u.s.

Expenses: $926KGrants: $340K

Conferences and webinars -non-federal programs including a year- long monthly webinar series supporting and training in case abstracting and processing of cancer records providing continuing education credits to the cancer registrar community. Also includes the naaccr annual conference which is the annual scientific meeting of the cancer surveillance community either in-person or virtually. Additional workshop courses are usually provided as adjacent events. Ods exam prep and review webinar series is also provided three times per year with live interactive instruction.

Expenses: $575K

The purpose of the virtual pooled registry cancer linkage system (vpr-cls) project shall expand into a scaled-up effort to facilitate linkages with central cancer registries using the vpr-cls. It will also continue to refine a capacity similar to the national death index without the need to create an aggregated national level cancer patient database. The vpr-cls will provide researchers with a single location and standard processes for an initial linkage behind the firewall of multiple registries, receipt of match counts, streamlined application process for release of individual-level registry data, and tracking of study status across registries.

Expenses: $344KGrants: $53K

Cdc cooperative agreement - the title of the program is the national partnerships to promote cancer surveillance standards and support data quality and operations of national program of cancer registries, education, standards, and translation. Naaccr works collaboratively with npcr leadership to support the development, promotion, maintenance, and communication of data standards for population-based central cancer registration. Improve central cancer registry operations through the development and dissemination of documented best practices. Increase reporting via electronic mechanisms and meaningful use impletmentation.

Expenses: $394K

Financials

FY 2024

Revenue

Contributions & grants$3.7M
Program service revenue$802K
Investment income$106K
Other revenue$16K
Total revenue$4.6M

Expenses

Grants paid$393K
Salaries & benefits$2.2M
Fundraising
Other expenses$1.7M
Total expenses$4.3M
Total assets$3.5M
Net assets$2.8M

People

19 listed

NameRoleCompensation

BETSY KOHLER THRU 11142024

EXECUTIVE DIRECTOR

Board

$261K

37.5 hrs/wk

CHARLIE BLACKBURN

CHIEF OPERATING OFFICER

Board

$172K

37.5 hrs/wk

STEPHANIE HILL

ASSOCIATE DIRECTOR

Board

$171K

37.5 hrs/wk

KAREN KNIGHT

EXECUTIVE DIRECTOR

Board

$164K

37.5 hrs/wk

WENDY ALDINGER

PRESIDENT

Board

1 hrs/wk

SARAH NASH

REP AT LARGE

Board

1 hrs/wk

ERIC DURBIN

PRESIDENT-ELECT

Board

1 hrs/wk

KEVIN WARD

TREASURER

Board

1 hrs/wk

LORI SWAIN

SMO REPRESENTATIVE

Board

1 hrs/wk

VALERIE SOMMA

REP AT LARGE

Board

1 hrs/wk

JOSHUA MAZURYK

REP AT LARGE

Board

1 hrs/wk

LIHUA LIU

REP AT LARGE

Board

1 hrs/wk

BOZENA MORAWSKI

REP AT LARGE

Board

1 hrs/wk

LORI KOCH

REP AT LARGE

Board

1 hrs/wk

JIM HOFFERKAMP

PROGRAM MANAGER

Staff

$140K

37.5 hrs/wk

ADELE HILEMAN

CONTROLLER

Staff

$137K

37.5 hrs/wk

CASTINE CLERKIN

PROGRAM MANAGER

Staff

$133K

37.5 hrs/wk

LORI HAVENER

PROGRAM MANAGER

Staff

$125K

37.5 hrs/wk

FERNANDA SILVA MICHELS

PROGRAM MANAGER

Staff

$108K

37.5 hrs/wk

Independent contractors

INFORMATION MANAGEMENT SYSTEMS

CANCER SURVEILLANCE TECH ASSISTANCE

$452K

Details

EIN770324654
NTEE codeS80Z
Subsection03
Ruling date1994-03
Formed1987
Employees14
Volunteers453
NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC — Mission, Financials & Grants Received | Grantivo