North Carolina Center For The Care Of Huntingtons Disease Inc

Outreach program:1. Increase awareness among families affected by huntington's disease2. Increase awareness among healthcare providers3. Develop and distribute resources to support hd familieslocations of activity:raleigh, nc; charlotte, nc; wilmington, nc; winston-salem, nc; asheville, nc.purpose:1. To increase awareness among north carolina hd patients and families about available medical care and support.2. To raise awareness of huntington's disease among healthcare providers, medical facilities, and government and charitable organizations.3. To establish partnerships with existing programs that provide services needed by hd families.outreach metrics (2024):* emails: 67,647 total sent; 43,651 opened (open rate: 39%)* mid-year appeal letters sent: 1,316* end-of-year appeal letters sent: 1,790* total appeal letters sent: 3,106* outreach postcards mailed: 1,272* instagram likes: 1,475* facebook likes: 1,287

Education program - families:1. Website development2. Support group participation3. Annual family education day4. Special topics workshopslocations of activity:raleigh, nc; charlotte, nc; winston-salem, nc; wilmington, nc; asheville, nc.purpose:to educate families about new initiatives in hd research, educate families about hd reach programs, and detail resources available to patients and families, and create opportunities for families to meet and learn from other hd families. Number of family advisory board attendees: 8number of book club attendees: 118number of game over club attendees: 173number of support group attendees: 223number of support group meetings - triangle: 11 (67 attendees)number of support group meetings - charlotte: 7 (36 attendees)number of support group meetings - wilmington: 9 (41 attendees)number of support group meetings - winston-salem: 11 (12 attendees)number of support group meetings - asheville: 4 (12 attendees)education day - 126 in-person attendees.

Education program health care professionals:purpose:to improve knowledge and medical care of hd: its diagnosis, treatment, ongoing and future research findings, and create a meeting forum for knowledge exchange.number of meetings/forums in 2023 2