Osteogenesis Imperfecta Foundation Inc

Education and support: oi clinic outreach - in an ongoing effort to connect with medical professionals currently treating individuals with oi and to educate them on the oif's resources for clinics and their patients, the oif held two oi clinic and bone health town hall meetings chaired by oif mac member, dr. Laura tosi in june and december 2024. These meetings represent a unique opportunity for medical professionals who treat patients with oi and those interested in bone health to connect with each other, stay up to date on oi care topics, and learn about oif resources. Oi support groups - the oif relaunched our support group program with a regional support group program. The regional support groups are divided into five regional groups (northeast, southeast, midwest, southwest, and west). The groups aim to connect and foster a sense of community among oi community members in a specific region of the united states and to provide national and local resources. The goal of the oif support group program is to provide a space for sharing, educating, and socializing. Regional support group leaders were selected from applicants who have a history of being involved in oi foundation programs and serving the oi community. Each regional support group leader underwent training to enable them to be a resource for families and individuals looking to connect with the oi community and oif. Each regional support group hosts quarterly virtual meetings and helps support the regional conferences.

Oif conferences: oif national conference - the oif hosted its national conference at the hilton omaha in omaha, nebraska from july 19th -21st. This was the first in-person national conference since 2018. The meeting drew more than 500 attendees, 100 of whom received financial support from the oif through the impact grant program and kasper/kendall conference scholarship fund. Program highlights included the unbreakable spirit walk-n-wheel, women's forum, oi research update, pain panel, fitness and oi, talent show, peer-to-peer sessions, medical consultations, and closing dinner and dance. The next oif national conference will be held on july 23-26, 2026, in orlando, florida.oif regional conferences - this past year, the oif hosted two regional conferences in nashville, tn and montreal, qc. Nearly 100 oi community members and medical professionals attended each meeting to connect and discuss a range of oi related topics. Topics at the events included pain management, treatment options for adults and children, physical therapy, orthopedics, dental issues and more. Coming in 2025, the oif will be hosting three more regional conferences in atlanta, georgia, denver, colorado and portland, oregon. Check out www.oif.org/conferences to keep up to date with upcoming events.