Public Foundations
Pcdh19 Alliance
NOVATO, CA
Total revenue
$285K
Total expenses
$48K
Net assets
$279K
Grants received
$201K
10 grants
EIN
454020102
Tax year
2024
Mission
Our mission is to improve the lives of children and families affected by pcdh19 epilepsy. The pcdh19 alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure. We're also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.
Programs
2 programs
Provided information and support to newly diagnosed families.
Prepared nord registry.
Financials
FY 2024
Revenue
Expenses
People
5 listed
JULIE WALTERS
BOARD PRESIDENT
$3K
3 hrs/wk
KARIN WELLS-KILPATRICK
BOARD VICE PRESIDENT
—
2 hrs/wk
JENNIFER HENDRIX HOLLAND
BOARD SECRETARY
—
1 hrs/wk
HEATHER FRYMAN
BOARD MEMBER
—
1 hrs/wk
CHRISTINE ROLLINS
TREASURER
—
1 hrs/wk
Grants received
Showing 10 of 10
Funded by
$201K from 7 funders · 10 grants · 2018–2024
$80K · 1 grant · 2023
$60K · 1 grant · 2024
$22K · 1 grant · 2018
$20K · 3 grants · 2022–2024
$10K · 2 grants · 2018–2020
$9K · 1 grant · 2018
$100 · 1 grant · 2020