NonprofitsProgressive Familial Intrahepatic Cholestasis Advocacy And Resource

Voluntary Health Associations & Medical Disciplines

Progressive Familial Intrahepatic Cholestasis Advocacy And Resource

CLAY CITY, KY

Total revenue

$352K

Total expenses

$502K

Net assets

$182K

Grants received

$300K

11 grants

EIN

831084501

Tax year

2024

Mission

To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC.

Financials

FY 2024

Revenue

Contributions & grants$361K
Program service revenue
Investment income
Other revenue
Total revenue$352K

Expenses

Grants paid$35K
Salaries & benefits$209K
Fundraising$59K
Other expenses$258K
Total expenses$502K
Total assets$213K
Net assets$182K

People

7 listed

NameRoleCompensation

Emily Ventura

Co-Founder Executive Director

Board

$71K

40 hrs/wk

Charmaine Gravener

Director

Board

1 hrs/wk

Erik Lontok

Director

Board

1 hrs/wk

Walter Perez

President

Board

2 hrs/wk

Tara Kearns

Vice-President Co- Founder

Board

2 hrs/wk

Hayley Watts

Treasurer

Board

2 hrs/wk

Erin Hovey

Secretary

Board

2 hrs/wk

Grants received

Showing 11 of 11

FromAmountPurposeYear
$40K
For grant recipient's exempt purposes
2023
$6K
UNRESTRICTED
2023
$50K
For grant recipient's exempt purposes
2022
$15K
HEALTH EQUITY GRANT
2022
$6K
UNRESTRICTED
2022
$51K
For grant recipient's exempt purposes
2021
$51K
For grant recipient's exempt purposes
2021
$30K
For grant recipient's exempt purposes
2020
$2K
FOR EDUCATION AND RESEARCH
2020
$25K
For grant recipient's exempt purposes
2019
$25K
For grant recipient's exempt purposes
2018

Funded by

$300K from 4 funders · 11 grants · 2018–2023

Fidelity Investments Charitable Gift Fund

$271K · 7 grants · 2018–2023

Global Genes

$15K · 1 grant · 2022

Network For Good

$12K · 2 grants · 2022–2023

Details

EIN831084501
NTEE codeG01
Subsection03
Ruling date2018-09
Formed2018
Employees5
Volunteers30
PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS ADVOCACY AND RESOURCE — Mission, Financials & Grants Received | Grantivo