NonprofitsProject Lyme

Voluntary Health Associations & Medical Disciplines

Project Lyme

NEW YORK, NY

Total revenue

$546K

Total expenses

$5.1M

Net assets

$908K

Grants received

$1.8M

83 grants

EIN

811138289

Tax year

2024

Mission

Project lyme's mission is to eradicate the epidemic of lyme disease and other tick-borne illnesses by spreading awareness, providing educational resources, funding peer-reviewed research, and supporting advocacy for solutions to end the suffering. Since 2016, project lyme has challenged misinformation about diagnosis and treatment, advocated for patients' rights, and built a community for lyme patients as well as their loved ones.

Programs

1 program

Education and awareness - education, awareness, and advocacy are project lyme's three largest initiatives from an employment and public engagement standpoint. These funds are split between funding the distribution of documentary film the quiet epidemic, creating social media and website content for @projectlyme and projectlyme.org, creating and distributing public service announcements, as well as sponsoring online and in-person educational seminars and advocacy events. We distributed $45,000 to the quiet epidemic, $5,250 to international lyme and associated diseases (ilads), $4,997 to drtalks, $1,338 to illinois lyme association, $1,000 to integrated pest management (ipm) lyme light foundation, $500 to ilads and other minor grants to organizations working in education and awareness.

Expenses: $219KGrants: $58K

Financials

FY 2024

Revenue

Contributions & grants$678K
Program service revenue
Investment income$13K
Other revenue
Total revenue$546K

Expenses

Grants paid$310K
Salaries & benefits$136K
Fundraising$146K
Other expenses$4.6M
Total expenses$5.1M
Total assets$908K
Net assets$908K

People

12 listed

NameRoleCompensation

NOAH JOHNSTON

EXECUTIVE DIRECTOR

Board

$120K

40 hrs/wk

DAVID ROTH

BOARD MEMBER

Board

2 hrs/wk

JENNIFER WEIS

BOARD MEMBER

Board

5 hrs/wk

NAN KURZMAN

BOARD MEMBER

Board

2 hrs/wk

SCOTT MORESCO

TREASURER

Board

5 hrs/wk

KIM DICKSTEIN

SECRETARY

Board

5 hrs/wk

MARK WEBER

BOARD MEMBER

Board

2 hrs/wk

MELISSA BELL

BOARD MEMBER

Board

10 hrs/wk

ISABEL ROSE

BOARD MEMBER

Board

5 hrs/wk

ALEXANDRA MORESCO

BOARD CHAIR

Board

10 hrs/wk

SUSAN GOLDENBERG

BOARD MEMBER

Board

5 hrs/wk

NINA LEVENE

BOARD MEMBER

Board

1 hrs/wk

Grants received

Showing 83 of 83

FromAmountPurposeYear
$25K
CONTRIBUTION
2024
$5K
UNRESTRICTED GENERAL SUPPORT
2024
$3K
GENERAL SUPPORT
2024
$100K
CHARITABLE
2023
$50K
CONTRIBUTION
2023
$12K
Exclusively charitable, religious, educational, literary and scientific purposes
2023
$10K
General operations
2023
$10K
CHARITABLE
2023
$8K
CHARITABLE
2023
$5K
UNRESTRICTED GENERAL SUPPORT
2023
$2K
GENERAL CHARITABLE
2023
$2K
Charitable Event
2023
$2K
FOR CHARITY'S SPECIFIED SERVICES
2023
$1K
GENERAL CHARITABLE PURPOSES
2023
$500
GENERAL PURPOSE
2023
$180
CHARITABLE
2023
$85K
For grant recipient's exempt purposes
2022
$50K
CONTRIBUTION
2022
$25K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2022
$24K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2022
$15K
GENERAL SUPPORT
2022
$14K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$10K
CONTRIBUTION
2022
$5K
COMMUNITY SUPPORT
2022
$5K
TOERRDICATE LYME DISEASE
2022
$3K
GENERAL PURPOSE
2022
$2K
General Support
2022
$1K
GENERAL DONATION
2022
$118K
For grant recipient's exempt purposes
2021
$118K
For grant recipient's exempt purposes
2021
$25K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2021
$20K
GENERAL SUPPORT
2021
$11K
TO HELP CARRY OUT THE CHARITABLE PURPOSE OF THE DONEE CHARITY.
2021
$10K
GENERAL FUNDS
2021
$10K
For recipient's exempt purpose
2021
$2K
General Support
2021
$2K
PROGRAM SUPPORT
2021
$2K
GENERAL PURPOSE
2021
$150K
GENERAL OPERATING SUPPORT
2020
$25K
For grant recipient's exempt purposes
2020
$25K
CONTRIBUTION
2020
$11K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$10K
UNRESTRICTED
2020
$10K
TO ERADICATE LYME DISEASE
2020
$5K
PUBLIC CHARITY
2020
$5K
General & Unrestricted
2020
$3K
GENERAL CONTRIBUTION
2020
$3K
General & Unrestricted
2020
$3K
TO SUPPORT THE ACTIVITIES OF THE CHARITABLE ORGANIZATION.
2020
$2K
PROGRAM SUPPORT
2020
$2K
GENERAL EXEMPT PURPOSE
2020
$2K
GENERAL CHARITABLE
2020
$1K
GENERAL PURPOSE
2020
$750
GENERAL OPERATIONS
2020
$250
GENERAL SUPPORT
2020
$250
GENERAL
2020
$155K
For grant recipient's exempt purposes
2019
$150K
GENERAL OPERATING SUPPORT
2019
$50K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2019
$18K
General support
2019
$13K
GENERAL FUNDS
2019
$102K
For grant recipient's exempt purposes
2018
$2K
GENERAL PURPOSE
2018
$55K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017

Funded by

$1.8M from 49 funders · 83 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$658K · 7 grants · 2017–2022

Bay Area Lyme Foundation

$300K · 2 grants · 2019–2020

The Jane Parker Foundation

$125K · 3 grants · 2022–2024

The Goldman Sachs Charitable Gift Fund

$100K · 3 grants · 2019–2022

The Isabel Rose Foundation

$100K · 1 grant · 2023

National Philanthropic Trust

$64K · 3 grants · 2019–2022

Jewish Communal Fund

$61K · 3 grants · 2019–2022

Donor Advised Charitable Giving Inc

$52K · 4 grants · 2018–2022

Details

EIN811138289
NTEE codeG80
Subsection03
Ruling date2016-03
Formed2015
Employees1
Volunteers30
PROJECT LYME — Mission, Financials & Grants Received | Grantivo