Medical Research
Rare Cancer Research Foundation
DURHAM, NC
Total revenue
$1.8M
Total expenses
$2.2M
Net assets
$2.3M
Grants received
$2.7M
19 grants
EIN
463405526
Tax year
2024
Mission
The rare cancer research foundation is dedicated to curing rare cancers through strategic investments and collaborations that catalyze effective research and accelerate deployment of promising therapies.
Programs
2 programs
Pattern.org is a groundbreaking platform that allows rcrf to work directly with cancer patients across the country to identify patients eligible to donate tissue to research, educate those patients on research opportunities, consent them into such research programs, and then coordinate the bio-logistics of moving their tissue from their local hospitals to world-class research institutions. Pattern.org was launched with great success in 2016, and in 2024, delivered high quality, viable, living rare cancer tissue from both academic and community hospitals across the u.s. To critical,innovative research initiatives.
A program initiated in 2023 to develop a unified platform to host combined molecular and clinical rare cancer data which will be shared broadly with the cancer research community.
Financials
FY 2024
Revenue
Expenses
People
11 listed
MARSHALL THOMPSON
PRESIDENT
$190K
40 hrs/wk
BARBARA VAN HARE
PRES. OF PAT
$119K
40 hrs/wk
HANA LITTLEFORD
CLINICAL DAT
$98K
40 hrs/wk
CHRIS HEERY
CHAIRMAN
—
1 hrs/wk
KEITH LAABS
DIRECTOR
—
1 hrs/wk
RYAN PRIPSTEIN
DIRECTOR
—
1 hrs/wk
ROBIN KAGEYAMA
DIR DATA PLA
$162K
40 hrs/wk
AMBER SMITH
BIOBANK MANA
$150K
40 hrs/wk
SUSAN HORRELL
DIR STRATEGI
$139K
40 hrs/wk
KATHRYN KAY COLEMAN
PROD ENGINEE
$131K
40 hrs/wk
BENJAMIN DAVID KAMPHAUS
TECHNICAL FE
$103K
40 hrs/wk
Independent contractors
X SECTOR LABS LLC
CONSULTANTING
Grants received
Showing 19 of 19
Funded by
$2.7M from 13 funders · 19 grants · 2018–2024
$1M · 1 grant · 2023
$700K · 2 grants · 2023–2024
$500K · 1 grant · 2023
$321K · 3 grants · 2018–2020
$39K · 1 grant · 2023
$38K · 4 grants · 2019–2024
$20K · 1 grant · 2023
$15K · 1 grant · 2023