NonprofitsRare Cancer Research Foundation

Medical Research

Rare Cancer Research Foundation

DURHAM, NC

Total revenue

$1.8M

Total expenses

$2.2M

Net assets

$2.3M

Grants received

$2.7M

19 grants

EIN

463405526

Tax year

2024

Mission

The rare cancer research foundation is dedicated to curing rare cancers through strategic investments and collaborations that catalyze effective research and accelerate deployment of promising therapies.

Programs

2 programs

Pattern.org is a groundbreaking platform that allows rcrf to work directly with cancer patients across the country to identify patients eligible to donate tissue to research, educate those patients on research opportunities, consent them into such research programs, and then coordinate the bio-logistics of moving their tissue from their local hospitals to world-class research institutions. Pattern.org was launched with great success in 2016, and in 2024, delivered high quality, viable, living rare cancer tissue from both academic and community hospitals across the u.s. To critical,innovative research initiatives.

Expenses: $346K

A program initiated in 2023 to develop a unified platform to host combined molecular and clinical rare cancer data which will be shared broadly with the cancer research community.

Expenses: $513K

Financials

FY 2024

Revenue

Contributions & grants$1.2M
Program service revenue$542K
Investment income$47K
Other revenue
Total revenue$1.8M

Expenses

Grants paid$82K
Salaries & benefits$1.2M
Fundraising$147K
Other expenses$954K
Total expenses$2.2M
Total assets$3.1M
Net assets$2.3M

People

11 listed

NameRoleCompensation

MARSHALL THOMPSON

PRESIDENT

Board

$190K

40 hrs/wk

BARBARA VAN HARE

PRES. OF PAT

Board

$119K

40 hrs/wk

HANA LITTLEFORD

CLINICAL DAT

Board

$98K

40 hrs/wk

CHRIS HEERY

CHAIRMAN

Board

1 hrs/wk

KEITH LAABS

DIRECTOR

Board

1 hrs/wk

RYAN PRIPSTEIN

DIRECTOR

Board

1 hrs/wk

ROBIN KAGEYAMA

DIR DATA PLA

Staff

$162K

40 hrs/wk

AMBER SMITH

BIOBANK MANA

Staff

$150K

40 hrs/wk

SUSAN HORRELL

DIR STRATEGI

Staff

$139K

40 hrs/wk

KATHRYN KAY COLEMAN

PROD ENGINEE

Staff

$131K

40 hrs/wk

BENJAMIN DAVID KAMPHAUS

TECHNICAL FE

Staff

$103K

40 hrs/wk

Independent contractors

X SECTOR LABS LLC

CONSULTANTING

$115K

Grants received

Showing 19 of 19

FromAmountPurposeYear
$100K
UNRESTRICTED GRANT FOR CANCER RESEARCH
2024
$10K
GENERAL SUPPORT
2024
$5K
GENERAL
2024
$600K
RESEARCH
2023
$39K
For grant recipient's exempt purposes
2023
$20K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2023
$15K
GENERAL OPERATING SUPPORT
2023
$2K
CHARITABLE DONATION
2023
$400
MATCHING GIFTS
2023
$43K
Program Support
2020
$132K
PROGRAM SUPPORT
2019
$146K
PROGRAM SUPPORT
2018
$52
Matching Grant
2018

Funded by

$2.7M from 13 funders · 19 grants · 2018–2024

Lr Foundation

$700K · 2 grants · 2023–2024

Donor Advised Charitable Giving Inc

$500K · 1 grant · 2023

The Broad Institute Inc

$321K · 3 grants · 2018–2020

American Online Giving Foundation Inc

$38K · 4 grants · 2019–2024

Robertson Foundation

$15K · 1 grant · 2023

Details

EIN463405526
NTEE codeH30
Subsection03
Ruling date2014-06
Formed2013
Employees10
RARE CANCER RESEARCH FOUNDATION — Mission, Financials & Grants Received | Grantivo