Rare Disease Advocates

At rare disease advocates organization, our mission is to empower and uplift individuals impacted by rare diseases. Rare disease advocates is a non-profit organization dedicated to raising provider awareness, providing patient support, and advocating for better resources and research for those living with rare medical conditions.we serve health care providers around the country but primarily focusing on southern california by conducting educational seminars and providing financial support to rare disease patients. There are over ten thousand rare diseases. Rare diseases are estimated to affect more than thirty million people in the united states. Each disease may be rare individually, but people with rare diseases often face similar challenges. These challenges may include accessing information, getting a diagnosis, and finding resources.our organization's three primary objectives:raise awareness, provide support and advocate for change