Rare New England Inc

1. To offer support to patients and families diagnosed with rare and complex disorders, and also help these patients and families find support from each other. 2. To promote awareness about rare and/or complex disorders as well as the difficulties these patients and families deal with in their daily lives.3. To advocate for patients and families of rare/complex diseases around local, regional and national issues that affect the rare disease communities.4. To offer educational opportunities to patients, families and professionals regarding how to achieve and maintain quality of lives for patients and families dealing with rare/complex diagnoses.5. To search for resources and make those available to benefit rare and/or complex disease patients.

$16K from 2 funders · 3 grants · 2022–2023