Medical Research
Rare Trait Hope Fund
BELLE CHASSE, LA
Total revenue
$104K
Total expenses
$94K
Net assets
$36K
Grants received
$331K
13 grants
EIN
462762646
Tax year
2024
Mission
The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.
Financials
FY 2024
Revenue
Expenses
People
6 listed
Julia Taravella
President, Executive Director
—
40 hrs/wk
Alla Comardelle
Medical Director
—
20 hrs/wk
Emily Moran
Director
—
5 hrs/wk
Guzel Bilyalova
Secretary, Treasure
—
5 hrs/wk
Erik Heywood
Director
—
2 hrs/wk
Jody Taravella
Director
—
5 hrs/wk
Grants received
Showing 13 of 13
Funded by
$331K from 6 funders · 13 grants · 2020–2024
$207K · 4 grants · 2021–2024
$73K · 4 grants · 2021–2024
$20K · 1 grant · 2020
$15K · 2 grants · 2020
$10K · 1 grant · 2020
$5K · 1 grant · 2020