NonprofitsRare Village Foundation

Medical Research

Rare Village Foundation

MCKINNEY, TX

Total revenue

$3.5M

Total expenses

$3.1M

Net assets

$2.0M

Grants received

$2.9M

70 grants

EIN

834699994

Tax year

2024

Mission

To fight for cures for rare diseases and empower individuals with rare diseases to live their best lives through local community education, inspiring advocacy, and timely connection to critical research that leads to cures

Financials

FY 2024

Revenue

Contributions & grants$3.5M
Program service revenue
Investment income$175
Other revenue
Total revenue$3.5M

Expenses

Grants paid$3.0M
Salaries & benefits
Fundraising$38K
Other expenses$133K
Total expenses$3.1M
Total assets$2.0M
Net assets$2.0M

People

4 listed

NameRoleCompensation

GINA HANN

VICE PRESIDENT SECRETARY DIRECTOR

Board

10 hrs/wk

KASEY WOLLEBEN

PRESIDENT DIRECTOR

Board

10 hrs/wk

AMY SOWELL

TREASURER DIRECTOR

Board

3 hrs/wk

AMBER FREED

DIRECTOR

Board

3 hrs/wk

Grants received

Showing 70 of 70

FromAmountPurposeYear
$151K
General Support
2024
$100K
FINANCIAL SUPPORT
2024
$54K
CHARITABLE
2024
$30K
MEDICAL RESEARCH
2024
$20K
UNRESTRICTED GENERAL SUPPORT
2024
$19K
GENERAL SUPPORT
2024
$16K
General Support
2024
$10K
to empower families affected by rare and ultra-rare genetic diseases by supporting them as they fund research and develop treatments
2024
$10K
RESTRICTED RESEARCH
2024
$7K
GENERAL SUPPORT
2024
$800
GENERAL EXEMPT PURPOSE
2024
$677
MATCHING GIFTS
2024
$72K
For grant recipient's exempt purposes
2023
$62K
CHARITABLE DONATION
2023
$50K
UNRESTRICTED GENERAL SUPPORT
2023
$10K
DEDICATED TO PROVIDING RESOURCES FOR FAMILIES WITH RARE DISEASE CHILDREN.
2023
$10K
RESEARCH INSTITUTES & PUBLIC POLICY ANALYSIS
2023
$9K
UNRESTRICTED
2023
$1K
GENERAL USE OF THE ORGANIZATION
2023
$200
GENERAL EXEMPT PURPOSE
2023
$100
GENERAL OPERATING PURPOSE
2023
$100
OTHER CIVIC / COMMUNITY
2023
$50
General & Unrestricted
2023
$63K
UNRESTRICTED
2022
$58K
GENERAL SUPPORT
2022
$57K
For grant recipient's exempt purposes
2022
$53K
GENERAL SUPPORT
2022
$50K
IN SUPPORT OF RVF'S FISCALLY SPONSORED RAIDEN SCIENCE FOUNDATION.
2022
$25K
THIS GRANT IS DESIGNATED FOR GENERAL SUPPORT.
2022
$12K
GENERAL SUPPORT
2022
$5K
MATCHING GIFTS
2022
$5K
Cure GABRB2 fund
2022
$3K
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2022
$525
MATCHING GIFT
2022
$500
focused on serving rare families in their most important journey - that of their rare disease child.
2022
$455
GENERAL OPERATING PURPOSES
2022
$76
PROGRAM/OPERATING SUPPORT
2022
$960K
For recipient's exempt purpose
2021
$106K
General Support
2021
$56K
For grant recipient's exempt purposes
2021
$56K
For grant recipient's exempt purposes
2021
$20K
GENERAL SUPPORT
2021
$15K
UNRESTRICTED
2021
$14K
Cure GABRB2 Fund
2021
$5K
CHARITABLE DONATION
2021
$765
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2021
$300
OPERATIONAL SUPPORT
2021
$15K
For grant recipient's exempt purposes
2020

Funded by

$2.9M from 40 funders · 70 grants · 2020–2024

American Online Giving Foundation Inc

$379K · 4 grants · 2021–2024

Fidelity Investments Charitable Gift Fund

$255K · 5 grants · 2020–2023

Paypal Charitable Giving Fund

$185K · 4 grants · 2021–2024

RTW Foundation

$167K · 2 grants · 2024

Donor Advised Charitable Giving Inc

$166K · 4 grants · 2020–2023

The Marsal Family Foundation

$100K · 1 grant · 2024

Network For Good

$88K · 3 grants · 2021–2023

Details

EIN834699994
NTEE codeH12
Subsection03
Ruling date2020-03
Formed2019
Employees0
RARE VILLAGE FOUNDATION — Mission, Financials & Grants Received | Grantivo