Voluntary Health Associations & Medical Disciplines
Shine Syndrome Foundation
CINCINNATI, OH
Total revenue
$122K
Total expenses
$30K
Net assets
$126K
Grants received
$17K
4 grants
EIN
874703593
Tax year
2024
Mission
Our mission is to improve the lives of individuals with DLG4-related Synaptopathy by supporting research, developing treatments and therapies, and providing a community of support. We understand the challenges that families face when dealing with this rare disease, and we are committed to making a difference. By collaborating with researchers, healthcare professionals, and other organizations, we aim to accelerate medical advances focused on the treatment of DLG4 Synaptopathy.
Financials
FY 2024
Revenue
Expenses
People
8 listed
{"_":"Tim Stuart","attributes":{"referenceDocumentName":"CompensationExplanation"}}
President
—
10 hrs/wk
{"_":"Marie-France Gervais","attributes":{"referenceDocumentName":"CompensationExplanation"}}
President
—
30 hrs/wk
{"_":"Justin Neduchal","attributes":{"referenceDocumentName":"CompensationExplanation"}}
Vice President/Ethics Officer
—
5 hrs/wk
{"_":"Payal Patel","attributes":{"referenceDocumentName":"CompensationExplanation"}}
Vice President of Development
—
30 hrs/wk
{"_":"Melanie Queen","attributes":{"referenceDocumentName":"CompensationExplanation"}}
Treasurer
—
20 hrs/wk
{"_":"Courtney Roche","attributes":{"referenceDocumentName":"CompensationExplanation"}}
Secretary
—
15 hrs/wk
{"_":"Sabrina Merchant MD","attributes":{"referenceDocumentName":"CompensationExplanation"}}
Director of Science and Clinical Development
—
30 hrs/wk
{"_":"Dana Opar","attributes":{"referenceDocumentName":"CompensationExplanation"}}
Director of Marketing
—
20 hrs/wk
Grants received
Showing 4 of 4
Funded by
$17K from 4 funders · 4 grants · 2022–2023
$11K · 1 grant · 2023
$5K · 1 grant · 2022
$1K · 1 grant · 2023
$175 · 1 grant · 2023