NonprofitsShwachman Diamond Syndrome Foundation Inc

Human Services

Shwachman Diamond Syndrome Foundation Inc

VAN WYCK, SC

Total revenue

$84K

Total expenses

$139K

Net assets

$207K

Grants received

$81K

5 grants

EIN

431709945

Tax year

2024

Mission

Raising awareness of and support for the shwachman-daimond syndrome disease. This is done through educational conferences and the publicaiton of periodalcs such as newsletters and brouchures. Research grants are also awarded for the study of the syndrome.

Programs

3 programs

Sponsored and conducted various educational conferences about shwachman-diamond syndrome

Published newsletters,public service announcements and gave family support to keep public awareness of the disease. Conducted general operations.

Conducted camp sunshine for children with shwachman-diamond syndrome.

Financials

FY 2024

Revenue

Contributions & grants$79K
Program service revenue
Investment income$5K
Other revenue
Total revenue$84K

Expenses

Grants paid
Salaries & benefits$17K
Fundraising
Other expenses$122K
Total expenses$139K
Total assets$207K
Net assets$207K

People

9 listed

NameRoleCompensation

JOAN MOWERY

President

Board

5 hrs/wk

CHRISTIAN DEL RE

Vice President

Board

5 hrs/wk

MARY BALINT

Secretary

Board

5 hrs/wk

JOHN WALL

Treasurer

Board

5 hrs/wk

BRYAN SAMPLE

Advisor

Board

5 hrs/wk

DEANA VALIANTE

OUTSIDE DIR

Board

5 hrs/wk

SHARI ST HILAIRE

OUTSIDE DIR

Board

5 hrs/wk

TOM DAHLMAN

OUTSIDE DIR

Board

5 hrs/wk

PAMELA MILLER

Executive Dir.

Board

5 hrs/wk

Grants received

Showing 5 of 5

FromAmountPurposeYear
$19K
UNRESTRICTED
2024
$11K
UNRESTRICTED
2023
$11K
For grant recipient's exempt purposes
2023
$35K
Unrestricted
2018

Funded by

$81K from 3 funders · 5 grants · 2018–2024

Network For Good

$64K · 3 grants · 2018–2024

Details

EIN431709945
NTEE codeP80
Subsection03
Ruling date1995-10
Employees0
Volunteers25
SHWACHMAN DIAMOND SYNDROME FOUNDATION INC — Mission, Financials & Grants Received | Grantivo