Sickle Cell Disease Association Of America Inc

SCDAA: SCDAA and its member organizations engage in community outreach and program efforts throughout the United States and Canada. These efforts include but not limited to: Educational campaigns that build awareness of SCD and related conditions and programs that provide services such as genetic testing and counseling, case management, and psychosocial support for individuals and families impacted by sickle cell disease.

PCORI: To develop a national advocate network of sickle cell disease patients, families, caregivers and other stakeholders experts that can partner with clinicians and researchers to design, implement and eventually disseminate patient centered outcomes research and comparative effectiveness research (PCOR/CER) projects that improve outcomes to patients with sickle cell disease (SCD).