NonprofitsSiegel Rare Neuroimmune Association

Voluntary Health Associations & Medical Disciplines

Siegel Rare Neuroimmune Association

POWELL, OH

Total revenue

$1.5M

Total expenses

$1.6M

Net assets

$1.5M

Grants received

$752K

46 grants

EIN

911780467

Tax year

2024

Mission

To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare disorders and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuroimmune disorders.

Programs

2 programs

The SRNA partners with Morgans Wonderland Camp to hold an annual summer camp for children (ages 5 - 17) and their families who have been impacted by rare neuroimmunologic disorders. The entire week of camp is offered to these children and their families free of charge and allows these children to experience the joys of camp and connect with others who experience the same symptoms and conditions.

Expenses: $133K

The SRNA provides research grants to medical and other institutions for work on understanding of treatments for these neuroimmunologic disorders. The SRNA's James T. Lubin Fellowship program supports the post-residency training of a clinician at an academic medical facility, who is committed to a career in academic medicine with a specialization in rare neuroimmunologic diseases and research. The SRNA maintains a Registry to understand people's experiences with rare neuroimmune disorders. The SRNA is also supporting the first study to investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells in Transverse Myelitis and the Progress Grant for NMOSD.

Expenses: $224KGrants: $177K

Financials

FY 2024

Revenue

Contributions & grants$1.4M
Program service revenue
Investment income$93K
Other revenue$1K
Total revenue$1.5M

Expenses

Grants paid$177K
Salaries & benefits$735K
Fundraising$126K
Other expenses$702K
Total expenses$1.6M
Total assets$1.6M
Net assets$1.5M

People

17 listed

NameRoleCompensation

Chitra Krishnan

Executive Director

Board

$137K

40 hrs/wk

Lana Harder

Director

Board

5 hrs/wk

Sanford J Siegel

President

Board

20 hrs/wk

Deborah Capen

Secretary

Board

20 hrs/wk

Linda Malecky

Treasurer, Vice President

Board

20 hrs/wk

Bruce L Downey

Director

Board

3 hrs/wk

Benjamin M Greenberg MD

Director

Board

5 hrs/wk

Douglas A Kerr MD PHD

Director

Board

5 hrs/wk

Carlos A Pardo-Villamizar MD

Director

Board

5 hrs/wk

Barbara Sattler

Director

Board

5 hrs/wk

Jason Robbins

Director

Board

8 hrs/wk

Peter C Johnson

Director

Board

3 hrs/wk

Dennis Wolfe

Director

Board

3 hrs/wk

James T Lubin

Executive Committee Member

Board

20 hrs/wk

Dave Evans

Director

Board

3 hrs/wk

Michael Levy

Director

Board

5 hrs/wk

Gabrielle deFiebre

Director of Research and Programs

Staff

$111K

40 hrs/wk

Grants received

Showing 46 of 46

FromAmountPurposeYear
$12K
PROGRAM SUPPORT
2024
$10K
GENERAL SUPPORT
2024
$5K
Medical Research
2024
$500
GENERAL SUPPORT
2024
$37K
For grant recipient's exempt purposes
2023
$25K
RESEARCH FUNDING
2023
$750
IN SUPPORT OF RF DONATIONS TO CHARITABLE ORGANIZATIONS
2023
$250
GENERAL SUPPORT
2023
$103
MATCHING GIFTS
2023
$100K
GENERAL DONATION
2022
$12K
For grant recipient's exempt purposes
2022
$10K
GENERAL SUPPORT
2022
$7K
DONOR DESIGNATED FOR GENERAL SUPPORT
2022
$5K
GENERAL SUPPORT
2022
$1K
GENERAL UNRESTRICTED
2022
$50
CHARITABLE PURPOSE
2022
$50
CHARITABLE ACTIVITIES
2022
$50
CHARITABLE PURPOSE
2022
$44K
For grant recipient's exempt purposes
2021
$44K
For grant recipient's exempt purposes
2021
$25K
WORKS TO HELP PEOPLE WITH INCURRABLE PARALYZING ILLNESSES, IN HONOR OF CURTIS MEADOWS
2021
$20K
DONOR DESIGNATED FOR GENERAL SUPPORT
2021
$20K
HEALTH PROJECT
2021
$5K
GENERAL SUPPORT
2021
$750
MATCHING GIFTS 1
2021
$28K
For grant recipient's exempt purposes
2020
$19K
DONOR DESIGNATED FOR GENERAL SUPPORT
2020
$10K
GENERAL USE AND/OR SPECIAL FUND/PROJECT
2020
$8K
1 GRANT(S) FOR VARYING PURPOSES
2020
$5K
FOR GENERAL OPERATIONS
2020
$5K
GENERAL SUPPORT
2020
$2K
CHARITABLE
2020
$965
GENERAL FUND
2020
$100
EMPLOYEE GIVING PROGRAM
2020
$50
MATCHING GRANTS
2020
$50
CHARITABLE ACTIVITIES
2020
$13K
DONOR DESIGNATED FOR GENERAL SUPPORT
2019
$11K
For grant recipient's exempt purposes
2019
$10K
GENERAL USE AND/OR SPECIAL FUND/PROJECT
2019
$151K
SOCIAL SERVICES/SOCIAL BENEFITS
2017

Funded by

$752K from 29 funders · 46 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$177K · 6 grants · 2019–2023

Donor Advised Charitable Giving Inc

$151K · 1 grant · 2017

Sky High For Kids Inc

$100K · 1 grant · 2022

United Way Of The Greater Lehigh Valley

$60K · 4 grants · 2019–2022

National Philanthropic Trust

$52K · 1 grant · 2021

Raymond James Charitable Endowment Fund

$45K · 4 grants · 2017–2020

Mike A Myers Foundation

$25K · 1 grant · 2021

Madison Charitable Foundation Inc

$25K · 1 grant · 2023

Details

EIN911780467
NTEE codeG99
Subsection03
Ruling date1997-09
Formed1996
Employees8
Volunteers100
SIEGEL RARE NEUROIMMUNE ASSOCIATION — Mission, Financials & Grants Received | Grantivo