Voluntary Health Associations & Medical Disciplines
Siegel Rare Neuroimmune Association
POWELL, OH
Total revenue
$1.5M
Total expenses
$1.6M
Net assets
$1.5M
Grants received
$752K
46 grants
EIN
911780467
Tax year
2024
Mission
To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare disorders and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuroimmune disorders.
Programs
2 programs
The SRNA partners with Morgans Wonderland Camp to hold an annual summer camp for children (ages 5 - 17) and their families who have been impacted by rare neuroimmunologic disorders. The entire week of camp is offered to these children and their families free of charge and allows these children to experience the joys of camp and connect with others who experience the same symptoms and conditions.
The SRNA provides research grants to medical and other institutions for work on understanding of treatments for these neuroimmunologic disorders. The SRNA's James T. Lubin Fellowship program supports the post-residency training of a clinician at an academic medical facility, who is committed to a career in academic medicine with a specialization in rare neuroimmunologic diseases and research. The SRNA maintains a Registry to understand people's experiences with rare neuroimmune disorders. The SRNA is also supporting the first study to investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells in Transverse Myelitis and the Progress Grant for NMOSD.
Financials
FY 2024
Revenue
Expenses
People
17 listed
Chitra Krishnan
Executive Director
$137K
40 hrs/wk
Lana Harder
Director
—
5 hrs/wk
Sanford J Siegel
President
—
20 hrs/wk
Deborah Capen
Secretary
—
20 hrs/wk
Linda Malecky
Treasurer, Vice President
—
20 hrs/wk
Bruce L Downey
Director
—
3 hrs/wk
Benjamin M Greenberg MD
Director
—
5 hrs/wk
Douglas A Kerr MD PHD
Director
—
5 hrs/wk
Carlos A Pardo-Villamizar MD
Director
—
5 hrs/wk
Barbara Sattler
Director
—
5 hrs/wk
Jason Robbins
Director
—
8 hrs/wk
Peter C Johnson
Director
—
3 hrs/wk
Dennis Wolfe
Director
—
3 hrs/wk
James T Lubin
Executive Committee Member
—
20 hrs/wk
Dave Evans
Director
—
3 hrs/wk
Michael Levy
Director
—
5 hrs/wk
Gabrielle deFiebre
Director of Research and Programs
$111K
40 hrs/wk
Grants received
Showing 46 of 46
Funded by
$752K from 29 funders · 46 grants · 2017–2024
$177K · 6 grants · 2019–2023
$151K · 1 grant · 2017
$100K · 1 grant · 2022
$60K · 4 grants · 2019–2022
$52K · 1 grant · 2021
$45K · 4 grants · 2017–2020
$25K · 1 grant · 2021
$25K · 1 grant · 2023