Medical Research
Soft Bones Inc The Us Hypophosphatasia Foundation
BOONTON, NJ
Total revenue
$527K
Total expenses
$512K
Net assets
$542K
Grants received
$167K
22 grants
EIN
264619055
Tax year
2024
Mission
To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.
Financials
FY 2024
Revenue
Expenses
People
9 listed
DENISE M GOODBAR
EXECUTIVE DI
$125K
40 hrs/wk
KAREN CAROLONZA
VICE PRESIDE
—
1 hrs/wk
MICHELLE LABRUNO
TREASURER
—
1 hrs/wk
HEIDI FLOYD
SECRETARY
—
1 hrs/wk
DEBORAH FOWLER
PRESIDENT
—
1 hrs/wk
SCOTT NETTUNE
DIRECTOR
—
1 hrs/wk
DR BRENDA ZIEGLER
DIRECTOR
—
1 hrs/wk
ROB MOSKOW
DIRECTOR
—
1 hrs/wk
ADAM GRENKER ESQ
DIRECTOR
—
1 hrs/wk
Grants received
Showing 22 of 22
Funded by
$167K from 11 funders · 22 grants · 2017–2024
$54K · 8 grants · 2018–2023
$40K · 2 grants · 2022–2023
$29K · 2 grants · 2018–2020
$12K · 1 grant · 2022
$10K · 1 grant · 2020
$7K · 1 grant · 2017
$6K · 1 grant · 2021
$5K · 1 grant · 2024