Southwestern Ohio Hemophilia Foundation

Program activities include an annual business meeting with review of financial reports, a board president report to the organization, an update from the dayton children's hemophilia treatment center, as well as information regarding legislation presented by the ohio bleeding disorders council representative. We served over 55 individuals at this event. This meeting also recognizes our event volunteers (total 27 in 2024). In the summer, we presented our annual family fest at a downtown dayton event venue and saw increased participation. This is a family-centered weekend filled with educational seminars, inspirational speakers and family activites. We served 25 families (over 90 individuals) at this event. Fall outing is a program that encourages networking, communication and connection in context of fun family activities. We served 43 families (over 195 individuals) at this event, providing updates on recent advancements in care and treatment of bleeding disorders, as well as new therapies / resources. In the fall, we also presented a one-day women's workshop to provide a fun, relaxed networking opportunity and reinforce the importance of self-care and friendships among over 40 women patients / caregivers who attended. Lastly in 2024, in cooperation with the dayton children's htc, we added a dinner event for newly diagnosed families. The purpose of the program was to provide information about swohf programs and support; additionally, we paired all new families with another family with older children to enable conversations, mentoring and encouragement for those experiencing the challenges of living with a bleeding disorders diagnosis.

Newsletter - swohf provides relevant information to the blood disorder community, donors and other interested parties about foundation activities, treatment advances and current events, legislation and available resources.