Medical Research
Systemic Jia Foundation
MOUNTAIN VIEW, CA
Total revenue
$159K
Total expenses
$143K
Net assets
$107K
Grants received
$1.0M
9 grants
EIN
822564392
Tax year
2024
Mission
1. To support research relating to treatments and cure of systemic juvenile idiopathic arthritis (sjia); 2. Promote increased awareness, knowledge and understanding of sjia by medical professionals, the general public and families affected by sjia; 3. Promote mutual support through building and maintaining an extensive web-based or other network of information and resources for the general public and families.
Programs
2 programs
Conferences attended in 2024pres congress 2024 attended from september 11, 2024 to september 14, 2024 at gothenburg sweden.brief description: the pres (pediatric rheumatology european society) conference is an annual international event focused on advancements in pediatric rheumatology. It's a platform for healthcare professionals, researchers, and scientists to network, learn, and share their knowledge on diagnosing, treating, and managing rheumatic diseases in children and young people.
Nextgen 2024 organized from wednesday november 13, 2024 to friday, november 15, 2024.description: nextgen conference (as with nextgen in previous years) aims to advance therapies for sjia, still's disease and mas. The specific focus in 2024 is on clinical trials and bone marrow transplantation as an option for refractory disease. The foundation invites all stakeholders to the table such as scientists, clinicians, patient and caregiver representatives, the fda / ema, and pharmaceutical companies.topics include:a comprehensive look at il18 (measuring it, role in disease, il18-driven clinical trials), therapeutic options for refractory patients (jak-inhibitors & beyond), upcoming clinical trials in sjia, still's & mas bone marrow transplantation for refractory patients.
Financials
FY 2024
Revenue
Expenses
People
3 listed
JONATHAN BOUTELLE
DIRECTOR
—
5 hrs/wk
RASHMI SINHA
DIRECTOR
—
30 hrs/wk
MATTHEW MIGHT
DIRECTOR
—
1 hrs/wk
Grants received
Showing 9 of 9
Funded by
$1.0M from 5 funders · 9 grants · 2018–2024
$615K · 2 grants · 2020–2022
$388K · 2 grants · 2020–2023
$18K · 3 grants · 2020–2022
$6K · 1 grant · 2024
$3K · 1 grant · 2018