NonprofitsSystemic Jia Foundation

Medical Research

Systemic Jia Foundation

MOUNTAIN VIEW, CA

Total revenue

$159K

Total expenses

$143K

Net assets

$107K

Grants received

$1.0M

9 grants

EIN

822564392

Tax year

2024

Mission

1. To support research relating to treatments and cure of systemic juvenile idiopathic arthritis (sjia); 2. Promote increased awareness, knowledge and understanding of sjia by medical professionals, the general public and families affected by sjia; 3. Promote mutual support through building and maintaining an extensive web-based or other network of information and resources for the general public and families.

Programs

2 programs

Conferences attended in 2024pres congress 2024 attended from september 11, 2024 to september 14, 2024 at gothenburg sweden.brief description: the pres (pediatric rheumatology european society) conference is an annual international event focused on advancements in pediatric rheumatology. It's a platform for healthcare professionals, researchers, and scientists to network, learn, and share their knowledge on diagnosing, treating, and managing rheumatic diseases in children and young people.

Expenses: $3K

Nextgen 2024 organized from wednesday november 13, 2024 to friday, november 15, 2024.description: nextgen conference (as with nextgen in previous years) aims to advance therapies for sjia, still's disease and mas. The specific focus in 2024 is on clinical trials and bone marrow transplantation as an option for refractory disease. The foundation invites all stakeholders to the table such as scientists, clinicians, patient and caregiver representatives, the fda / ema, and pharmaceutical companies.topics include:a comprehensive look at il18 (measuring it, role in disease, il18-driven clinical trials), therapeutic options for refractory patients (jak-inhibitors & beyond), upcoming clinical trials in sjia, still's & mas bone marrow transplantation for refractory patients.

Expenses: $106K

Financials

FY 2024

Revenue

Contributions & grants$159K
Program service revenue
Investment income
Other revenue
Total revenue$159K

Expenses

Grants paid
Salaries & benefits
Fundraising
Other expenses$143K
Total expenses$143K
Total assets$107K
Net assets$107K

People

3 listed

NameRoleCompensation

JONATHAN BOUTELLE

DIRECTOR

Board

5 hrs/wk

RASHMI SINHA

DIRECTOR

Board

30 hrs/wk

MATTHEW MIGHT

DIRECTOR

Board

1 hrs/wk

Grants received

Showing 9 of 9

FromAmountPurposeYear
$6K
GENERAL SUPPORT
2024
$244K
SCIENTIFIC RESEARCH
2023
$144K
MEDICAL AND HEALTHCARE RESEARCH
2020
$3K
GENERAL OPERATIONS
2018

Funded by

$1.0M from 5 funders · 9 grants · 2018–2024

Silicon Valley Community Foundation

$615K · 2 grants · 2020–2022

The Sinha-Boutelle Foundation

$388K · 2 grants · 2020–2023

American Online Giving Foundation Inc

$18K · 3 grants · 2020–2022

Paypal Charitable Giving Fund

$6K · 1 grant · 2024

Rhoades Sanford Foundation Inc

$3K · 1 grant · 2018

Details

EIN822564392
NTEE codeH98
Subsection03
Ruling date2018-11
Formed2017
Employees0
Volunteers0
SYSTEMIC JIA FOUNDATION — Mission, Financials & Grants Received | Grantivo