NonprofitsThe American Porphyrias Expert Collaborative Inc

Medical Research

The American Porphyrias Expert Collaborative Inc

BETHESDA, MD

Total revenue

$2.3M

Total expenses

$296K

Net assets

$2.2M

Grants received

$1.1M

3 grants

EIN

844857909

Tax year

2024

Mission

To promote and carry out research, and promote educational activities, regarding porphyrias and heme biosynthesis through development of best practices, research support, and education.

Programs

1 program

Apex advanced the area of education by continuing a fiscal sponsorship agreement with the united porphyrias association (upa) to support the establishment of upa as a patient advocacy organization to advance patient involvement in research, treatment, and diagnosis of the porphyrias.

Financials

FY 2024

Revenue

Contributions & grants$2.3M
Program service revenue
Investment income$38K
Other revenue
Total revenue$2.3M

Expenses

Grants paid$275K
Salaries & benefits
Fundraising
Other expenses$21K
Total expenses$296K
Total assets$2.2M
Net assets$2.2M

People

9 listed

NameRoleCompensation

ROBERT DESNICK

PRESIDENT

Board

3 hrs/wk

JOHN PHILLIPS

VICE PRESIDENT

Board

1 hrs/wk

KRISTEN WHEEDEN

SECRETARY-TREAS

Board

5 hrs/wk

MANISHA BALDWANI

DIRECTOR

Board

1 hrs/wk

RICHARD BISSELL

DIRECTOR

Board

1 hrs/wk

HERBERT BONKOVSKY

DIRECTOR

Board

1 hrs/wk

BRENDAN MCGUIRE

DIRECTOR

Board

1 hrs/wk

KARL ANDERSON

DIRECTOR

Board

1 hrs/wk

BRUCE WANG MD

Director

Board

1 hrs/wk

Grants received

Showing 3 of 3

FromAmountPurposeYear
$25K
For grant recipient's exempt purposes
2021
$25K
For grant recipient's exempt purposes
2021

Funded by

$1.1M from 2 funders · 3 grants · 2021–2023

National Philanthropic Trust

$1M · 1 grant · 2023

Details

EIN844857909
NTEE codeH90
Subsection03
Ruling date2020-10
Formed2020
Employees0
THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC — Mission, Financials & Grants Received | Grantivo