Unclassified
The Assoc Of Hidradenitis Suppurativa And Inflammatory Disea
YPSILANTI, MI
Total revenue
$305K
Total expenses
$324K
Net assets
$24K
Grants received
—
EIN
873340305
Tax year
2024
Mission
We empower individuals with Hidradenitis Suppurativa HS inflammatory diseases to reclaim their lives by advocating for accessible and inclusive care while fostering connection and community.
Programs
1 program
Education Awareness The organizaiton aims to improve awareness, facilitate timely diagnosis, and guide patients through culturally competent care pathways. This is accomplished by participating in community events, establishing local partnerships, and delivering impactful resources.The Ambassador Program is made up of highly engaged patients with HS and inflammatory diseases, providing the community a voice and a platform to share their experiences and connect with others. Through a volunteer network of advocates and influencers, we are bringing together patients at various points in their journeys and willing to share their experiences, knowledge, concerns, and hopes with others. The My Gold Lining is a medical and educational documentary delving into the lives of two women battling hidradenitis suppurativa. The organization also hosts a podcast to bring about awareness and educaiton.
Financials
FY 2024
Revenue
Expenses
People
7 listed
Muriel Espy
Secretary
—
2 hrs/wk
Jerome Espy Sr
Treasurer
—
2 hrs/wk
Martin DeBenedetto
Patient Engagement Advisor
—
5 hrs/wk
Lynn Petukhova
Secientific Advisor
—
2 hrs/wk
Yasmeen Yount
Patient Advocate
—
5 hrs/wk
Dr Iltefat Hamzavi
Director
—
2 hrs/wk
Jasmine Espy
CEO / President
—
40 hrs/wk