Health Care
The Ehlers-Danlos Society
NEW YORK, NY
Total revenue
$5.0M
Total expenses
$4.5M
Net assets
$7.7M
Grants received
$7.6M
85 grants
EIN
382813140
Tax year
2024
Mission
The ehlers-danlos society is a global orgnization dedicated to advancing and accelerating research and education in ehlers-danlos syndromes (eds) and hypermobilitiy spectrum disporders (hsd). We support the development of effective and equitable eds and hsd therapies and work collavoratively to impove the lives of individuals affected by eds and hsd.
Programs
1 program
The ehlers-danlos society organizes medical and scientific symposiums to examine the latest research and update the diagnostic criteria and guidelines for management and care. We work with the comorbidity coalition and the international consortium on developed clinical care pathways for management and diagnosis. Events for health professionals are held globally and are cme-accredited. Annual global learning conferences bring together and unite our community, providing opportunities to interact, find support, and learn management strategies and information from world-leading experts in eds and hsd.
Financials
FY 2024
Revenue
Expenses
People
16 listed
ERIC ALLEY
CFO
$86K
40 hrs/wk
WOODROW GANDY
DIRECTOR
—
1 hrs/wk
SUSAN HASKEL
DIRECTOR
—
1 hrs/wk
AMY ROCHLIN
DIRECTOR
—
1 hrs/wk
MICHELLE JALALI
DIRECTOR
—
1 hrs/wk
CLAIR FRANCOMANO
DIRECTOR
—
1 hrs/wk
FRANCES FITZGERALD
DIRECTOR
—
1 hrs/wk
ANOUSHE HUSAIN
DIRECTOR
—
1 hrs/wk
MELANIE MACLEOD
DIRECTOR
—
1 hrs/wk
AKILAH CADET
DIRECTOR
—
1 hrs/wk
WARD FITZGERALD
DIRECTOR
—
1 hrs/wk
ROBERT RUBIN
TREASURER
—
5 hrs/wk
JOHN ZONARICH
SECRETARY
—
5 hrs/wk
SUSAN HAWKINS
PRESIDENT
—
5 hrs/wk
LARA BLOOM
CEO
—
50 hrs/wk
AISLING GREEN
DIRECTOR
—
1 hrs/wk
Independent contractors
METABOLON
ANALYSIS OF BLOOD SAMPLES TO RESEARCH EH
SOMALOGIC
ANALYSIS OF BLOOD SAMPLES TO RESEARCH EH
Grants received
Showing 85 of 85
Funded by
$7.6M from 40 funders · 85 grants · 2017–2024
$2.9M · 4 grants · 2020–2023
$2.8M · 2 grants · 2023–2024
$1.3M · 7 grants · 2018–2024
$187K · 6 grants · 2019–2024
$108K · 3 grants · 2022–2024
$90K · 3 grants · 2021–2022
$41K · 5 grants · 2018–2023
$40K · 2 grants · 2023–2024