Voluntary Health Associations & Medical Disciplines
The Familial Hypercholesterolemia Foundation
FERNANDINA BEACH, FL
Total revenue
$8.9M
Total expenses
$7.8M
Net assets
$5.3M
Grants received
$1.1M
22 grants
EIN
454597425
Tax year
2024
Mission
The mission of the Family Heart Foundation is to save generations of families from heart disease
Programs
2 programs
ADVOCACY: The Family Heart Foundation provides individualized resources to those living with genetic dyslipidemias through our Care Navigation Center. We also engage and support communities through on-site community education and screening programs. In addition, we raise awareness of these highly undiagnosed conditions through national media and awareness campaigns, The Family Heart Foundation established FH Awareness Day in 2012 and Lp(a) Awareness Day in 2021. We also work at a policy level to represent and elevate the voices of our community and improve care.
EDUCATION: As an honest broker and neutral convener, the Family Heart Foundation provides education and tools to diverse audiences, from patients (through programs like Cholesterol Connect) to healthcare professionals, policymakers and payers (through programs like GOAL and Lp(a) AWARE). We host an annual scientific meeting, the Family Heart Global Summit and hold educational symposia at primary care medical conferences across the country.
Financials
FY 2024
Revenue
Expenses
People
12 listed
Katherine Wilemon
CEO/Board Member
$387K
40 hrs/wk
Courtney Riley
Board Member
—
1 hrs/wk
Seth Baum
Vice Chair
—
1 hrs/wk
Allison Jamison
Treasurer
—
1 hrs/wk
Keith Ferdinand
Board Member
—
1 hrs/wk
Brian Mittman
Board Member
—
1 hrs/wk
Joshua Knowles
Chair
—
1 hrs/wk
Hilliard Paige
Chief Innovation Officer
$363K
40 hrs/wk
Allison Hawke
VP of Operations
$209K
40 hrs/wk
Diane MacDougall
VP of Science and Research
$195K
40 hrs/wk
Susan Seim
Creative Director
$135K
40 hrs/wk
Barbara Gladders
Sr. Healthcare Data Analyst
$124K
40 hrs/wk
Independent contractors
BIA Clinical Group LLC
Statistical & Programming Support
Fairmont Hotel
Summit venue, A/V Production
Source Heathcare Analytics LLC
Data
Solstice Health Communications
Communications & Marketing Consultants
Pri-Med LLC
Professional Society Event
Grants received
Showing 22 of 22
Funded by
$1.1M from 11 funders · 22 grants · 2017–2024
$859K · 8 grants · 2017–2023
$114K · 4 grants · 2019–2023
$91K · 2 grants · 2021–2022
$27K · 1 grant · 2023
$25K · 1 grant · 2021
$6K · 1 grant · 2024
$6K · 1 grant · 2017
$1K · 1 grant · 2021