NonprofitsThe Familiescn2A Foundation Inc

Voluntary Health Associations & Medical Disciplines

The Familiescn2A Foundation Inc

E LONGMEADOW, MA

Total revenue

$3.1M

Total expenses

$1.6M

Net assets

$3.5M

Grants received

$1.9M

34 grants

EIN

473169795

Tax year

2024

Mission

The familiescn2a is dedicated to finding effective treatments and ultimately a cure for scn2a related autism and epilepsy disorders. The familiescn2a foundation raises public awareness, provides patient advocacy, and supports clinical research, genetic research, and early detection.

Programs

1 program

The summer seminar is a family-focused gathering, where families come together and learn about scn2a-related topics and treatments, as well as share experiences.

Expenses: $362K

Financials

FY 2024

Revenue

Contributions & grants$3.0M
Program service revenue$79K
Investment income$22K
Other revenue
Total revenue$3.1M

Expenses

Grants paid$779K
Salaries & benefits$238K
Fundraising$101K
Other expenses$601K
Total expenses$1.6M
Total assets$3.6M
Net assets$3.5M

People

11 listed

NameRoleCompensation

LEAH SCHUST MYERS

EXECUTIVE DI

Board

$156K

40 hrs/wk

CARLA FORBES

BOARD MEMBER

Board

$8K

10 hrs/wk

JENNIFER BURKE

CHAIR

Board

5 hrs/wk

MERY OMAN

VICE CHAIR

Board

2 hrs/wk

MICHELLE LEWIS

SECRETARY

Board

5 hrs/wk

MICHAEL VASEY

TREASURER

Board

5 hrs/wk

EMILY PARK

TRUSTEE

Board

2 hrs/wk

MAURA BRAGG

TRUSTEE

Board

2 hrs/wk

WILL HUTSON

TRUSTEE

Board

2 hrs/wk

ROGER PREMO

TRUSTEE

Board

2 hrs/wk

GEOFF WHITMAN

TRUSTEE

Board

2 hrs/wk

Grants received

Showing 34 of 34

FromAmountPurposeYear
$500K
Funds for Annual Conference and Action Potential Award Program
2024
$250K
General & Unrestricted
2024
$45K
GENERAL SUPPORT
2024
$31K
To Support University of Iowa Research for laboratory of Dr. Chris Ahearn and Dr. Aislinn Williams
2024
$5K
SCN2A CONFERENCE GIFT
2024
$150
GENERAL OPERATING PURPOSE
2024
$250K
General & Unrestricted
2023
$139K
Research at Nationwide Children's Hospital
2023
$38K
For grant recipient's exempt purposes
2023
$10K
CHARITABLE DONATION
2023
$5K
SCN2A CONFERENCE GIFT
2023
$530
TO ACCELERATE RESEARCH, BUILD COMMUNITY AND ADVOCATE TO IMPROVE THE LIVES OF THOSE AFFECTED BY SCN2A-RELATED DISORDERS AROUND THE WORLD
2023
$100
PROGRAM/OPERATING SUPPORT
2023
$75
GENERAL OPERATING PURPOSE
2023
$50
MATCHING GIFTS
2023
$250K
General & Unrestricted
2022
$169K
Research at Nationwide Children's Hospital
2022
$31K
Support research at the University of Iowa
2022
$25K
Research at Nationwide
2022
$16K
For grant recipient's exempt purposes
2022
$5K
2022 SCN2A CONFERENCE GIFT
2022
$50
MATCHING GIFTS
2022
$12K
For grant recipient's exempt purposes
2021
$12K
For grant recipient's exempt purposes
2021
$8K
Donor Advised Fund
2021
$7K
WORKSHOP GRANTWORKSHOP GRANT
2021
$20K
COC GRANT
2020
$13K
For grant recipient's exempt purposes
2020
$10K
DONOR ADVISED FUNDS
2019

Funded by

$1.9M from 13 funders · 34 grants · 2019–2024

John and Emily Park Family Foundation

$1.6M · 9 grants · 2022–2024

Fidelity Investments Charitable Gift Fund

$89K · 5 grants · 2020–2023

Paypal Charitable Giving Fund

$63K · 2 grants · 2023–2024

American Online Giving Foundation Inc

$60K · 4 grants · 2021–2024

Global Genes

$20K · 1 grant · 2020

Global Impact

$17K · 2 grants · 2019–2021

The Simons Foundation Inc

$15K · 3 grants · 2022–2024

Charities Aid Foundation America

$10K · 1 grant · 2023

Details

EIN473169795
NTEE codeG20
Subsection03
Ruling date2015-10
Formed2015
Employees5
Volunteers9
THE FAMILIESCN2A FOUNDATION INC — Mission, Financials & Grants Received | Grantivo