NonprofitsThe International Waldenstroms Macroglobulinemia Foundation Inc

Voluntary Health Associations & Medical Disciplines

The International Waldenstroms Macroglobulinemia Foundation Inc

SARASOTA, FL

Total revenue

$4.5M

Total expenses

$5.5M

Net assets

$7.1M

Grants received

$2.8M

82 grants

EIN

541784426

Tax year

2024

Mission

Support and educate everyone affected by waldenstrom's macroglobulinemia while advancing the search for a cure.

Programs

3 programs

Educational forums hosted a national educational forum for waldenstrom's macroglobulinemia patients and provided a grant to fund patient educational forums. The 2024 education forum generated $237,956 in gross receipts, including $185,000 in sponsorship contributions

Expenses: $339K

Iwmf publications serve to educate and support patients and caregivers. Iwmf torch is a quarterly magazine which covers the latest information on waldenstrom's macroglobulinemia education, research, activities and treatments.

Expenses: $66K

Other program services for international outreach and other program services for support groups.

Expenses: $1.5M

Financials

FY 2024

Revenue

Contributions & grants$4.1M
Program service revenue$53K
Investment income$305K
Other revenue$2K
Total revenue$4.5M

Expenses

Grants paid$2.9M
Salaries & benefits$931K
Fundraising$298K
Other expenses$1.6M
Total expenses$5.5M
Total assets$7.5M
Net assets$7.1M

People

19 listed

NameRoleCompensation

LOUIE NEWTON GUERIN

PRESIDENT/CEO

Board

$157K

40 hrs/wk

SHIRLEY GANSE

TRUSTEE

Board

15 hrs/wk

CAROL WELSH GRAY

TRUSTEE

Board

15 hrs/wk

MEG MANGIN

TRUSTEE

Board

15 hrs/wk

LINDA NELSON

TRUSTEE

Board

15 hrs/wk

SAURABH SEROO

TRUSTEE

Board

15 hrs/wk

ROBERT PERRY

TRUSTEE

Board

15 hrs/wk

CRAIG PRIZANT

TRUSTEE

Board

15 hrs/wk

STEPHEN ANSELL MD PHD

TRUSTEE

Board

15 hrs/wk

EILEEN SULLIVAN

TRUSTEE

Board

15 hrs/wk

JOHN ZIMMERMAN

TRUSTEE

Board

15 hrs/wk

PAUL KITCHEN

CHAIRMAN

Board

30 hrs/wk

CARL HARRINGTON

VICE-CHAIR FUNDRAISING

Board

15 hrs/wk

THOMAS HOFFMAN MD

VICE-CHAIR RESEARCH

Board

15 hrs/wk

LISA WISE

VICE-CHAIR INFO & SUPPORT

Board

15 hrs/wk

CARL LISMAN

SECRETARY/TREASURER

Board

15 hrs/wk

DAVID SCHNELL

TRUSTEE

Board

15 hrs/wk

GLENN CANTOR DVM PHD

TRUSTEE

Board

15 hrs/wk

ANNETTE PRESTON

DIR. OF DEVELOPMENT

Staff

$111K

40 hrs/wk

Grants received

Showing 82 of 82

FromAmountPurposeYear
$19K
GENERAL SUPPORT
2024
$15K
MEDICAL / PUBLIC SERVICES
2024
$10K
UNRESTRICTED GENERAL SUPPORT
2024
$135K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$52K
For grant recipient's exempt purposes
2023
$15K
MEDICAL / PUBLIC SERVICES
2023
$8K
DISEASE/DISORDER
2023
$3K
TO FURTHER CHARTIABLE ACTIVITES
2023
$100K
RESEARCH GRANT
2022
$60K
For grant recipient's exempt purposes
2022
$31K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$15K
In support of general operations
2022
$10K
GENERAL SUPPORT OF SERVICE PROGRAMS
2022
$10K
Memorial donation Improvements
2022
$8K
GENERAL SUPPORT
2022
$8K
DISEASE/DISORDER
2022
$7K
SUPPORT FOR RESEARCH
2022
$6K
GENERAL SUPPORT
2022
$3K
General & Unrestricted
2022
$1K
GENERAL FUNDING
2022
$150
MATCHING GIFTS
2022
$150
MATCHING GIFT TO HEALTH & HUMAN SERVICES AGENCY
2022
$100K
RESEARCH GRANT
2021
$20K
For grant recipient's exempt purposes
2021
$20K
For grant recipient's exempt purposes
2021
$19K
For recipient's exempt purpose
2021
$15K
In support of general operations.
2021
$15K
in support of general operations.
2021
$11K
General Support
2021
$10K
Donation - In Mem. Eliz. M Egan
2021
$10K
GENERAL SUPPORT OF SERVICE PROGRAM
2021
$500
MATCHING EMPLOYEE DONATION
2021
$64K
For grant recipient's exempt purposes
2020
$25K
MEDICAL / PUBLIC SERVICES
2020
$19K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$15K
in support of general operations.
2020
$5K
General Support
2020
$1K
GENERAL FUNDING
2020
$232K
For grant recipient's exempt purposes
2019
$125K
RESEARCH GRANTS
2019
$125K
RESEARCH GRANT
2018
$34K
For grant recipient's exempt purposes
2018
$25K
GENERAL SUPPORT
2018
$5K
TO FURTHER THE EXEMPT PURPOSE OF THE ORGANIZATION
2018
$100
Matching Grant
2018
$30K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
$12K
HEALTH & HUMAN SERVICES
2017

Funded by

$2.8M from 29 funders · 82 grants · 2017–2024

Donor Advised Charitable Giving Inc

$550K · 7 grants · 2017–2023

The Leukemia & Lymphoma Societyinc

$550K · 6 grants · 2018–2023

Fidelity Investments Charitable Gift Fund

$512K · 8 grants · 2017–2023

The Community Foundation Of Sarasota Co

$404K · 3 grants · 2019–2023

Vanguard Charitable Endowment Program

$204K · 4 grants · 2020–2023

Mightycause Charitable Foundation

$171K · 4 grants · 2020–2024

Gs Donor Advised Philanthropy Fund

$120K · 6 grants · 2018–2024

American Online Giving Foundation Inc

$67K · 4 grants · 2021–2024

Details

EIN541784426
NTEE codeG80
Subsection03
Ruling date2002-04
Formed1998
Employees11
Volunteers221
THE INTERNATIONAL WALDENSTROMS MACROGLOBULINEMIA FOUNDATION INC — Mission, Financials & Grants Received | Grantivo