Nonprofits›The Joshua Frase Foundation For Congenital Myopathy Research Inc

Voluntary Health Associations & Medical Disciplines

The Joshua Frase Foundation For Congenital Myopathy Research Inc

PONTE VEDRA, FL

Website

Total revenue

$139K

Total expenses

$27K

Net assets

$141K

Grants received

$178K

9 grants

EIN

597059890

Tax year

2024

Mission

Research for Myotubular Myopathy and other Congenital Myopathies, educational information, and research support.

Programs

1 program

Assistance to families with the purchase of needed medical equipment and being a resource for educating families worldwide on the care for these critically ill children as well as providing resources for them.

Expenses: $2K

Financials

FY 2024

Revenue

Contributions & grants$139K
Program service revenue—
Investment income$1
Other revenue—
Total revenue$139K

Expenses

Grants paid$383
Salaries & benefits—
Fundraising$12K
Other expenses$26K
Total expenses$27K
Total assets$148K
Net assets$141K

People

8 listed

NameRoleCompensation

Alison Rockett

President

Board

—

55 hrs/wk

Lisa Nickerson

Vice president

Board

—

1 hrs/wk

Paul Frase

Secretary

Board

—

1 hrs/wk

Scott Grant

Director

Board

—

1 hrs/wk

Sean Klinkowize

Director

Board

—

1 hrs/wk

Daryl Johnston

Director

Board

—

1 hrs/wk

Angelica Townshend

Director

Board

—

1 hrs/wk

Edward Costa

Director

Board

—

1 hrs/wk

Grants received

Showing 9 of 9

FromAmountPurposeYear
THE COMMUNITY FOUNDATION FOR
$107K
TO SUPPORT A 1:1 MATCH TO FUND CONTINUED RESEARCH INTO GENE THERAPY TREATMENT OF MYOTUBULAR MYOPATHY
2024
THE COMMUNITY FOUNDATION FOR
$1K
ANNUAL CONTRIBUTION
2024
THE COMMUNITY FOUNDATION FOR
$18K
TO HONOR JOSHUA'S 16 YEARS OF LIFE AS THE FOUNDATION CONTINUES THE WORK FOR 18 YEARS TO FIND A CURE FOR CONGENITAL MYOPATHIES
2023
THE COMMUNITY FOUNDATION FOR
$1K
ANNUAL CONTRIBUTION
2023
NETWORK FOR GOOD
$5K
UNRESTRICTED
2022
NETWORK FOR GOOD
$10K
UNRESTRICTED
2021
NETWORK FOR GOOD
$19K
Unrestricted
2020
SEATTLE FOUNDATION
$10K
TO PROVIDE GENERAL SUPPORT.
2020
NETWORK FOR GOOD
$7K
Unrestricted
2018

Funded by

$178K from 3 funders · 9 grants · 2018–2024

The Community Foundation For

$127K · 4 grants · 2023–2024

Network For Good

$41K · 4 grants · 2018–2022

Seattle Foundation

$10K · 1 grant · 2020

Details

EIN597059890
NTEE codeG50
Subsection03
Ruling date1997-07
Formed1996
Employees0
Volunteers0
THE JOSHUA FRASE FOUNDATION FOR CONGENITAL MYOPATHY RESEARCH INC — Mission, Financials & Grants Received | Grantivo