The Naspghan Foundation

Educational campaigns:the foundation supports the educational mission of naspghan through a diverse portfolio of professional and public education initiatives. Topic areas are reflux and gero, inflammatory bowel disease, celiac disease and gluten-related disorders, constipation, eosinophilic esophagitis, nutrition, endoscopy, and nonalcoholic fatty liver disease in children, adolescents and young adults. The foundation's goal is to educate medical professionals and the public, and to support the development of new research in these areas. The primary objectives are to improve the quality of life and to change pediatric and adult health outcomes by early detection and intervention. Gikids is the patient outreach and education effort of naspghan. With gikids, aspghan and the foundation are working to reach out irectly to amilies,kids and teens who live with digestive condtions to provide them with the information they need to:-understand and improve their digestive health-work with their health care providers-live a more independent life-understand what works in plain language"a practical approach to nutritional management of children with cholestatic liver diseases:tips for patients and caregivers" webinar and on demand program children with cholestatic liver diseases have unique nutritional requirements.objectives:1.overview of the clinical presentation and long-term implications of malnutrition and fat-soluble vitamin deficiencies in childrenwith cholestatic liver disorders.2.review current available formulation and practical tips for the care provider.3.review the currently available vitamin supplements, formulations and discussion.4.discuss lack of insurance cover for medical food, vitamins and financial burden to the families. Hepatitis c slide set and grand rounds hcv infection is children is frequently unrecognized. Recently proposed universal testing strategies during pregnancy need to beimplemented. Although liver disease is generally mild in children, chronic hepatitis and cirrhosis occurs. Direct active antivirals are very efficacious and safe. Therefore, all hcv infected children> 3 years of age should be considered for treatment. Public and professional education is critically important to increase hcv awareness. The foundation developed a slide deck and grand rounds program to increase awareness regarding testing andmanagement of hcv. "nutrition and liver disease in peroxisomal biogenesis disorders: diagnosis and management" naspghan nutrition university (n2u) this course is designed to provide specialized nutrition education in areas associated with the practice of pediatric gastroenterology and nutrition to 3rd year fellows, junior faculty and dietitians. It targets two groups: candidates who received minimal nutrition education during their fellowship or whom plan to pursue pediatric nutrition as their career focus.teaching and tomorrow underrepresented in medicine (urim) program the pediatric gi teaching and tomorrow program of naspghan strives to attract the brightest residents to subspecialty training in pediatric gastroenterology, hepatology and nutrition. Due to the excellent interest in this innovative naspghan program, we have seen continual growth in the interest and applications to gi training programs through the years. This program has been recently expanded to provide scholarships to interested 1st and 2nd year pediatric residents and 4th year medical students who self-identify as underrepresented in medicine (urim). In additionto networking with other participants while attending the program's scheduled sessions,the urim program attendees are matched up with a naspghan fellow and/or attending physician (a teaching and tomorrow program alumnus) who serves as a point of contact and ambassador to the annual meeting. Urim naspghan/naspghan foundation medical student mentored summer research program the urim naspghan/naspghan foundation medical student mentored summer research program takes place at multiple sites throughoutthe u.s. And canada and provides medical students who self-identify as urim with a 10-week research experience under the mentorship of basic or clinical scientists with a research focusin pediatric gastroenterology, hepatology, or nutrition. Candidates for these scholarships must have completed at minimum their first year of medical training and be in good standing ataccredited medical schools in the u.s. And canada. Reference is given to students who are seeking a research experience preference is given to students who are seeking a research experience between the first and second years of medical school, though applications from all currently enrolled students are considered. These students are also invited to attend the annual meeting, present a poster of their project and participate in the teaching and tomorrow program. Education the foundation supports the educational mission of naspghan through a diverse portfolio of professional and public education initiatives. The foundation's goal is to educate medical professionals and the public, and to support the development of new knowledge through research. The primary objectives are to improve the quality of life and to improve health outcomes through education, early detection and evidence-based care.

Webinars and on-demand educational modules egids: beyond the esophagus. Egids are a collection of chronic inflammatory diseases including eosinophilic esophagitis (eoe), eosinophilic gastritis (eg) eosinophilic gastroenteritis(ege), and eosinophilic colitis (ec). Among the egids, eoe has become an increasingly recognized and studied condition. Validated metrics have been established to quantify quality of life, symptoms, histologic and endoscopic findings. In addition, there are well-established, effectivetreatments. The same cannot be said for eg, ege, or ec, which lacks well established histologic criteria for diagnosis, and has a more unclear natural history, nor well-established treatments. Egids: beyond the esophagus brings to light the latest on non-eoe egid, including the signs and symptoms; the criteria to make a diagnosis; what options exist for therapy,and the potential mechanisms of disease. Practical tips in the nutritional management of children with cholestatic liver disorders: a webinar for patients, families and caregivers.this webinar explores practical approaches to the nutritional management of children with cholestatic liver diseases, with special tips for patients and caregivers. Participants learn theclinical presentation and long-term implications of malnutrition and fat-soluble vitamin deficiencies in children with cholestatic liver disorders, become acquainted with differences among the currently available formulation to support nutrition in cholestatic babies, and the currently available vitamin supplements and formulations. The lack of insurance coverage formedical food and vitamins is also discussed.

Children with cholestatic liver disease : diagnostics, medical management of chronic pancreatitis in children:maximizing treatment and improving outcomes, removing dieting from diet therapies in pediatric gi, the what, how and ifs of optimizing early childhood growth and long-term outcomes, children with cholestatic liver disease: pruritis management, naspghan fellows toolbox website, bowel sounds episodes on early nutrition. Cholestatic jaundice is a rare presentation of various hepatobiliary, metabolic, and genetic disorders . Cholestasis typically presents in theneonatal/ infantile period but can also present late in older children or even adults . Early diagnosis and appropriate management of the underlying condition are of paramount importance for optimal prognosis . Diagnosis of cholestasis needs an array of investigations including blood tests, imaging, genetic testing, and invasive procedures like liver biopsy . Liver biopsy is one of the central crucial investigations done in evaluating children with cholestasis, however, can be associated with complications including bleeding . Understanding when to use a liver biopsy in children with cholestasis along with its limitations is extremely important to gain the maximum benefit out of an invasive procedure. Over the last decade, the growth in genetic techniques and the identification of new genes leading to cholestasis in children haveevolved significantly and have led to the shrinking of the unidentified etiologies. This webinar addresses the rapidly evolving field of genetic cholestasis and when to perform a liver biopsy,its utility, and limitations. Medical management of chronic pancreatitis in children : maximizingtreatment and improving outcomes chronic pancreatitis (cp) in children is associated with significant morbidity and poor quality of life . The incidence of cp in children has risen over the past few decades and is approaching that seen in the adult population . Cp is an inflammatory disease resulting in irreversible changes in the pancreas including acinar cell loss, fibrosis, ductal changes, and calcifications . Patients with cp may suffer from abdominal pain and complications of exocrine pancreatic insufficiency (epi) and diabetes mellitus . Medical management of chronic pancreatitis in children : maximizing treatment and improvingoutcomes brings together leading experts to discuss how to ensure that childhood cp is recognized early and its sequalae treated promptly . Removing dieting from diet therapies in pediatric gi obesity was declared an epidemic by the cdc in the 1990s, yet significant and sustained weight loss continues to be problematic for americans as a population . Critical factors are often overlooked when addressing obesity such as racial discrimination, disability status, and environmental factors. In conjunction, "weight stigma", or bias that devalues people with larger bodies, can cause increased morbidity and mortality, independent of bmi. As a response, a movement is taking place, known by several names including "anti-diet or "intuitive eating". This is an inclusive movement that recognizes one's size as part of his or her identity as much as race, national origin, and sexuality. It considers social, economic, and physical barriers to obesity, rather than assuming lack of willpower or education are thecause . It's about recognizing "diet culture and dismantling the anti-fat and pro-thin messages that infiltrate society . This informative and interactive webinar helps healthcare providersrecognize weight stigma and promote a positive relationship with food, particularly in patients with gi-related health conditions and those following therapeutic diets. The what, how and ifs of optimizing early childhood growth and long-term outcomes : part one understanding normal growth and development is critically essential for quick recognition and intervention for deviations in childhood growth and nutrient intake practices associated with increased risk for disease and poor long-term health . Nutrient and non-nutrient factors influence health outcomes throughout the lifecycle . This webinar and podcast series, the what, how and ifs of optimizing early childhood growth and long-term outcomes discusses how to implement nutrient and non-nutrient factors that optimize long-term health, recognize childhood growth and nutrient intake patterns associated with disease, childhood microbiome and long-term risk for disease, and early diagnosis and management strategies for childhood feeding disorders. The what, how and ifs of optimizing early childhood growth and long-term outcomes : part two understanding normal childhood growth is essential for quick recognition and intervention for deviations in growth and nutrient intake associated with long-term risk for disease and poor health . Therefore, the 'what, how, and ifs of optimizing childhood growth and long-term outcomes' webinar series addresses the knowledge and practice gaps about nutrient and non-nutrient factors essential for optimizing long-term health outcomes . The first webinar addresses the early life nutritional factors thatpromote healthy growth, the development of a microbiome associated with optimized long-term health, and the recognition of early childhood growth patterns related to long-term risk for overweight and obesity . This part two webinar focuses on a nutritional assessment approach that quickly recognizes disease, nutritional management of childhood feedingdisorders, and principles and strategies for weaning children from dependence on tube feeds .children with cholestatic liver disease : pruritis management pruritus is a common complication of cholestatic liver disease that can significantly impair quality of life. Intractable pruritus is an indication for liver transplant regardless of peld/ meld score.the pathophysiology of pruritus is complex. Several medications serve as standards for treatment and recent advances in quantification has allowed for rigorous and controlled study of new medications. In certain circumstances, liver transplant can be avoided or delayed with surgical biliary intervention . Naspghan fellows toolbox website the naspghan toolbox website is designed to deliver pediatric gastroenterology information to care providers in a format that is user friendly . The toolbox provides easy access to clinical guidelines forpediatric gastroenterologists and trainees and is now available as a distinct website linked from the naspghan website . Features of the toolbox include algorithms to navigate clinical guidelines for various diseases; high quality images of gi pathology; helpful tables on managing nutritional needs; scores and calculators to assist in calculating important pediatric gi scores; and a convenient search feature . Bowel sounds episodes on early nutrition bowel sounds is a podcast on all things related to pediatric gastroenterology, hepatology, and nutrition . Episodes feature interviews with experts offering clinical and academic pearls andcareer advice with something for everyone regardless of career stage or discipline. New episodes are released every other monday. Two bowel sounds episodes which focus on early childhood nutrition include : early life nutrition and impact on childhood development and the role of the microbiome in healthy infant and early childhood nutrition.