The United Leukodystrophy Foundation Inc
DEKALB, IL
Total revenue
$596K
Total expenses
$553K
Net assets
$1.6M
Grants received
$260K
31 grants
EIN
351557361
Tax year
2024
Mission
The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment and prevention.
Financials
FY 2024
Revenue
Expenses
People
14 listed
Diane Fennimore
Executive Director
$94K
40 hrs/wk
Donna Skwirut
Treasurer
—
2 hrs/wk
Shannon Reed
Secretary
—
2 hrs/wk
Ron Chapleau
President
—
15 hrs/wk
Mousumi Bose
Director
—
2 hrs/wk
Amber Freed
Director
—
2 hrs/wk
Gregory Huffer
Director
—
2 hrs/wk
Dr Joseph Hacia
Director
—
2 hrs/wk
Dr Stephanie Keller
Vice President
—
2 hrs/wk
Marcie Flores
Director
—
2 hrs/wk
John Kaprich
Director
—
2 hrs/wk
Margaret Mcintyre
Director
—
2 hrs/wk
Marilyn Schmiedel
Director
—
2 hrs/wk
Michele Herndon
Director
—
2 hrs/wk
Grants received
Showing 31 of 31
Funded by
$260K from 11 funders · 31 grants · 2017–2024
$170K · 6 grants · 2018–2023
$37K · 3 grants · 2022–2024
$25K · 1 grant · 2020
$10K · 2 grants · 2020–2023
$10K · 1 grant · 2024
$5K · 1 grant · 2017
$650 · 1 grant · 2018
$500 · 11 grants · 2020–2023