NonprofitsTourette Association Of America Inc

Disease & Medical Research

Tourette Association Of America Inc

BAYSIDE, NY

Total revenue

$5.2M

Total expenses

$5.8M

Net assets

$7.8M

Grants received

$4.1M

86 grants

EIN

237191992

Tax year

2024

Mission

To identify the cause of, find the cure for and control the effects of tourette syndrome.

Programs

3 programs

Research & medical programs - working to advance scientificunderstanding, treatment options and care options for the disorder byproviding funding for research investigations in the areas ofneurosciences, genetics, behaviorial therapy, clinical trials.

Expenses: $950KGrants: $600K

Centers for disease control (cdc) partnership - the association andcdc work together to provide expert education about tourette syndrometo physicians and allied professionals and to encourage physicians toapply to the association's referral lists. Includes programs toeducate schools and communities about tourette syndrome.

Expenses: $1.1MGrants: $73K

Professional education - provides for the education and awareness oftourette syndrome to medical professionals, through among other things,seminars and distribution of research updates.

Expenses: $126K

Financials

FY 2024

Revenue

Contributions & grants$4.7M
Program service revenue$105K
Investment income$437K
Other revenue
Total revenue$5.2M

Expenses

Grants paid$673K
Salaries & benefits$3.2M
Fundraising$735K
Other expenses$1.9M
Total expenses$5.8M
Total assets$9.5M
Net assets$7.8M

People

27 listed

NameRoleCompensation

AMANDA TALTY

PRESIDENT & CEO

Board

$295K

40 hrs/wk

SONJA MASON-VIDAL

VP OF FINANCE & ADM.

Board

$157K

40 hrs/wk

KARON HARRISON - THRU 101624

VP OF RESOURCE DEVELOPMENT & AFFILIATES SERVICES

Board

$134K

40 hrs/wk

JAMES NICHOLS

VP OF PUBLIC POLICY

Board

$92K

40 hrs/wk

SCOTT STERLING

VP OF RESOURCE DEVELOPMENT & AFFILIATE SERVICES

Board

$70K

40 hrs/wk

DIANA FELNER - THRU 12024

VP OF PUBLIC POLICY

Board

$11K

40 hrs/wk

MARC BENSON

DIRECTOR

Board

2 hrs/wk

BRUCE OCHSMAN

DIRECTOR

Board

2 hrs/wk

DANIEL MCGARVEY

DIRECTOR

Board

2 hrs/wk

CINDY KURTZ

DIRECTOR

Board

2 hrs/wk

ROVENA SCHIRLING

DIRECTOR

Board

2 hrs/wk

STEPHEN BARRON

CHAIRMAN OF THE BOARD

Board

2 hrs/wk

KARL VALENTINI

DIRECTOR

Board

2 hrs/wk

JOHN WALKUP MD

DIRECTOR

Board

2 hrs/wk

SUSAN COUREY PHD

DIRECTOR

Board

2 hrs/wk

ANTHONY ACAMPORA EFF 22425

DIRECTOR

Board

2 hrs/wk

DASH MIHOK EFF 22425

DIRECTOR

Board

2 hrs/wk

RANDI ZEMSKY

DIRECTOR

Board

4 hrs/wk

DAVID SCHOENHAAR

FIRST VICE CHAIR

Board

2 hrs/wk

JASMINE TARKOFF

SECOND VICE CHAIR

Board

2 hrs/wk

JEFFREY KRAMER

THIRD VICE CHAIR

Board

2 hrs/wk

ALICE KANE

FOURTH VICE CHAIR

Board

2 hrs/wk

CHERI DAVID CPA

DIRECTOR

Board

2 hrs/wk

MONTE REDMAN

DIRECTOR

Board

2 hrs/wk

PAUL DEVORE

DIRECTOR

Board

2 hrs/wk

JAMES SARACINI

VP, MARKETING & COMMUNICATIONS

Staff

$146K

40 hrs/wk

KATRINA HERMETET

VP, MEDICAL & SCIENTIFIC AFFAIRS

Staff

$104K

40 hrs/wk

Grants received

Showing 86 of 86

FromAmountPurposeYear
$200K
GENERAL SUPPORT
2024
$71K
MEDICAL / PUBLIC SERVICES
2024
$20K
GRANT TO SUPPORT GENERAL OPERATING AS RECOMMENDED BY DONOR
2024
$15K
UNRESTRICTED GENERAL SUPPORT
2024
$10K
DISEASE/DISORDER
2024
$5K
UNRESTRICTED GENERAL SUPPORT
2024
$200K
GENERAL SUPPORT
2023
$141K
For grant recipient's exempt purposes
2023
$69K
HUMAN SERVICES
2023
$51K
MEDICAL / PUBLIC SERVICES
2023
$21K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2023
$20K
GRANT RECOMMENDED BY DONOR
2023
$15K
UNRESTRICTED GENERAL SUPPORT
2023
$5K
UNRESTRICTED GENERAL SUPPORT
2023
$381K
UNRESTRICTED GENERAL SUPPORT
2022
$155K
For grant recipient's exempt purposes
2022
$100K
GENERAL SUPPORT
2022
$71K
HUMAN SERVICES
2022
$20K
UNRESTRICTED GRANT, AS RECOMMENDED BY A DONOR
2022
$15K
Grants from Donor Advised Funds - Operating Support
2022
$13K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$10K
GENERAL SUPPORT
2022
$6K
HUMAN SERVICE
2022
$6K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2022
$5K
GENERAL SUPPORT
2022
$5K
UNRESTRICTED GENERAL SUPPORT
2022
$122K
For grant recipient's exempt purposes
2021
$122K
For grant recipient's exempt purposes
2021
$50K
Clinical Scientist Development Award in Tourette Syndrome Grant
2021
$21K
GENERAL PURPOSE
2021
$15K
Grants from Donor Advised Funds - Operating Support
2021
$8K
GENERAL SUPPORT
2021
$100K
UNRESTRICTED GENERAL SUPPORT
2020
$80K
For grant recipient's exempt purposes
2020
$55K
MEDICAL / PUBLIC SERVICES
2020
$20K
GRANT RECOMMENDED BY DAF
2020
$5K
PROGRAM SUPPORT
2020
$381K
UNRESTRICTED GENERAL SUPPORT
2019
$57K
For grant recipient's exempt purposes
2019
$10K
Operating Support/Annual Fund
2019
$10K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2019
$5K
General support
2019
$51K
For grant recipient's exempt purposes
2018
$8K
RESEARCH/PUBLIC EDUCATION
2018
$92K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
$38K
HEALTH & HUMAN SERVICES
2017
$26K
PUBLIC, SOCIETAL BENEFIT
2017
$20K
See TisBest mission.
2017
$15K
RESEARCH/PUBLIC EDUCATION
2017
$15K
RESEARCH/PUBLIC EDUCATION
2017
$13K
General Support
2017
$10K
Operating Support
2017
$10K
HEALTH AND HUMAN SERVICES
2017

Funded by

$4.1M from 28 funders · 86 grants · 2017–2024

Morgan Stanley Global Impact Funding Trust Inc

$907K · 8 grants · 2019–2024

Fidelity Investments Charitable Gift Fund

$819K · 8 grants · 2017–2023

The Independent Charitable Gift Fund

$550K · 4 grants · 2020–2024

Jewish Community Federation Of San

$360K · 5 grants · 2017–2022

Donor Advised Charitable Giving Inc

$334K · 7 grants · 2017–2023

Gs Donor Advised Philanthropy Fund

$276K · 4 grants · 2020–2024

National Philanthropic Trust

$221K · 5 grants · 2017–2023

American Online Giving Foundation Inc

$117K · 6 grants · 2019–2024

Details

EIN237191992
NTEE codeG50Z
Subsection03
Ruling date1982-12
Formed1972
Employees38
Volunteers52
TOURETTE ASSOCIATION OF AMERICA INC — Mission, Financials & Grants Received | Grantivo