Vasculitis Foundation
KANSAS CITY, MO
Total revenue
$2.5M
Total expenses
$2.4M
Net assets
$5.9M
Grants received
$2.3M
83 grants
EIN
431492959
Tax year
2024
Mission
Building upon the collective strength of the vasculitis community, the vasculitis foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives. Our vision is to be the leading organization in the world dedicated to diganosing, treating, and curing all forms of vasculitis.
Programs
1 program
Vasculitis - building outcomes, leading discoveries (v-bold) program combines research, fellowships, vasculitis centers, and the vpprn with the goal to improve the quality of life for patients with vasculitis, and ultimately find the cause(s) and cure for vasculitis. Research: the vf young investigator award provides one or two-year grants of up to 50,000 to support researchers within five years of the completion of their fellowships. The funding supports pilot studies in researching diagnosis, etiology/pathogenesis, epidemiology, and treatment/management. Fellowships: the vf partners with academic institutions and the vasculitis clinical research consortium (vcrc) to provide fellowships for physician- investigators who have a strong interest in vasculitis. This mentored training program emphasizes clinical, patient-oriented investigation. Vasculitis centers are essential in the patient journey - from diagnosis to treatment to remission, with the potential for cures. Vasculitis centers provide comprehensive, high-quality, and compassionate care to patients with vasculitis. In addition, they have the capacity to advance our understanding of vasculitis through research. With experts in the management and study of the disease, vasculitis centers are at the forefront of specialty care and clinical research, while treating all types of vasculitis. In 2024-25, vf funded 10 grants totalling 246,907. Vasculitis patient-powered research network (vpprn) is the international research network of patients, scientists, clinicians, advocates and family members who work to improve the health care and quality of life for people with vasculitis through high-level clinical research.
Financials
FY 2024
Revenue
Expenses
People
14 listed
JOYCE A KULLMAN
EXECUTIVE DI
$127K
40 hrs/wk
KEVIN BYRAM MD
PRESIDENT
—
4 hrs/wk
SARA BAIRD AMODIO MSW EDD
PAST PRESIDE
—
4 hrs/wk
ELIZABETH BRANDT MD
SECRETARY
—
4 hrs/wk
DON NAGLE
TREAS - ENDI
—
4 hrs/wk
WILLIAM ANDREWS
TREAS - BEG
—
4 hrs/wk
BRIAN GOLDMAN
VP OF RESOUR
—
4 hrs/wk
JOCELYN ASHFORD
DIRECTOR
—
4 hrs/wk
CAZ CAZANOV
DIRECTOR
—
4 hrs/wk
NOELLE CREAMER
DIRECTOR
—
4 hrs/wk
VIMAL DEREBAIL MD
DIRECTOR
—
4 hrs/wk
ANISHA B DUA MD MPH
DIRECTOR
—
4 hrs/wk
DAHLIA MAK
DIRECTOR
—
4 hrs/wk
SEBASTIAN SATTUI MD
DIRECTOR
—
4 hrs/wk
Grants received
Showing 83 of 83
Funded by
$2.3M from 27 funders · 83 grants · 2017–2024
$1.1M · 5 grants · 2019–2023
$396K · 5 grants · 2017–2023
$211K · 1 grant · 2024
$158K · 5 grants · 2018–2023
$123K · 6 grants · 2019–2024
$95K · 2 grants · 2018–2020
$92K · 1 grant · 2020
$60K · 2 grants · 2023–2024