NonprofitsVasculitis Foundation

Vasculitis Foundation

KANSAS CITY, MO

Total revenue

$2.5M

Total expenses

$2.4M

Net assets

$5.9M

Grants received

$2.3M

83 grants

EIN

431492959

Tax year

2024

Mission

Building upon the collective strength of the vasculitis community, the vasculitis foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives. Our vision is to be the leading organization in the world dedicated to diganosing, treating, and curing all forms of vasculitis.

Programs

1 program

Vasculitis - building outcomes, leading discoveries (v-bold) program combines research, fellowships, vasculitis centers, and the vpprn with the goal to improve the quality of life for patients with vasculitis, and ultimately find the cause(s) and cure for vasculitis. Research: the vf young investigator award provides one or two-year grants of up to 50,000 to support researchers within five years of the completion of their fellowships. The funding supports pilot studies in researching diagnosis, etiology/pathogenesis, epidemiology, and treatment/management. Fellowships: the vf partners with academic institutions and the vasculitis clinical research consortium (vcrc) to provide fellowships for physician- investigators who have a strong interest in vasculitis. This mentored training program emphasizes clinical, patient-oriented investigation. Vasculitis centers are essential in the patient journey - from diagnosis to treatment to remission, with the potential for cures. Vasculitis centers provide comprehensive, high-quality, and compassionate care to patients with vasculitis. In addition, they have the capacity to advance our understanding of vasculitis through research. With experts in the management and study of the disease, vasculitis centers are at the forefront of specialty care and clinical research, while treating all types of vasculitis. In 2024-25, vf funded 10 grants totalling 246,907. Vasculitis patient-powered research network (vpprn) is the international research network of patients, scientists, clinicians, advocates and family members who work to improve the health care and quality of life for people with vasculitis through high-level clinical research.

Expenses: $622KGrants: $247K

Financials

FY 2024

Revenue

Contributions & grants$2.3M
Program service revenue$64K
Investment income$145K
Other revenue
Total revenue$2.5M

Expenses

Grants paid$247K
Salaries & benefits$912K
Fundraising$249K
Other expenses$1.2M
Total expenses$2.4M
Total assets$6.1M
Net assets$5.9M

People

14 listed

NameRoleCompensation

JOYCE A KULLMAN

EXECUTIVE DI

Board

$127K

40 hrs/wk

KEVIN BYRAM MD

PRESIDENT

Board

4 hrs/wk

SARA BAIRD AMODIO MSW EDD

PAST PRESIDE

Board

4 hrs/wk

ELIZABETH BRANDT MD

SECRETARY

Board

4 hrs/wk

DON NAGLE

TREAS - ENDI

Board

4 hrs/wk

WILLIAM ANDREWS

TREAS - BEG

Board

4 hrs/wk

BRIAN GOLDMAN

VP OF RESOUR

Board

4 hrs/wk

JOCELYN ASHFORD

DIRECTOR

Board

4 hrs/wk

CAZ CAZANOV

DIRECTOR

Board

4 hrs/wk

NOELLE CREAMER

DIRECTOR

Board

4 hrs/wk

VIMAL DEREBAIL MD

DIRECTOR

Board

4 hrs/wk

ANISHA B DUA MD MPH

DIRECTOR

Board

4 hrs/wk

DAHLIA MAK

DIRECTOR

Board

4 hrs/wk

SEBASTIAN SATTUI MD

DIRECTOR

Board

4 hrs/wk

Grants received

Showing 83 of 83

FromAmountPurposeYear
$211K
Health, Medicine & Science
2024
$20K
GENERAL SUPPORT
2024
$10K
UNRESTRICTED GENERAL SUPPORT
2024
$1K
GENERAL SUPPORT
2024
$300
TO SUPPORT CHARITABLE ACTIVITIES
2024
$200
GENERAL PURPOSE
2024
$50
GENERAL OPERATING PURPOSE
2024
$80K
For grant recipient's exempt purposes
2023
$50K
UNRESTRICTED GENERAL SUPPORT
2023
$15K
UNRESTRICTED
2023
$15K
CHARITABLE DONATION
2023
$2K
GENERAL OPERATING SUPPORT
2023
$438
GENERAL PURPOSE
2023
$300
TO SUPPORT CHARITABLE ACTIVITIES
2023
$250
EMPLOYEE MATCHING GIFT PROGRAM - GENERAL OPERATING SUPPORT
2023
$175
GENERAL PURPOSE
2023
$60
PROGRAM/OPERATING SUPPORT
2023
$60
PROGRAM/OPERATING SUPPORT
2023
$36
GENERAL SUPPORT
2023
$30
PROGRAM/OPERATING SUPPORT
2023
$30
PROGRAM/OPERATING SUPPORT
2023
$30
PROGRAM/OPERATING SUPPORT
2023
$30
PROGRAM/OPERATING SUPPORT
2023
$30
PROGRAM/OPERATING SUPPORT
2023
$24
GENERAL SUPPORT
2023
$8
GENERAL SUPPORT
2023
$113K
For grant recipient's exempt purposes
2022
$18K
UNRESTRICTED
2022
$7K
GENERAL SUPPORT
2022
$2K
GENERAL OPERATING SUPPORT
2022
$200
TO SUPPORT CHARITABLE ACTIVITIES
2022
$80
PROGRAM/OPERATING SUPPORT
2022
$40
GENERAL SUPPORT
2022
$40
PROGRAM/OPERATING SUPPORT
2022
$24
GENERAL SUPPORT
2022
$24
GENERAL SUPPORT
2022
$12
GENERAL SUPPORT
2022
$94K
For grant recipient's exempt purposes
2021
$94K
For grant recipient's exempt purposes
2021
$33K
UNRESTRICTED
2021
$10K
EMPLOYEE GIVING PROGRAM
2021
$2K
FOR WEGENERS RESEARCH
2021
$1K
TO SUPPORT CHARITABLE ACTIVITIES
2021
$50
General Purpose
2021
$92K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$75K
CHARITABLE
2020
$48K
Unrestricted
2020
$2K
GENERAL OPERATING SUPPORT
2020
$100
TO FURTHER DONEE'S EXEMPT PURPOSE
2020
$2K
GENERAL OPERATING SUPPORT
2019
$43K
Unrestricted
2018
$20K
CHARITABLE
2018
$500
UNRESTRICTED FOR GENERAL USE OF CHARITY
2018
$260
Matching Grant
2018
$14K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
$6K
GENERAL OPERATING SUPPORT
2017
$2K
GENERAL OPERATING SUPPORT
2017

Funded by

$2.3M from 27 funders · 83 grants · 2017–2024

Donor Advised Charitable Giving Inc

$1.1M · 5 grants · 2019–2023

Fidelity Investments Charitable Gift Fund

$396K · 5 grants · 2017–2023

Network For Good

$158K · 5 grants · 2018–2023

American Online Giving Foundation Inc

$123K · 6 grants · 2019–2024

Haberman Family Foundation

$95K · 2 grants · 2018–2020

Morgan Stanley Global Impact Funding Trust Inc

$60K · 2 grants · 2023–2024

Details

EIN431492959
Subsection03
Ruling date1990-11
Formed1988
Employees11
Volunteers150
VASCULITIS FOUNDATION — Mission, Financials & Grants Received | Grantivo