Virtual Center For Velo-Cardio-Facial Syndrome Inc

The corporation will provide free consult & information services to families of individuals or individuals with velo-cardio-facial syndrome (vcfs), craniofacial disorders and genetic syndromes and the clinicians who are treating people with these disorders in order to provide them with the latest information about their disorders, relevant research and treatment outcomes. The organization will provide a forum for discussion of the problems, treatments, and recent advancements associated with vcfs, craniofacial disorders, genetic syndromes and their management. These services will be provided at no cost to those seeking information and will supported by charitable donations.

$217K from 5 funders · 7 grants · 2022–2024