Voluntary Health Associations & Medical Disciplines
Vwm Families Foundation Inc
GREENWICH, CT
Total revenue
$55K
Total expenses
$186K
Net assets
$43K
Grants received
$68K
8 grants
EIN
812058803
Tax year
2024
Mission
Vanishing White Matter disease VWM is a very rare neurological condition that destroys myelin the brains white matter In doing so it permanently affects transmission of brain signals to the rest of the body VWM primarily affects children and is untreatable incurable and terminal In 2016 the VWM Families Foundation was formed to raise awareness of VWM to raise money for research and to support families living with VWM within the United States and worldwide
Financials
FY 2024
Revenue
Expenses
People
5 listed
Allyson Buck
Co-founder President
—
6 hrs/wk
Nicholas Buck
Co-founder Operations
—
1 hrs/wk
Brett Hollberg
Board Member Patient Advocacy
—
3 hrs/wk
Danuta Skwirut
Board Member
—
2 hrs/wk
Stefanie Rohring
Board Member
—
0Grants received
Showing 8 of 8
Funded by
$68K from 5 funders · 8 grants · 2018–2024
$25K · 2 grants · 2021–2024
$16K · 1 grant · 2023
$15K · 2 grants · 2018–2020
$11K · 1 grant · 2018
$650 · 2 grants · 2022–2023