Nonprofits›Williams Syndrome Association Inc

Disease & Medical Research

Williams Syndrome Association Inc

NEWARK, NJ

WebsiteView as a funder

Total revenue

$2.0M

Total expenses

$2.1M

Net assets

$2.8M

Grants received

$1.5M

155 grants

EIN

223305007

Tax year

2024

Mission

Advancing the interests of individuals with williams syndrome by supporting research, providing family services and raising community awareness.

Financials

FY 2024

Revenue

Contributions & grants$1.2M
Program service revenue$679K
Investment income$77K
Other revenue$73K
Total revenue$2.0M

Expenses

Grants paid$80K
Salaries & benefits$876K
Fundraising$200K
Other expenses$1.2M
Total expenses$2.1M
Total assets$2.8M
Net assets$2.8M

People

17 listed

NameRoleCompensation

SARAH SCHAEFER

EXECUTIVE DIRECTOR AS OF JUL'24

Board

$145K

40 hrs/wk

MARY VAN HANEGHAN

EXECUTIVE DIRECTOR THROUGH JUL'24

Board

$113K

40 hrs/wk

JANETRICKS CHEBUKATI OKEYO

SECRETARY

Board

—

5 hrs/wk

GIANNA MORELLO

TRUSTEE

Board

—

1 hrs/wk

KELLY WEI

TRUSTEE

Board

—

1 hrs/wk

BRENDAN LEMIEUX

TRUSTEE

Board

—

1 hrs/wk

ELLEN HOCH

TRUSTEE

Board

—

1 hrs/wk

CLANCEY HOPPER

TRUSTEE

Board

—

1 hrs/wk

BILL PALMER

PRESIDENT

Board

—

5 hrs/wk

REBEKAH PAGIS

VICE PRESIDENT

Board

—

5 hrs/wk

DANIELLE SHOCKEY

TRUSTEE

Board

—

1 hrs/wk

BEN SAMELSON-JONES

TRUSTEE

Board

—

1 hrs/wk

AARON LOMBARD

TRUSTEE

Board

—

1 hrs/wk

MARIE GLEASON

TRUSTEE

Board

—

1 hrs/wk

LISETTE ENGEL

TRUSTEE

Board

—

1 hrs/wk

AMY NUSSBAUM

TRUSTEE

Board

—

1 hrs/wk

MEREDITH GREENE

TREASURER

Board

—

5 hrs/wk

Independent contractors

HYATT REGENCY

CONVENTION SPACE AND CATERING

$272K

TECHNOLOGY EXPRESS INC

CONVENTION AUDIO VISUAL SERVICES

$116K

Grants received

Showing 155 of 155

FromAmountPurposeYear
PAYPAL CHARITABLE GIVING FUND
$73K
GENERAL SUPPORT
2024
AMERICAN ONLINE GIVING FOUNDATION INC
$45K
GENERAL SUPPORT
2024
ARIZONA DIAMONDBACKS FOUNDATIONINC
$25K
GENERAL PROGRAM ASSI
2024
SEATTLE FOUNDATION
$15K
TO PROVIDE GENERAL SUPPORT
2024
SEATTLE FOUNDATION
$15K
TO PROVIDE GENERAL SUPPORT
2024
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$5K
UNRESTRICTED GENERAL SUPPORT
2024
THE SHILOH FOUNDATION
$1K
GENERAL SUPPORT
2024
The Guerra Family Foundation Inc
$1K
General & Unrestricted
2024
SHELL USA COMPANY FOUNDATION
$1K
1000
2024
JPMORGAN CHASE FOUNDATION
$390
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
ASSURANT FOUNDATION
$150
Financial Assistance
2024
CITIZENS CHARITABLE FOUNDATION
$95
MATCHING GIFTS
2024
Arthur J Gallagher Foundation
$50
GENERAL EXEMPT PURPOSE
2024
MUTUAL OF AMERICA FOUNDATION
$50
GENERAL OPERATING PURPOSE
2024
THE GOLDMAN SACHS CHARITABLE GIFT FUND
$77K
COMMUNITY OUTREACH & ENRICHMENT PROGRAMS
2023
PAYPAL CHARITABLE GIVING FUND
$49K
—
2023
AMERICAN ONLINE GIVING FOUNDATION INC
$43K
GENERAL SUPPORT
2023
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$30K
For grant recipient's exempt purposes
2023
DONOR ADVISED CHARITABLE GIVING INC
$22K
HEALTH
2023
THE GOLDMAN SACHS CHARITABLE GIFT FUND
$16K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2023
SEATTLE FOUNDATION
$15K
TO PROVIDE GENERAL SUPPORT.
2023
NATL CHRISTIAN CHARITABLE FDN INC
$10K
GROWTH
2023
CHARITIES AID FOUNDATION AMERICA
$7K
CHARITABLE DONATION
2023
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$5K
UNRESTRICTED GENERAL SUPPORT
2023
Enterprise Holdings Foundation
$5K
Program Support
2023
THE NINER FOUNDATION INC
$2K
SUPPORT OF ORGANIZATION
2023
Enterprise Holdings Foundation
$2K
Program Support
2023
CHUBB CHARITABLE FOUNDATION
$1K
Matching Gifts
2023
THE JOHN A RODGER JR FOUNDATION INC
$1K
AID DONEE ORGANIZATION TO CARRY OUT FUNCTIONS
2023
SHELL USA COMPANY FOUNDATION
$550
MEF
2023
GELFAND GENERATIONS INC
$500
CHARITABLE
2023
XCEL ENERGY FOUNDATION
$420
DOLLARS FOR DOING MATCH A PREVIOUS DONATION (501(C)3)
2023
The Bank of America Charitable Foundation Inc
$328
PROGRAM/OPERATING SUPPORT
2023
CHUBB CHARITABLE FOUNDATION
$250
Matching Gifts
2023
The Bank of America Charitable Foundation Inc
$250
PROGRAM/OPERATING SUPPORT
2023
THE KESTENBAUM FAMILY FOUNDATION
$250
FOR GENERAL SUPPORT OF CHARITABLE ACTIVITIES
2023
CHUBB CHARITABLE FOUNDATION
$250
Matching Gifts
2023
ASSURANT FOUNDATION
$225
Financial Assistance
2023
Lincoln Financial Foundation Inc
$206
Matching Gift
2023
JPMORGAN CHASE FOUNDATION
$100
GENERAL OPERATING SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$96
GENERAL SUPPORT
2023
THE CIGNA GROUP FOUNDATION
$80
GENERAL OPERATING PURPOSE
2023
IMA FOUNDATION
$52
PROGRAM SERVICES
2023
PENTAIR FOUNDATION
$50
Matching Gift
2023
BAXTER INTERNATIONAL FOUNDATION
$50
MATCHING GIFTS
2023
BAXTER INTERNATIONAL FOUNDATION
$50
MATCHING GIFTS
2023
CEDAR STREET CHARITABLE FOUNDATION INC
$230K
GENERAL
2022
THE GOLDMAN SACHS CHARITABLE GIFT FUND
$50K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2022
THOMAS AND LINDA KNOX FOUNDATION
$38K
RESEARCH
2022
AMERICAN ONLINE GIVING FOUNDATION INC
$38K
GENERAL SUPPORT
2022
IMPACTASSETSINC
$25K
GENERAL SUPPORT
2022
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$24K
For grant recipient's exempt purposes
2022
THE BLACKBAUD GIVING FUND
$13K
GENERAL SUPPORT
2022
AMERICAN ENDOWMENT FOUNDATION
$7K
DISEASE/DISORDER
2022
JEWISH FEDERATION OF METROPOLITAN
$5K
Grants from Donor Advised Funds - Operating Support
2022
UNITED WAY OF GREATER MILWAUKEE &
$5K
DONOR DESIGNATIONS
2022
Enterprise Holdings Foundation
$4K
Program Support
2022
The Bank of America Charitable Foundation Inc
$2K
PROGRAM/OPERATING SUPPORT
2022
THE NINER FOUNDATION INC
$2K
SUPPORT OF ORGANIZATION
2022
SHELL USA COMPANY FOUNDATION
$2K
MEF
2022
SHELL USA COMPANY FOUNDATION
$2K
MEF
2022
JPMORGAN CHASE FOUNDATION
$1K
GENERAL OPERATING SUPPORT
2022
GREENBAUM FAMILY FOUNDATION
$500
CHARITABLE CONTRIBUTION/GRANT
2022
GELFAND GENERATIONS INC
$500
CHARITABLE
2022
DUKE ENERGY FOUNDATION
$500
EMPLOYEE MATCHING GIFT DONATION
2022
AMERICAN EXPRESS FOUNDATION
$288
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$288
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$288
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$192
GENERAL SUPPORT
2022
GE FOUNDATION
$125
MATCHING GIFTS
2022
ANALOG DEVICES FOUNDATION
$106
GENERAL SUPPORT
2022
GE FOUNDATION
$100
MATCHING GIFTS
2022
VERIZON FOUNDATION
$100
MIP PAYOUT FOR 06/03/2022
2022
PENTAIR FOUNDATION
$100
Matching Gift
2022
XCEL ENERGY FOUNDATION
$100
MATCHING FUNDS
2022
AMERICAN EXPRESS FOUNDATION
$96
GENERAL SUPPORT
2022
POHLAD FAMILY FOUNDATION
$60
GENERAL OPERATING
2022
GE FOUNDATION
$50
MATCHING GIFTS
2022
LAMB WESTON CHARITABLE FOUNDATION
$50
COMMUNITY SUPPORT
2022
THE PFIZER FOUNDATION INC
$50
MATCHING GIFTS
2022
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$73K
For grant recipient's exempt purposes
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$73K
For grant recipient's exempt purposes
2021
THE GOLDMAN SACHS CHARITABLE GIFT FUND
$50K
SCHOLARSHIPS & FINANCIAL AID
2021
AMERICAN ONLINE GIVING FOUNDATION INC
$33K
GENERAL SUPPORT
2021
DONOR ADVISED CHARITABLE GIVING INC
$11K
HEALTH
2021
Enterprise Holdings Foundation
$4K
Program Support
2021
Enterprise Holdings Foundation
$3K
Program Support
2021
NORMAN D FINKEL FAMILY FOUNDATION
$2K
CONTRIBUTION
2021
OXMAN (FAGL & RONALD) CHARITABLE FUND
$1K
CONTRIBUTIONS
2021
SHELL USA COMPANY FOUNDATION
$750
MEF
2021
JPMORGAN CHASE FOUNDATION
$658
GENERAL OPERATING SUPPORT
2021
GELFAND GENERATIONS INC
$500
CHARITABLE
2021
XCEL ENERGY FOUNDATION
$340
MATCHING EMPLOYEE DONATION
2021
FIELD FOUNDATION OF ILLINOIS
$300
WILLIAMS SYNDROME ASSOCIATION
2021
IMC CHICAGO CHARITABLE FOUNDATION
$100
GENERAL
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$35K
For grant recipient's exempt purposes
2020
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$25K
UNRESTRICTED GENERAL SUPPORT
2020
ARGYROS FAMILY FOUNDATION
$25K
PUB CHAR
2020
AMERICAN ONLINE GIVING FOUNDATION INC
$19K
GENERAL SUPPORT
2020
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$10K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
SEATTLE FOUNDATION
$10K
TO PROVIDE GENERAL SUPPORT.
2020
UNITED WAY WORLDWIDE
$9K
HEALTH
2020
UNITED WAY OF GREATER MILWAUKEE &
$5K
DONOR DESIGNATION PLEDGE PAYMENTS
2020
Helmut Wolfgang Schumann Foundation
$5K
General Support
2020
THE NINER FOUNDATION INC
$3K
SUPPORT OF ORGANIZATION
2020
Enterprise Holdings Foundation
$3K
PROGRAM SUPPORT
2020
Enterprise Holdings Foundation
$3K
PROGRAM SUPPORT
2020
GE FOUNDATION
$2K
MATCHING GIFTS
2020
ALTECSTYSLINGER FOUNDATION
$1K
TO FURTHER THE EXEMPT PURPOSE OF THE ORGANIZATION
2020
THE SHILOH FOUNDATION
$1K
GENERAL SUPPORT
2020
SHELL USA COMPANY FOUNDATION
$825
MEF
2020
XCEL ENERGY FOUNDATION
$510
MATCHING EMPLOYEE DONATION
2020
GELFAND GENERATIONS INC
$500
CHARITABLE
2020
OXMAN (FAGL & RONALD) CHARITABLE FUND
$500
CONTRIBUTIONS
2020
ROBERT W & ELEANOR O HILL FOUNDATION
$500
Health services
2020
CIRCLE OF SERVICE FOUNDATION
$412
MATCH/DISCRETIONARY
2020
AMERICAN EXPRESS FOUNDATION
$288
GENERAL SUPPORT
2020
AMERICAN EXPRESS FOUNDATION
$288
GENERAL SUPPORT
2020
AMERICAN EXPRESS FOUNDATION
$288
GENERAL SUPPORT
2020
JIKES FOUNDATION
$258
TO FURTHER THE ORGANIZATION'S MISSION TO SUPPORT PROGRAMS AND RESEARCH FOR INDIVIDUALS AFFECTED BY WILLIAMS SYNDROME.
2020
EQT FOUNDATION
$200
MATCHING GIFT
2020
CAROL W AND G WILLIAM COTTS
$200
GENERAL
2020
ZURN FOUNDATION INC (FKA REXNORD FOUNDATION INC)
$200
For Human Services
2020
AMERICAN EXPRESS FOUNDATION
$144
GENERAL SUPPORT
2020
SYNCHRONY FOUNDATION
$104
EMPLOYER MATCHING GIFT PROGRAM
2020
Lincoln Financial Foundation Inc
$100
Matching Gifts Program
2020
SHELL USA COMPANY FOUNDATION
$100
MG
2020
AMERICAN EXPRESS FOUNDATION
$83
GENERAL SUPPORT
2020
REYNOLDS AMERICAN FOUNDATION
$75
CHARITABLE ACTIVITIES
2020
AMICA COMPANIES FOUNDATION
$53
GENERAL PURPOSE
2020
IMC CHICAGO CHARITABLE FOUNDATION
$50
GENERAL
2020
AMERICAN ONLINE GIVING FOUNDATION INC
$15K
GENERAL SUPPORT
2019
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$14K
For grant recipient's exempt purposes
2019
UNITED WAY WORLDWIDE
$8K
Health
2019
CEDAR STREET CHARITABLE FOUNDATION INC
$6K
GENERAL
2019
UNITED WAY OF GREATER MILWAUKEE &
$5K
DONOR DESIGNATION PLEDGE PAYMENTS
2019
HANDEL FOUNDATION INC
$650
SPECIAL NEEDS
2019
CHEN & JEN FAMILY FOUNDATION
$500
To Enrich The Lives Of Individuals With Characteristics Of Williams Syndrome.
2019
GELFAND GENERATIONS INC
$500
CHARITABLE
2019
NETWORK FOR GOOD
$70K
Unrestricted
2018
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$30K
For grant recipient's exempt purposes
2018
SEATTLE FOUNDATION
$10K
FAMILIES IN NEED AT 2018 CONVENTION.
2018
FREDERICK A VOLLBRECHT FOUNDATION
$10K
CHARITABLE PURPOSES
2018
THE SHILOH FOUNDATION
$6K
GENERAL SUPPORT
2018
CEDAR STREET CHARITABLE FOUNDATION INC
$5K
GENERAL
2018
THE KIEV FOUNDATION INC
$1K
CHARITABLE
2018
CAROL W AND G WILLIAM COTTS
$1K
GENERAL
2018
The Bank of America Charitable Foundation Inc
$729
PROGRAM/OPERATING SUPPORT
2018
AbbVie Foundation
$410
Matching Grant
2018
OXMAN (FAGL & RONALD) CHARITABLE FUND
$100
CONTRIBUTIONS
2018
CHEN & JEN FAMILY FOUNDATION
$80
WORKS TO ENRICH THE LIVES OF INDIVIDUALS WITH CHARACTERISTICS OF WILLIAMS SYNDROME.
2018
The Bank of America Charitable Foundation Inc
$25
PROGRAM/OPERATING SUPPORT
2018
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$12K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
DONOR ADVISED CHARITABLE GIVING INC
$6K
HEALTH & HUMAN SERVICES
2017
GELFAND GENERATIONS INC
$500
CHARITABLE
2017

Funded by

$1.5M from 71 funders · 155 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$290K · 8 grants · 2017–2023

Cedar Street Charitable Foundation Inc

$241K · 3 grants · 2018–2022

American Online Giving Foundation Inc

$193K · 6 grants · 2019–2024

The Goldman Sachs Charitable Gift Fund

$193K · 4 grants · 2021–2023

Paypal Charitable Giving Fund

$122K · 2 grants · 2023–2024

Network For Good

$70K · 1 grant · 2018

Seattle Foundation

$65K · 5 grants · 2018–2024

Donor Advised Charitable Giving Inc

$39K · 3 grants · 2017–2023

Details

EIN223305007
NTEE codeG20Z
Subsection03
Ruling date1995-01
Formed1993
Employees10
Volunteers100
WILLIAMS SYNDROME ASSOCIATION INC — Mission, Financials & Grants Received | Grantivo