NonprofitsYaya Foundation For 4H Leukodystrophy

Health Care

Yaya Foundation For 4H Leukodystrophy

MINNEAPOLIS, MN

Total revenue

$284K

Total expenses

$411K

Net assets

$293K

Grants received

$957K

22 grants

EIN

823888108

Tax year

2024

Mission

Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.

Programs

1 program

Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.

Expenses: $67K

Financials

FY 2024

Revenue

Contributions & grants$255K
Program service revenue
Investment income$4K
Other revenue$25K
Total revenue$284K

Expenses

Grants paid
Salaries & benefits$162K
Fundraising$127K
Other expenses$249K
Total expenses$411K
Total assets$323K
Net assets$293K

People

14 listed

NameRoleCompensation

GABRIEL BASSIN

Director

Board

1 hrs/wk

JUNE GARBER CHENG

Secretary

Board

1 hrs/wk

CHRIS CLEARY

Director

Board

2 hrs/wk

MARCIE FLORES

Director

Board

5 hrs/wk

RON GARBER

Chairman

Board

15 hrs/wk

DR DANIEL GROSSMAN

Chairman

Board

2 hrs/wk

JUDE TALLMAN

Director

Board

2 hrs/wk

DR MARGO HUTCHINSON

Director

Board

2 hrs/wk

KURT TRIPTOW

Director

Board

2 hrs/wk

DEBBIE TRIPTOW

Director

Board

2 hrs/wk

JIM ST JOHN

Director

Board

0

TIM ARMOUR

Director

Board

0

SOLOMON LIEBERMAN

Director

Board

0

Benjamin Smith

Executive Director

Staff

$150K

40 hrs/wk

Grants received

Showing 22 of 22

FromAmountPurposeYear
$8K
MULTIPLE GRANTS FOR MULTIPLE PURPOSES
2024
$5K
GENERAL OPERATING SUPPORT
2024
$15K
GENERAL OPERATIONS
2023
$10K
GENERAL OPERATING SUPPORT
2023
$10K
MEDICAL / PUBLIC SERVICES
2023
$9K
For grant recipient's exempt purposes
2023
$9K
GENERAL SUPPORT
2023
$15K
GENERAL SUPPORT
2022
$15K
GENERAL OPERATING
2022
$13K
For grant recipient's exempt purposes
2022
$10K
GENERAL OPERATING SUPPORT
2022
$14K
For grant recipient's exempt purposes
2021
$14K
For grant recipient's exempt purposes
2021
$6K
GENERAL CHARITABLE OPERATIONS
2020
$5K
GENERAL OPERATING
2020
$6K
General Charitable Operation
2019
$101K
GENERAL OPERATING SUPPORT
2018

Funded by

$957K from 12 funders · 22 grants · 2018–2024

Silicon Valley Community Foundation

$615K · 2 grants · 2020–2022

The Minneapolis Foundation

$101K · 1 grant · 2018

Donor Advised Charitable Giving Inc

$63K · 2 grants · 2022–2023

Fidelity Investments Charitable Gift Fund

$50K · 4 grants · 2021–2023

Lynne & Andrew Redleaf Foundation

$35K · 3 grants · 2020–2023

The Jay And Rose Phillips Family

$25K · 3 grants · 2022–2024

The Blackbaud Giving Fund

$15K · 1 grant · 2022

Details

EIN823888108
NTEE codeE12
Subsection03
Ruling date2018-07
Formed2017
Employees2
Volunteers12
YAYA FOUNDATION FOR 4H LEUKODYSTROPHY — Mission, Financials & Grants Received | Grantivo