Funder DirectoryThe Neuromuscular Disease Foundation
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Grantmaking public charityEIN 061789643

The Neuromuscular Disease Foundation

Beverly Hills, CA 90212

Total Assets

$660K

FY 2024

Annual Giving

$113K

FY 2024

Grants Made

3

FY 2024

Avg Grant

$38K

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$54K

Patient & Carrier Advocacy: NDF strives to create a two-way connection between patients and scientists in order to maximize patient understanding about the latest research and treatment options being developed; and for physicians, scientists, and pharmaceutical companies to gain a better perspective, not only about patients needs and experiences, but also about how this impacts families as well.

Program 2

$16K

Outreach & Education: A significant part of NDF's mission is preventing and suppressing the symptoms of GNEM in patients through screening and public education. NDF values the importance of educating physicians about this rare disease. We focus on educating the public about carrier screening aids, particularly for those in populations with higher carrier rates.

Focus Areas

Voluntary Health Associations & Medical Disciplines

Financial Snapshot

2024 filing

Total Revenue

$65K

Total Expenses

$352K

Giving Over Time

6 years

Giving over time from 2019 to 2024. Peak $411K in 2020. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

24 grants

Grant Size Distribution

24 grants

<$10K
6
grants
$10–50K
9
grants
$50–250K
9
grants
$250K–1M
$1–5M
$5M+

Geographic Focus

5 states

Ohio
$419K
35% of total
Maryland
$355K
29% of total
Connecticut
$281K
23% of total
Washington
$139K
12% of total
Pennsylvania
$10K
1% of total

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The Neuromuscular Disease Foundation — Grants, Financials & Contact | Grantivo