NonprofitsCure Rare Disease Inc

Voluntary Health Associations & Medical Disciplines

Cure Rare Disease Inc

WOODBRIDGE, CT

Total revenue

$4.4M

Total expenses

$2.0M

Net assets

$3.5M

Grants received

$1.8M

95 grants

EIN

822473513

Tax year

2023

Mission

Our mission is to enable and finance the development of life-saving genetic medicines for ultra-rare patient populations previously deemed too rare to treat. To realize this, our unique ecosystems facilitates collaboration between world-renowned researchers and clinicians, policy experts and our generous donors. Together, we are fundamentally changing the ultra-rare disease experience and burden for millions ofpeople around the world with our discoveries and methods - while bringing hope to patients waiting for a cure.

Financials

FY 2023

Revenue

Contributions & grants$4.4M
Program service revenue
Investment income$47K
Other revenue
Total revenue$4.4M

Expenses

Grants paid$3K
Salaries & benefits$357K
Fundraising$106K
Other expenses$1.6M
Total expenses$2.0M
Total assets$6.0M
Net assets$3.5M

People

12 listed

NameRoleCompensation

RICHARD HORGAN

FOUNDER & CEO

Board

$164K

40 hrs/wk

BRENT WARNER

MEMBER

Board

2 hrs/wk

MARK SMITH

MEMBER

Board

2 hrs/wk

KWESI ACQUAY

MEMBER

Board

2 hrs/wk

STEPHANIE HERZOG

MEMBER

Board

2 hrs/wk

MIKE WILLIAMS

MEMBER

Board

2 hrs/wk

JEREMY STERNBERG

MEMBER

Board

2 hrs/wk

JESSICA CURRAN

MEMBER

Board

2 hrs/wk

KLAUS VEITINGER

MEMBER

Board

2 hrs/wk

GREG KLASSEN

MEMBER

Board

2 hrs/wk

CODY TRANBARGER

MEMBER

Board

2 hrs/wk

ALEXANDRA URMAN

MEMBER

Board

2 hrs/wk

Grants received

Showing 95 of 95

FromAmountPurposeYear
$45K
RESEARCH
2024
$12K
GENERAL SUPPORT
2024
$10K
General & Unrestricted
2024
$10K
GENERAL USE
2024
$50
GENERAL OPERATING PURPOSE
2024
$10
GENERAL SUPPORT
2024
$107K
For grant recipient's exempt purposes
2023
$25K
GENERAL USE
2023
$25K
General & Unrestricted
2023
$20K
RESEARCH
2023
$10K
TO BRIDGE THE GAP BETWEEN RESEARCHERS AND A CURE.
2023
$10K
UNRESTRICTED GENERAL SUPPORT
2023
$10K
General & Unrestricted
2023
$8K
MONEY FOR RESEARCH
2023
$5K
GENERAL SUPPORT
2023
$2K
CURE RARE DISEASE IS A 501 (C) (3) NON-PROFIT BIOTECHNOLOGY COMPANY BASED IN BOSTON, MASSAHUSETTS THAT IS WORKING TO CREATE NOVEL THERAPEUTICS USING GENE THERAPY TO TREAT PEOPLE IMPACTED BY RARE DISEASES.
2023
$1K
GENERAL USE
2023
$1K
TO OR FOR THE USE BY THE CHARITABLE ORGANIZATION FOR CHARITABLE PURPOSES.
2023
$700
EMPLOYEE GIVING PROGRAM
2023
$600
EMPLOYEE GIVING PROGRAM
2023
$500
Matching Gifts
2023
$500
EMPLOYEE GIVING PROGRAM
2023
$500
EMPLOYEE GIVING PROGRAM
2023
$325
Matching Gifts
2023
$250
Matching Gifts
2023
$200
GENERAL SUPPORT
2023
$200
EMPLOYEE GIVING PROGRAM
2023
$200
EMPLOYEE GIVING PROGRAM
2023
$100
Matching Gifts
2023
$50
GENERAL SUPPORT
2023
$50
Matching Gifts
2023
$30
GENERAL SUPPORT
2023
$30
GENERAL SUPPORT
2023
$10
GENERAL SUPPORT
2023
$73K
For grant recipient's exempt purposes
2022
$60K
GENERAL SUPPORT
2022
$30K
GENERAL USE
2022
$20K
CHARITABLE DONATION
2022
$20K
FOR GENERAL SUPPORT.
2022
$15K
GENERAL SUPPORT
2022
$10K
TO SUPPORT RESEARCH FOR INVOLVING LGMD2G - MONKOL LAB
2022
$10K
TO FURTHER DONEE'S EXEMPT PURPOSE
2022
$10K
DISEASE/DISORDER
2022
$10K
TO ASSIST IN THE CHARTIABLE PURPOSE OF THE ORGANIZATION.
2022
$5K
Matching Gifts
2022
$3K
UNRESTRICTED GIFT
2022
$2K
Matching Gifts
2022
$2K
TO OR FOR THE USE BY THE CHARITABLE ORGANIZATION FOR CHARITABLE PURPOSES.
2022
$1K
EXEMPT PURPOSE
2022
$1K
GENERAL OPERATING SUPPORT
2022
$1K
GENERAL USE
2022
$1K
Matching Gifts
2022
$500
GENERAL SUPPORT
2022
$200
Matching Gifts
2022
$100
PROGRAM/OPERATING SUPPORT
2022
$50
GENERAL SUPPORT
2022
$30
GENERAL SUPPORT
2022
$30
GENERAL SUPPORT
2022
$274K
For grant recipient's exempt purposes
2021
$274K
For grant recipient's exempt purposes
2021
$33K
CHARITABLE DONATION
2021
$10K
GENERAL FUNDS
2021
$6K
CHARITABLE DONATION
2021
$2K
UNRESTRICTED GIFT
2021
$1K
EXEMPT PURPOSE
2021
$500
GENERAL USE
2021
$177K
For grant recipient's exempt purposes
2020
$44K
PROGRAM SUPPORT
2020
$44K
PROGRAM SUPPORT
2020
$40K
FOR GENERAL SUPPORT.
2020
$30K
RESEARCH
2020
$23K
GENERAL FUNDS
2020
$13K
To assist in the charitable purpose of the organization.
2020
$10K
General & Unrestricted
2020
$5K
GENERAL OPERATING SUPPORT
2020
$5K
To fund research for rare diseases.
2020
$3K
General & Unrestricted
2020
$1K
EXEMPT PURPOSE
2020
$500
GENERAL USE
2020
$13K
To assist in the charitable purpose of the organization.
2019

Funded by

$1.8M from 42 funders · 95 grants · 2019–2024

Fidelity Investments Charitable Gift Fund

$905K · 5 grants · 2020–2023

Givinga Foundation Inc

$89K · 2 grants · 2020

Muscular Dystrophy Association

$80K · 2 grants · 2023–2024

Global For Good Fund Inc

$65K · 2 grants · 2023–2024

Mirabito Philanthropy Inc

$65K · 3 grants · 2022–2024

Fairfield County's Community Foundation

$60K · 2 grants · 2020–2022

America's Charities

$60K · 1 grant · 2022

Charities Aid Foundation America

$59K · 3 grants · 2021–2022

Details

EIN822473513
NTEE codeG12
Subsection03
Ruling date2018-04
Formed2018
Employees5
Volunteers12
CURE RARE DISEASE INC — Mission, Financials & Grants Received | Grantivo