Funder DirectoryTHE PARENT PROJECT FOR MUSCULAR
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Grantmaking public charityEIN 311405490

THE PARENT PROJECT FOR MUSCULAR

WASHINGTON, DC 20005

Total Assets

$12.6M

FY 2024

Annual Giving

$2.5M

FY 2024

Grants Made

29

FY 2024

Avg Grant

$85K

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$2.9M

Educationppmd's education initiatives equip families, healthcare providers, and the broader community with the information needed to navigate duchenne care across all stages of the disorder. We partner with clinical and scientific experts to develop accurate, accessible resources and share them broadly. We also collaborate with domestic and international organizations to ensure educational materials reach global audiences.engagementppmd fosters a strong, informed, and connected community. Each summer, we host the world's largest duchenne conference, bringing together families, clinicians, researchers, and industry partners to share updates and build connections.throughout the year, we offer virtual and in-person gatherings for subgroups including duchenne carriers, siblings, dads, grandparents, and newly diagnosed families.through ppmd together, we also provide personalized one-on-one virtual support to help families navigate their individual challenges.

Program 2

$1.3M

Advocacyppmd leads federal and state-level advocacy to improve access to care, accelerate therapeutic development, and ensure regulatory frameworks support the duchenne community. We provide advocates with the tools and information needed to engage policymakers and build congressional champions.we also spearhead efforts to expand newborn screening for duchenne, ensuring early diagnosis and access to interventions.

Focus Areas

Human Services

Financial Snapshot

2024 filing

Total Revenue

$14.3M

Total Expenses

$12.9M

Giving Over Time

6 years

Giving over time from 2018 to 2024. Peak $4.4M in 2019. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

223 grants

Grant Size Distribution

216 grants

<$10K
72
grants
$10–50K
64
grants
$50–250K
61
grants
$250K–1M
18
grants
$1–5M
1
grants
$5M+

Geographic Focus

29 states

Florida
$3.8M
23% of total
New York
$3.5M
21% of total
Ohio
$3.4M
20% of total
California
$1.3M
8% of total
Maryland
$956K
6% of total
Michigan
$715K
4% of total
Arizona
$699K
4% of total
Massachusetts
$664K
4% of total
Illinois
$427K
3% of total
Missouri
$206K
1% of total

+19 more states

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THE PARENT PROJECT FOR MUSCULAR — Grants, Financials & Contact | Grantivo