Voluntary Health Associations & Medical Disciplines
Adult Congenital Heart Association Inc
MEDIA, PA
Total revenue
$2.0M
Total expenses
$2.3M
Net assets
$1.3M
Grants received
$1.4M
141 grants
EIN
043447959
Tax year
2024
Mission
To empower the chd community by advancing access to resources and specialized care.
Programs
1 program
Advocacy, outreach and research activities:advocacy- the congenital heart futures reauthorization act of 2024 was signed into law in november 2024 and reauthorized funding of up to $10 million annually through fy 2029. Acha supported capitol hill visits and in-district visits in 2024 and educated our community about the legislation and policies that improve health and psychosocial outcomes for chd patients. This includes addressing the achd workforce shortage by identifying barriers to training new fellows to follow an achd career path. (continued on schedule o).outreach - regional development leaders - covered two regions during 2024 to increase chd awareness and develop champions across regions.research - in 2024, acha funded 3 research grants, bringing the total number of grants issued to 20 and over $600,000 since 2019.
Financials
FY 2024
Revenue
Expenses
People
26 listed
MARK ROEDER
PRESIDENT AND CEO
$172K
50 hrs/wk
JENNIFER HOCKENHULL
DIRECTOR OF FINANCE
$128K
40 hrs/wk
CHAD CHASE
BOARD MEMBER
—
2 hrs/wk
JENNIFER CORTES
BOARD MEMBER
—
2 hrs/wk
JONATHAN CRAMER MD
BOARD MEMBER
—
2 hrs/wk
NICOLE JUNG
BOARD MEMBER
—
2 hrs/wk
YULI KIM MD
BOARD MEMBER
—
2 hrs/wk
RICHARD KRASUSKI MD
BOARD MEMBER
—
2 hrs/wk
MATT MARTINHO
BOARD MEMBER
—
2 hrs/wk
CLAUDIA NORMAN
BOARD MEMBER
—
2 hrs/wk
JAMES RUPPEL MD MS
CHAIR
—
2 hrs/wk
KRISTI RYAN
BOARD MEMBER
—
2 hrs/wk
TIM SINGLETARY
BOARD MEMBER
—
2 hrs/wk
ANNE STAPLETON-REILLY
BOARD MEMBER
—
2 hrs/wk
ERIN WALSH-BEGUIN
BOARD MEMBER
—
2 hrs/wk
CYNTHIA FELIX JEFFERS
BOARD MEMBER UNTIL 12/9/24
—
2 hrs/wk
JOANNE NICHOLS
BOARD MEMBER UNTIL 8/30/2024
—
2 hrs/wk
MARY JANE EAZER
SECRETARY UNTIL 9/30/24
—
2 hrs/wk
MEREDITH RAHN-OAKES
BOARD MEMBER
—
2 hrs/wk
STEPHEN BACK
VICE CHAIR
—
2 hrs/wk
WILLIAM BROWNE
TREASURER
—
2 hrs/wk
WILLIAM CAUSEY
SECRETARY
—
2 hrs/wk
BINTA BAUDY
BOARD MEMBER
—
2 hrs/wk
DANIELLE HILE
SR. DIRECTOR OF MEDICAL AFFAIRS
$116K
40 hrs/wk
KERRY WEVODAU
DIRECTOR OF WALK FOR 1 IN 100
$105K
40 hrs/wk
JANINE GUGLIELMINO
DIR. OF PATIENT RESOURCES & ADVOCACY
$101K
40 hrs/wk
Grants received
Showing 141 of 141
Funded by
$1.4M from 47 funders · 141 grants · 2017–2024
$382K · 4 grants · 2020–2023
$339K · 5 grants · 2019–2023
$162K · 6 grants · 2019–2024
$127K · 7 grants · 2018–2023
$53K · 6 grants · 2018–2023
$53K · 3 grants · 2020–2024
$52K · 1 grant · 2022
$50K · 1 grant · 2023