NonprofitsAdult Congenital Heart Association Inc

Voluntary Health Associations & Medical Disciplines

Adult Congenital Heart Association Inc

MEDIA, PA

Total revenue

$2.0M

Total expenses

$2.3M

Net assets

$1.3M

Grants received

$1.4M

141 grants

EIN

043447959

Tax year

2024

Mission

To empower the chd community by advancing access to resources and specialized care.

Programs

1 program

Advocacy, outreach and research activities:advocacy- the congenital heart futures reauthorization act of 2024 was signed into law in november 2024 and reauthorized funding of up to $10 million annually through fy 2029. Acha supported capitol hill visits and in-district visits in 2024 and educated our community about the legislation and policies that improve health and psychosocial outcomes for chd patients. This includes addressing the achd workforce shortage by identifying barriers to training new fellows to follow an achd career path. (continued on schedule o).outreach - regional development leaders - covered two regions during 2024 to increase chd awareness and develop champions across regions.research - in 2024, acha funded 3 research grants, bringing the total number of grants issued to 20 and over $600,000 since 2019.

Expenses: $725KGrants: $70K

Financials

FY 2024

Revenue

Contributions & grants$1.8M
Program service revenue$133K
Investment income$61K
Other revenue
Total revenue$2.0M

Expenses

Grants paid$70K
Salaries & benefits$1.7M
Fundraising$336K
Other expenses$595K
Total expenses$2.3M
Total assets$1.8M
Net assets$1.3M

People

26 listed

NameRoleCompensation

MARK ROEDER

PRESIDENT AND CEO

Board

$172K

50 hrs/wk

JENNIFER HOCKENHULL

DIRECTOR OF FINANCE

Board

$128K

40 hrs/wk

CHAD CHASE

BOARD MEMBER

Board

2 hrs/wk

JENNIFER CORTES

BOARD MEMBER

Board

2 hrs/wk

JONATHAN CRAMER MD

BOARD MEMBER

Board

2 hrs/wk

NICOLE JUNG

BOARD MEMBER

Board

2 hrs/wk

YULI KIM MD

BOARD MEMBER

Board

2 hrs/wk

RICHARD KRASUSKI MD

BOARD MEMBER

Board

2 hrs/wk

MATT MARTINHO

BOARD MEMBER

Board

2 hrs/wk

CLAUDIA NORMAN

BOARD MEMBER

Board

2 hrs/wk

JAMES RUPPEL MD MS

CHAIR

Board

2 hrs/wk

KRISTI RYAN

BOARD MEMBER

Board

2 hrs/wk

TIM SINGLETARY

BOARD MEMBER

Board

2 hrs/wk

ANNE STAPLETON-REILLY

BOARD MEMBER

Board

2 hrs/wk

ERIN WALSH-BEGUIN

BOARD MEMBER

Board

2 hrs/wk

CYNTHIA FELIX JEFFERS

BOARD MEMBER UNTIL 12/9/24

Board

2 hrs/wk

JOANNE NICHOLS

BOARD MEMBER UNTIL 8/30/2024

Board

2 hrs/wk

MARY JANE EAZER

SECRETARY UNTIL 9/30/24

Board

2 hrs/wk

MEREDITH RAHN-OAKES

BOARD MEMBER

Board

2 hrs/wk

STEPHEN BACK

VICE CHAIR

Board

2 hrs/wk

WILLIAM BROWNE

TREASURER

Board

2 hrs/wk

WILLIAM CAUSEY

SECRETARY

Board

2 hrs/wk

BINTA BAUDY

BOARD MEMBER

Board

2 hrs/wk

DANIELLE HILE

SR. DIRECTOR OF MEDICAL AFFAIRS

Staff

$116K

40 hrs/wk

KERRY WEVODAU

DIRECTOR OF WALK FOR 1 IN 100

Staff

$105K

40 hrs/wk

JANINE GUGLIELMINO

DIR. OF PATIENT RESOURCES & ADVOCACY

Staff

$101K

40 hrs/wk

Grants received

Showing 141 of 141

FromAmountPurposeYear
$25K
GENERAL SUPPORT
2024
$3K
GENERAL SUPPORT
2024
$2K
facilitate charitable purpose
2024
$500
CHARITABLE DONATION
2024
$305
MATCHING GIFTS
2024
$150
GENERAL OPERATING PURPOSE
2024
$100
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$10
GENERAL SUPPORT
2024
$50K
GENERAL
2023
$23K
For grant recipient's exempt purposes
2023
$15K
GENERAL PUBLIC SUPPORT
2023
$3K
GENERAL OPERATIONS
2023
$2K
GENERAL SUPPORT
2023
$2K
to facilite charitable pourpose
2023
$1K
HEART RESEARCHCONGENITAL HEART SUPPORT
2023
$158
MATCHING CONTRIBUTION MADE BY EMPLOYEE OF YELP, IN
2023
$105
EMPLOYEE GIVING PROGRAM
2023
$105
GENERAL SUPPORT
2023
$100
EMPLOYEE GIVING PROGRAM
2023
$100
MATCHING GIFTS
2023
$50
GENERAL SUPPORT
2023
$30
GENERAL SUPPORT
2023
$30
GENERAL SUPPORT
2023
$25
GENERAL SUPPORT
2023
$10
GENERAL SUPPORT
2023
$52K
GENERAL SUPPORT
2022
$19K
For grant recipient's exempt purposes
2022
$13K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$10K
General support
2022
$10K
SUPPORT CHARITABLE PURPOSE
2022
$5K
ADULT CONGENITAL HEART DISEASE RESEARCH/ADVOCACY
2022
$2K
PROGRAM/OPERATING SUPPORT
2022
$2K
to facilitate charitable purpose
2022
$1K
GENERAL OPERATIONS
2022
$1K
HEART RESEARCHCONGENITAL HEART SUPPORT
2022
$450
In support of general operations
2022
$300
MATCHING GIFTS
2022
$150
MIP PAYOUT FOR 07/05/2022
2022
$108
PROGRAM/OPERATING SUPPORT
2022
$100
MATCHING GIFTS
2022
$50
Matching Gifts
2022
$50
GENERAL SUPPORT
2022
$40
PROGRAM/OPERATING SUPPORT
2022
$40
PROGRAM/OPERATING SUPPORT
2022
$40
PROGRAM/OPERATING SUPPORT
2022
$40
PROGRAM/OPERATING SUPPORT
2022
$30
GENERAL SUPPORT
2022
$30
GENERAL SUPPORT
2022
$25
PROGRAM/OPERATING SUPPORT
2022
$20
PROGRAM/OPERATING SUPPORT
2022
$10
PROGRAM/OPERATING SUPPORT
2022
$10
GENERAL SUPPORT
2022
$25K
For grant recipient's exempt purposes
2021
$25K
For grant recipient's exempt purposes
2021
$18K
General Support
2021
$1K
GENERAL OPERATIONS
2021
$1K
GENERAL OPERATIONS
2021
$1K
HEART RESEARCHCONGENITAL HEART SUPPORT
2021
$600
In support of general operations.
2021
$375
in support of general operations.
2021
$18K
For grant recipient's exempt purposes
2020
$9K
General Support
2020
$8K
COMMUNITY GRANT
2020
$5K
NON-PROFIT EDUCATIONAL ORG
2020
$3K
HHS GENERAL
2020
$2K
in support of general operations.
2020
$1K
General & Unrestricted
2020
$1K
General Operations
2020
$500
HEART RESEARCHCONGENITAL HEART SUPPORT
2020
$500
HEALTH CARE AND RESEARCH
2020
$255
MIP PAYOUT FOR 08/18/20
2020
$100
MATCHING GRANTS
2020
$50
GENERAL SUPPORT
2020
$50
GENERAL PURPOSE
2020
$30
GENERAL SUPPORT
2020
$30
GENERAL SUPPORT
2020
$25
EMPLOYER MATCHING GIFT PROGRAM
2020
$24
GENERAL SUPPORT
2020
$10K
General Charitable Operation
2019
$8K
For grant recipient's exempt purposes
2019
$2K
TO SUPPORT THE NASHVILLE, TN WALK FOR 1 IN 100
2019
$50
General Support
2019
$13K
SUPPORT NON-PROFIT HEALTHCARE ORG
2018
$9K
For grant recipient's exempt purposes
2018
$6K
Unrestricted
2018
$2K
VOLUNTEER TEAM-BUILDERS & DRIVES
2018
$390
Matching Grant
2018
$275
PROGRAM/OPERATING SUPPORT
2018
$150
PROGRAM/OPERATING SUPPORT
2018
$150
PROGRAM/OPERATING SUPPORT
2018
$125
PROGRAM/OPERATING SUPPORT
2018
$125
PROGRAM/OPERATING SUPPORT
2018
$25
PROGRAM/OPERATING SUPPORT
2018
$250
ADVOCACY OF ADULT CONGENITAL HEART ISSUES
2017

Funded by

$1.4M from 47 funders · 141 grants · 2017–2024

The Meil Family Foundation Inc

$382K · 4 grants · 2020–2023

Oklahoma City Community Foundation Inc

$339K · 5 grants · 2019–2023

American Online Giving Foundation Inc

$162K · 6 grants · 2019–2024

Fidelity Investments Charitable Gift Fund

$127K · 7 grants · 2018–2023

Donor Advised Charitable Giving Inc

$53K · 6 grants · 2018–2023

Paypal Charitable Giving Fund

$53K · 3 grants · 2020–2024

The Blackbaud Giving Fund

$52K · 1 grant · 2022

Hfo Foundation

$50K · 1 grant · 2023

Details

EIN043447959
NTEE codeG43
Subsection03
Ruling date1999-01
Formed1998
Employees16
Volunteers500
ADULT CONGENITAL HEART ASSOCIATION INC — Mission, Financials & Grants Received | Grantivo