NonprofitsCreutzfeldt-Jakob Disease Foundation Inc

Creutzfeldt-Jakob Disease Foundation Inc

FAIRLAWN, OH

Total revenue

$2.9M

Total expenses

$1.9M

Net assets

$9.1M

Grants received

$1.7M

106 grants

EIN

650404623

Tax year

2024

Mission

To support families affected by prion disease, raise awareness, and (continued on schedule o) support medical education and research.

Programs

3 programs

In 2024, the cjd foundation awarded $702,920 in grants to 8 researchers selected by our scientific advisory committee, which comprises international prion disease experts. 50 researchers worldwide applied. Grant recipients present their research at the cjd foundation's annual family conference. The cjd foundation has awarded more than 94 research grants since 2006, funding a number of groundbreaking projects that have led to important new discoveries. Funding comes from family memorial research grants and from the fundraising activities of the cjd foundation.

Expenses: $1.0MGrants: $703K

The cjd foundation hosts grand round presentations, infection control seminars, and funeral education around the country, at no charge. Our medical education programs are instructed by prion disease experts. In 2024, we provided medical education:medical education neurology grand rounds were held in: - texas at dshs, which includes staff from dshs, health and human services commission, local health departments, local mental health centers, hospitals, institutions of higher education, and others throughout texas. - imed/salt lake valley neurology department (continued on schedule o)- baystate university of massachusetts medical school- cape cod falmouth hospital in falmouth, ma.funeral education presenations were held in:- indianapolis, indianawe also responded to requests for information from 70 medical professionals via our helpline, and made information available to medical, infectious disease, hospice and genetic counseling professionals through our website, educational binders, and annual conference which is recorded and posted on our website.

Expenses: $42K

Advocacy with political representatives and public policy makers

Expenses: $47K

Financials

FY 2024

Revenue

Contributions & grants$2.5M
Program service revenue$101K
Investment income$341K
Other revenue
Total revenue$2.9M

Expenses

Grants paid$703K
Salaries & benefits$397K
Fundraising$89K
Other expenses$766K
Total expenses$1.9M
Total assets$9.2M
Net assets$9.1M

People

23 listed

NameRoleCompensation

DEBORAH YOBS

PRESIDENT/EXECUTIVE DIRECTOR

Board

$111K

40 hrs/wk

TREVOR BAIERL

BOARD MEMBER (THROUGH 2/28/24)

Board

2 hrs/wk

MATT COLLINS

BOARD MEMBER

Board

2 hrs/wk

PAMELA FEAR

BOARD MEMBER

Board

2 hrs/wk

LAVONNE HALL

BOARD MEMBER (THROUGH 2/7/24)

Board

2 hrs/wk

CLARENCE HUNTER

BOARD MEMBER

Board

2 hrs/wk

AMANDA BAXLEY KALINSKY

BOARD MEMBER

Board

2 hrs/wk

JANINE KOCK

BOARD MEMBER

Board

2 hrs/wk

PATRICIA MCGILL

TREASURER

Board

2 hrs/wk

KIRSTEN MCGINNIS

SECRETARY

Board

2 hrs/wk

BRENDA MEANEY

BOARD MEMBER

Board

2 hrs/wk

BRIAN APPLEBY

BOARD MEMBER

Board

2 hrs/wk

FRANK MYERS

BOARD MEMBER

Board

2 hrs/wk

MOLLY NOCERINO

BOARD MEMBER (THROUGH 4/30/24)

Board

2 hrs/wk

JOE POHL

BOARD MEMBER

Board

2 hrs/wk

MARK ROBERTS

BOARD MEMBER

Board

2 hrs/wk

JACOB SCHWISTER

BOARD MEMBER

Board

2 hrs/wk

TIM SCHWISTER

BOARD MEMBER

Board

2 hrs/wk

NANCY SWEELY

BOARD MEMBER

Board

2 hrs/wk

MARIA THACKER-GOETHE

BOARD MEMBER

Board

2 hrs/wk

MICHAEL VITANZA

BOARD MEMBER (THROUGH 7/10/24)

Board

2 hrs/wk

STUART YAFFA

CHAIR

Board

2 hrs/wk

DAVE MORRIS

BOARD MEMBER

Board

2 hrs/wk

Grants received

Showing 106 of 106

FromAmountPurposeYear
$58K
GENERAL SUPPORT
2024
$13K
RESEARCH GRANTS
2024
$10K
Medical
2024
$6K
GENERAL
2024
$1K
GENERAL OPERATING PURPOSE
2024
$1K
PETER COLE MEMORIAL
2024
$275
General & Unrestricted
2024
$200
EMPLOYEE OR TRUSTEE RECOMMENDED GIFT FOR GENERAL OPERATIONAL SUPPORT.
2024
$100
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$25
MATCHING GIFTS
2024
$31K
For grant recipient's exempt purposes
2023
$22K
RESEARCH GRANTS
2023
$20K
PUBLIC, SOCIETAL BENEFIT
2023
$11K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$10K
ENTITY SUPPORT - DIRECTOR'S GRANT
2023
$7K
GENERAL
2023
$5K
CHARITABLE DONATION
2023
$5K
In honor of Janice Lafemina
2023
$457
GENERAL OPERATING PURPOSE
2023
$362
GENERAL OPERATING SUPPORT
2023
$150
GENERAL SUPPORT
2023
$100
EMPLOYEE GIVING PROGRAM
2023
$50
OTHER CIVIC / COMMUNITY
2023
$43K
GENERAL SUPPORT
2022
$36K
PUBLIC, SOCIETAL BENEFIT
2022
$20K
RESEARCH GRANTS
2022
$16K
GENERAL SUPPORT
2022
$10K
MEDICAL / PUBLIC SERVICES
2022
$10K
IN HONOR OF RETIRING TRUSTEE OF THE JBDF, DAVID LLEWELLYN
2022
$8K
For grant recipient's exempt purposes
2022
$8K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$5K
THE FURTHERANCE OF CHARITABLE PROGRAMS
2022
$973
GENERAL OPERATING PURPOSES
2022
$200
MATCHING GIFTS
2022
$200
Matching Gifts
2022
$100
EMPLOYEE GIVING PROGRAM
2022
$100
GENERAL OPERATING PURPOSE
2022
$100
MIP PAYOUT FOR 11/09/22
2022
$53
GENERAL SUPPORT
2022
$25K
GENERAL SUPPORT
2021
$24K
For grant recipient's exempt purposes
2021
$24K
For grant recipient's exempt purposes
2021
$12K
PUBLIC, SOCIETAL BENEFIT
2021
$10K
RESEARCH GRANTS
2021
$10K
For recipient's exempt purpose
2021
$2K
GENERAL AND UNRESTRICTED
2021
$250
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2021
$200
MATCHING GIFTS 1
2021
$195
CHARITABLE
2021
$50K
CJD FOUNDATION RESEARCH
2020
$10K
RESEARCH GRANTS
2020
$10K
PUBLIC SUPPORT
2020
$9K
For grant recipient's exempt purposes
2020
$7K
PUBLIC, SOCIETAL BENEFIT
2020
$1K
GENERAL OPERATING PURPOSES
2020
$666
MATCHING GIFTS GRANT
2020
$500
SUPPORT, UNSPECIFIED
2020
$300
General Fund
2020
$200
MATCHING EMPLOYEE DONATION
2020
$125
GENERAL SUPPORT
2020
$105
MIP PAYOUT FOR 10/06/20
2020
$100
GENERAL SUPPORT
2020
$83
GENERAL SUPPORT
2020
$14K
RESEARCH GRANTS
2019
$13K
PUBLIC, SOCIETAL BENEFIT
2019
$7K
For grant recipient's exempt purposes
2019
$94K
Unrestricted
2018
$13K
RESEARCH GRANT
2018
$8K
For grant recipient's exempt purposes
2018
$5K
PUBLIC, SOCIETAL BENEFIT
2018
$100
Matching Grant
2018
$10K
PUBLIC, SOCIETAL BENEFIT
2017
$7K
SOCIAL SERVICES/SOCIAL BENEFITS
2017
$5K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017

Funded by

$1.7M from 54 funders · 106 grants · 2017–2024

Thrivent Charitable Impact & Investing

$275K · 2 grants · 2020–2022

Jeffrey And Mary Smith Family Foundation

$240K · 4 grants · 2020–2023

Jewish Community Foundation Of Los Angeles

$200K · 2 grants · 2023–2024

American Online Giving Foundation Inc

$162K · 6 grants · 2019–2024

Paypal Charitable Giving Fund

$129K · 3 grants · 2022–2024

Fidelity Investments Charitable Gift Fund

$117K · 8 grants · 2017–2023

Cape Cod Foundation Inc

$102K · 7 grants · 2018–2024

Donor Advised Charitable Giving Inc

$100K · 7 grants · 2017–2023

Details

EIN650404623
Subsection03
Ruling date1994-09
Formed1993
Employees6
Volunteers350