Creutzfeldt-Jakob Disease Foundation Inc
FAIRLAWN, OH
Total revenue
$2.9M
Total expenses
$1.9M
Net assets
$9.1M
Grants received
$1.7M
106 grants
EIN
650404623
Tax year
2024
Mission
To support families affected by prion disease, raise awareness, and (continued on schedule o) support medical education and research.
Programs
3 programs
In 2024, the cjd foundation awarded $702,920 in grants to 8 researchers selected by our scientific advisory committee, which comprises international prion disease experts. 50 researchers worldwide applied. Grant recipients present their research at the cjd foundation's annual family conference. The cjd foundation has awarded more than 94 research grants since 2006, funding a number of groundbreaking projects that have led to important new discoveries. Funding comes from family memorial research grants and from the fundraising activities of the cjd foundation.
The cjd foundation hosts grand round presentations, infection control seminars, and funeral education around the country, at no charge. Our medical education programs are instructed by prion disease experts. In 2024, we provided medical education:medical education neurology grand rounds were held in: - texas at dshs, which includes staff from dshs, health and human services commission, local health departments, local mental health centers, hospitals, institutions of higher education, and others throughout texas. - imed/salt lake valley neurology department (continued on schedule o)- baystate university of massachusetts medical school- cape cod falmouth hospital in falmouth, ma.funeral education presenations were held in:- indianapolis, indianawe also responded to requests for information from 70 medical professionals via our helpline, and made information available to medical, infectious disease, hospice and genetic counseling professionals through our website, educational binders, and annual conference which is recorded and posted on our website.
Advocacy with political representatives and public policy makers
Financials
FY 2024
Revenue
Expenses
People
23 listed
DEBORAH YOBS
PRESIDENT/EXECUTIVE DIRECTOR
$111K
40 hrs/wk
TREVOR BAIERL
BOARD MEMBER (THROUGH 2/28/24)
—
2 hrs/wk
MATT COLLINS
BOARD MEMBER
—
2 hrs/wk
PAMELA FEAR
BOARD MEMBER
—
2 hrs/wk
LAVONNE HALL
BOARD MEMBER (THROUGH 2/7/24)
—
2 hrs/wk
CLARENCE HUNTER
BOARD MEMBER
—
2 hrs/wk
AMANDA BAXLEY KALINSKY
BOARD MEMBER
—
2 hrs/wk
JANINE KOCK
BOARD MEMBER
—
2 hrs/wk
PATRICIA MCGILL
TREASURER
—
2 hrs/wk
KIRSTEN MCGINNIS
SECRETARY
—
2 hrs/wk
BRENDA MEANEY
BOARD MEMBER
—
2 hrs/wk
BRIAN APPLEBY
BOARD MEMBER
—
2 hrs/wk
FRANK MYERS
BOARD MEMBER
—
2 hrs/wk
MOLLY NOCERINO
BOARD MEMBER (THROUGH 4/30/24)
—
2 hrs/wk
JOE POHL
BOARD MEMBER
—
2 hrs/wk
MARK ROBERTS
BOARD MEMBER
—
2 hrs/wk
JACOB SCHWISTER
BOARD MEMBER
—
2 hrs/wk
TIM SCHWISTER
BOARD MEMBER
—
2 hrs/wk
NANCY SWEELY
BOARD MEMBER
—
2 hrs/wk
MARIA THACKER-GOETHE
BOARD MEMBER
—
2 hrs/wk
MICHAEL VITANZA
BOARD MEMBER (THROUGH 7/10/24)
—
2 hrs/wk
STUART YAFFA
CHAIR
—
2 hrs/wk
DAVE MORRIS
BOARD MEMBER
—
2 hrs/wk
Grants received
Showing 106 of 106
Funded by
$1.7M from 54 funders · 106 grants · 2017–2024
$275K · 2 grants · 2020–2022
$240K · 4 grants · 2020–2023
$200K · 2 grants · 2023–2024
$162K · 6 grants · 2019–2024
$129K · 3 grants · 2022–2024
$117K · 8 grants · 2017–2023
$102K · 7 grants · 2018–2024
$100K · 7 grants · 2017–2023