Voluntary Health Associations & Medical Disciplines
Diamond Blackfan Anemia Foundation
WEST SENECA, NY
Total revenue
$499K
Total expenses
$397K
Net assets
$1.8M
Grants received
$570K
33 grants
EIN
161459422
Tax year
2024
Mission
To generate funds for the charitable and scientific purpose of providing support for diamond blackfan anemia patients, families and research.
Programs
2 programs
(ash) exhibition at the american society of hematology annual meeting (ash) attended by approximately 20,000 worldwide hematologists to provide the latest clinical and research information pertaining to diamond blackfan anemia.
(adults with dba) a meeting organized to address the unique physical and psychosocial challenges confronted by adult patients living with the rare disorder. The meeting was open to patients 18 years old and older and a support person. In addition to several presentations by experts in various pertinent fields, the weekend long meeting also provided an opportunity for adult patients to meet each other and come together as a community. Patients and their support person were also afforded time to discuss their individual concerns with several world-renowned clinicians and dba researchers.
Financials
FY 2024
Revenue
Expenses
People
12 listed
DAWN BAUMGARDNER
EXECUTIVE DIRECTOR
$66K
40 hrs/wk
KATHI VROMAN
VICE PRESIDENT
—
10 hrs/wk
PETER BAUMGARDNER
TREASURER
—
10 hrs/wk
CAROL MANCUSO
SECRETARY
—
10 hrs/wk
LAUREN BRADY
DIRECTOR
—
10 hrs/wk
CARA BREIDSTER
DIRECTOR
—
10 hrs/wk
CHARLES BROWN
DIRECTOR
—
10 hrs/wk
ANITA SHIER BRUTON
DIRECTOR
—
10 hrs/wk
REBECCA DEGROFF
DIRECTOR
—
10 hrs/wk
JAMIE DERMATIS
DIRECTOR
—
10 hrs/wk
JACY DOWNEY
DIRECTOR
—
10 hrs/wk
ANTHONY MARCHESE
DIRECTOR
—
10 hrs/wk
Grants received
Showing 33 of 33
Funded by
$570K from 11 funders · 33 grants · 2018–2024
$268K · 5 grants · 2018–2023
$122K · 7 grants · 2018–2023
$71K · 6 grants · 2019–2024
$34K · 4 grants · 2019–2023
$25K · 1 grant · 2023
$21K · 2 grants · 2023–2024
$14K · 2 grants · 2022–2023
$10K · 1 grant · 2023