NonprofitsDiamond Blackfan Anemia Foundation

Voluntary Health Associations & Medical Disciplines

Diamond Blackfan Anemia Foundation

WEST SENECA, NY

Total revenue

$499K

Total expenses

$397K

Net assets

$1.8M

Grants received

$570K

33 grants

EIN

161459422

Tax year

2024

Mission

To generate funds for the charitable and scientific purpose of providing support for diamond blackfan anemia patients, families and research.

Programs

2 programs

(ash) exhibition at the american society of hematology annual meeting (ash) attended by approximately 20,000 worldwide hematologists to provide the latest clinical and research information pertaining to diamond blackfan anemia.

Expenses: $11K

(adults with dba) a meeting organized to address the unique physical and psychosocial challenges confronted by adult patients living with the rare disorder. The meeting was open to patients 18 years old and older and a support person. In addition to several presentations by experts in various pertinent fields, the weekend long meeting also provided an opportunity for adult patients to meet each other and come together as a community. Patients and their support person were also afforded time to discuss their individual concerns with several world-renowned clinicians and dba researchers.

Expenses: $84K

Financials

FY 2024

Revenue

Contributions & grants$443K
Program service revenue
Investment income$57K
Other revenue
Total revenue$499K

Expenses

Grants paid$215K
Salaries & benefits$74K
Fundraising$5K
Other expenses$108K
Total expenses$397K
Total assets$1.8M
Net assets$1.8M

People

12 listed

NameRoleCompensation

DAWN BAUMGARDNER

EXECUTIVE DIRECTOR

Board

$66K

40 hrs/wk

KATHI VROMAN

VICE PRESIDENT

Board

10 hrs/wk

PETER BAUMGARDNER

TREASURER

Board

10 hrs/wk

CAROL MANCUSO

SECRETARY

Board

10 hrs/wk

LAUREN BRADY

DIRECTOR

Board

10 hrs/wk

CARA BREIDSTER

DIRECTOR

Board

10 hrs/wk

CHARLES BROWN

DIRECTOR

Board

10 hrs/wk

ANITA SHIER BRUTON

DIRECTOR

Board

10 hrs/wk

REBECCA DEGROFF

DIRECTOR

Board

10 hrs/wk

JAMIE DERMATIS

DIRECTOR

Board

10 hrs/wk

JACY DOWNEY

DIRECTOR

Board

10 hrs/wk

ANTHONY MARCHESE

DIRECTOR

Board

10 hrs/wk

Grants received

Showing 33 of 33

FromAmountPurposeYear
$13K
GENERAL SUPPORT
2024
$28K
UNRESTRICTED
2023
$25K
TO SUPPORT RESEARCH AND EDULCATIONAL PROGRAMS AT THE HOSPITAL
2023
$10K
DONOR DESIGNATED FOR GENERAL SUPPORT
2023
$8K
CHARITABLE DONATION
2023
$6K
For grant recipient's exempt purposes
2023
$66K
UNRESTRICTED
2022
$17K
For grant recipient's exempt purposes
2022
$5K
CHARITABLE DONATION
2022
$100
GENERAL OPERATING PURPOSES
2022
$10
MATCHING GIFTS
2022
$65K
UNRESTRICTED
2021
$26K
For grant recipient's exempt purposes
2021
$26K
For grant recipient's exempt purposes
2021
$69K
Unrestricted
2020
$16K
For grant recipient's exempt purposes
2020
$75
GENERAL OPERATING PURPOSES
2020
$19K
For grant recipient's exempt purposes
2019
$5K
GENERAL OPERATING
2019
$250
GENERAL OPERATING
2019
$40K
Unrestricted
2018
$12K
For grant recipient's exempt purposes
2018

Funded by

$570K from 11 funders · 33 grants · 2018–2024

Network For Good

$268K · 5 grants · 2018–2023

Fidelity Investments Charitable Gift Fund

$122K · 7 grants · 2018–2023

American Online Giving Foundation Inc

$71K · 6 grants · 2019–2024

Donor Advised Charitable Giving Inc

$34K · 4 grants · 2019–2023

Paypal Charitable Giving Fund

$21K · 2 grants · 2023–2024

Charities Aid Foundation America

$14K · 2 grants · 2022–2023

Details

EIN161459422
NTEE codeG12
Subsection03
Ruling date1994-11
Formed1994
Employees1
Volunteers20
DIAMOND BLACKFAN ANEMIA FOUNDATION — Mission, Financials & Grants Received | Grantivo