NonprofitsEpilepsy Foundation Of America

Disease & Medical Research

Epilepsy Foundation Of America

BOWIE, MD

Total revenue

$15.6M

Total expenses

$16.5M

Net assets

$19.8M

Grants received

$9.0M

374 grants

EIN

520856660

Tax year

2023

Mission

To improve the lives of peoples affected by epilepsy through education, advocacy, research, and connection.

Programs

2 programs

Public health, education, and awareness - provides educational and supporting services that create and promote public awareness surrounding epilepsy. The program utilizes traditional and digital media channels including social media and through the direct mail program which serve the dual purpose of raising funds for the foundation and increasing awareness of the foundation's cause. The foundation educates through engagement with media sources, and partnerships with other non-profits and professional and government organizations. In addition, the foundation established the epilepsy learning healthcare system (elhs) network, which is a public health initiative to drive quality health services research to improve medical outcomes for people with epilepsy.

Expenses: $2.0M

Research, innovation, and new therapies - accelerates the development of innovative therapies, prevention, and cures for all forms of epilepsies, and seeks to address the gap in the research and commercialization continuum. The main objective is to develop an epilepsy research ecosystem that covers all parts of therapy, from idea to market. The foundation's research initiatives include: innovation programs that test new ideas and follow new research leads and engagement programs that improve communication between people with epilepsy, their families, advocates, researchers, and investors. Digital tools that support research infrastructure. Funding that supports young researchers to bring their ideas to life. Practice solutions to eradicate sudden and unexpected death in epilepsy (sudep).

Expenses: $1.1MGrants: $434K

Financials

FY 2023

Revenue

Contributions & grants$15.1M
Program service revenue$593K
Investment income$393K
Other revenue
Total revenue$15.6M

Expenses

Grants paid$434K
Salaries & benefits$8.7M
Fundraising$2.2M
Other expenses$7.1M
Total expenses$16.5M
Total assets$21.3M
Net assets$19.8M

People

29 listed

NameRoleCompensation

RAHEL ROSNER

CFOO (THROUGH 9/24)

Board

$301K

35 hrs/wk

BRANDY FUREMAN

CHIEF OUTCOMES OFFICER

Board

$253K

35 hrs/wk

LAURA WEIDNER

CHIEF ADVOCACY AND GOV RELATIONS OFFICER

Board

$201K

35 hrs/wk

BERNICE LEE

CHIEF EXECUTIVE OFFICER (BEG 7/23)

Board

$182K

35 hrs/wk

ALISON ZETTERQUIST

INTERIM CEO (THROUGH 6/23)

Board

$131K

35 hrs/wk

JAMES MCALPIN

DIRECTOR

Board

1 hrs/wk

MICHAEL MCDONNELL

DIRECTOR

Board

1 hrs/wk

MARIA MARTINEZ

DIRECTOR

Board

1 hrs/wk

WASIM MALIK

DIRECTOR

Board

1 hrs/wk

JEFFREY PARENT

CHAIR

Board

1 hrs/wk

DAVID MOORE

DIRECTOR

Board

1 hrs/wk

MARY WELDON

DIRECTOR

Board

1 hrs/wk

JOSH GOLDEN

DIRECTOR

Board

1 hrs/wk

ANGELICA ROIZ

DIRECTOR

Board

1 hrs/wk

ABRAHAM GLASER

DIRECTOR

Board

1 hrs/wk

MARK THEEUWES

SECRETARY

Board

1 hrs/wk

DAVID HAWK

TREASURER

Board

1 hrs/wk

COURTNEY WATSON

VICE CHAIR

Board

1 hrs/wk

GREG MAYES

DIRECTOR

Board

1 hrs/wk

ELI CORBETT

DIRECTOR

Board

1 hrs/wk

SUSAN LINN

DIRECTOR

Board

1 hrs/wk

JEN GURTCHEFF

DIRECTOR

Board

1 hrs/wk

JOHN LANNEN

DIRECTOR

Board

1 hrs/wk

NOAH RICHMOND

DIRECTOR

Board

1 hrs/wk

NATHAN DEVAULT

VP, MARKETING AND COMMUNICATIONS

Staff

$172K

35 hrs/wk

DANIELLE SOLOMON

VP, HUMAN RESOURCES

Staff

$156K

35 hrs/wk

GREGG FORT

VP REGIONAL TEAMS

Staff

$142K

35 hrs/wk

KATHLEEN FARRELL

VP PUBLIC HEALTH & OUTCOMES

Staff

$135K

35 hrs/wk

JACQUELINE AKER

SENIOR DIRECTOR OF PUBLIC RELATIONS

Staff

$125K

35 hrs/wk

Independent contractors

CITIZENS UNITED FOR RESEARCH IN EPILEPSY

CONSULTING SERVICES

$250K

HH ASSOCIATES US INC

FUNDRAISING CONSULTANT

$238K

BENEFACTOR GROUP

CONSULTING SERVICES

$182K

PERFICIENT INC

CONSULTING SERVICES

$168K

AMAZON WEB SERVICES INC (AWS)

CONSULTING SERVICES

$123K

Grants received

Showing 200 of 374

FromAmountPurposeYear
$391K
GENERAL SUPPORT
2024
$110K
DISEASE/DISORDER
2024
$75K
GENERAL SUPPORT
2024
$64K
GENERAL SUPPORT
2024
$35K
RESEARCH/PUBLICEDUCATION
2024
$31K
TO PROVIDE PROGRAMS AND SERVICES TO PEOPLE AND FAMILIES OF NEBRASKA IMPACTED BY EPILEPSY. WE ARE COMMITTED TO LEADING THE FIGHT TO OVERCOME THE CHALLENGES OF EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES RIGHT HERE IN NEBRASKA.
2024
$25K
SUPPORT FOR EPILEPSY COMMUNITY EVENTS & CONFERENCES
2024
$25K
GRANT TOWARDS ORGANIZATION'S MISSION
2024
$15K
CHARITABLE SUPPORT
2024
$15K
UNRESTRICTED GENERAL SUPPORT
2024
$13K
MEDICAL RESEARCH
2024
$12K
GENERAL SUPPORT
2024
$10K
THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1.
2024
$10K
GENERAL & UNRESTRICTED
2024
$10K
GENERAL
2024
$8K
FOR RECIPIENT'S EXEMPT PURPOSE
2024
$6K
GENERAL SUPPORT
2024
$5K
SUPPORT CHARITABLE PURPOSE
2024
$5K
PROGRAM SUPPORT
2024
$5K
PROGRAM SUPPORT
2024
$5K
GENERAL SUPPORT
2024
$3K
CONNECTS THE PEOPLE, DATA AND RESOURCES NEEDED TO ADDRESS CHALLENGING HEALTH PROBLEMS ASSOCIATED WITHSEIZURESAND THE EPILEPSIES
2024
$1K
GENERAL OPERATING
2024
$1K
MATCHING GIFTS
2024
$1K
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$1K
Charitable purposes
2024
$500
GENERAL OPERATIONS
2024
$500
General & Unrestricted
2024
$300
Health and Science
2024
$102
EMPLOYEE MATCHING
2024
$100
TO PROMOTE AND SUPPORT FUNCTION AS PUBLIC CHARITIES AND/OR EXEMPT OPERATING FOUNDATIONS
2024
$75
GENERAL OPERATING PURPOSE
2024
$51
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2024
$83K
For grant recipient's exempt purposes
2023
$75K
General & Unrestricted
2023
$74K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$35K
RESEARCH/PUBLICEDUCATION
2023
$32K
GENERAL SUPPORT
2023
$27K
PROGRAM SUPPORT
2023
$25K
HEALTH & HUMAN SERVICES
2023
$15K
EPILEPSY RESEARCH
2023
$13K
GENERAL OPERATING
2023
$11K
DISEASE/DISORDER
2023
$11K
SEIZURE SAFE ALASKA PROJECT
2023
$11K
SEIZURE SAFE ALASKA PROJECT
2023
$10K
TO PROVIDE PROGRAMS AND SERVICES TO PEOPLE AND FAMILIES OF NEBRASKA IMPACTED BY EPILEPSY. WE ARE COMMITTED TO LEADING THE FIGHT TO OVERCOME THE CHALLENGES OF EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES RIGHT HERE IN NEBRASKA.
2023
$10K
General & Unrestricted
2023
$10K
TO SUPPORT THE FOUNDATION PROGRAM INITIATIVES
2023
$9K
CHARITABLE
2023
$8K
MEDICAL / PUBLIC SERVICES
2023
$8K
CHARITABLE SUPPORT
2023
$8K
GENERAL SUPPORT
2023
$7K
COMMUNITY HEALTH
2023
$6K
CHARITABLE DONATION
2023
$6K
General support for programs, operations and other charitable purposes
2023
$6K
UNRESTRICTED
2023
$5K
GENERAL
2023
$5K
UNRESTRICTED GENERAL SUPPORT
2023
$5K
GENERAL OPERATING
2023
$2K
GENERAL OPERATING
2023
$2K
Program Support
2023
$2K
PROGRAM/OPERATING SUPPORT
2023
$2K
MATCHING GIFTS
2023
$1K
GENERAL OPERATING SUPPORT
2023
$1K
CHARITABLE PURPOSES
2023
$1K
GENERAL OPERATING
2023
$1K
Charitable purposes
2023
$587
PROGRAM/OPERATING SUPPORT
2023
$500
GENERAL OPERATING SUPPORT
2023
$500
PROGRAM/OPERATING SUPPORT
2023
$500
PROGRAM/OPERATING SUPPORT
2023
$400
GENERAL OPERATIONS
2023
$375
OTHER CIVIC / COMMUNITY
2023
$361
GENERAL OPERATING SUPPORT
2023
$325
PROGRAM/OPERATING SUPPORT
2023
$315
PROGRAM/OPERATING SUPPORT
2023
$300
PROGRAM/OPERATING SUPPORT
2023
$300
Health and Science
2023
$300
PROGRAM/OPERATING SUPPORT
2023
$250
MATCHING GIFTS
2023
$200
GENERAL OPERATING PURPOSE
2023
$200
PROGRAM/OPERATING SUPPORT
2023
$200
PROGRAM/OPERATING SUPPORT
2023
$144
OTHER CIVIC / COMMUNITY
2023
$135
PROGRAM/OPERATING SUPPORT
2023
$100
TO SUPPORT THE RESEARCH OF EPILEPSY
2023
$100
MATCHING GIFT TO HEALTH & HUMAN SERVICES AGENCY
2023
$60
OTHER CIVIC / COMMUNITY
2023
$53
GENERAL SUPPORT
2023
$51
GENERAL EXEMPT PURPOSE
2023
$25
OTHER CIVIC / COMMUNITY
2023
Matching Gift
2023
$80K
For grant recipient's exempt purposes
2022
$74K
GENERAL SUPPORT
2022
$70K
DISEASE/DISORDER
2022
$53K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$49K
RESEARCH/PUBLICEDUCATION
2022
$42K
GENERAL PURPOSE
2022
$40K
77594 EDUCATING COMPANIES ABOUT THE BENEFITS OF EMPLOYING PEOPLE LIVING WITH EPILEPSY
2022
$33K
GENERAL SUPPORT
2022
$33K
PROGRAM SUPPORT
2022
$25K
EPILEPSY RESEARCH
2022
$18K
GENERAL OPERATING
2022
$17K
CHARITABLE DONATION
2022
$14K
TO PROVIDE PROGRAMS AND SERVICES TO PEOPLE AND FAMILIES OF NEBRASKA IMPACTED BY EPILEPSY. WE ARE COMMITTED TO LEADING THE FIGHT TO OVERCOME THE CHALLENGES OF EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES RIGHT HERE IN NEBRASKA.
2022
$12K
GENERAL SUPPORT
2022
$10K
THE PURPOSE OF THIS GRANT IS GENERAL SUPPORT.
2022
$10K
General & Unrestricted
2022
$10K
General Support
2022
$9K
SEE TISBEST MISSION
2022
$9K
UNRESTRICTED
2022
$8K
CHARITABLE SUPPORT
2022
$8K
SUPPORT CHARITABLE PURPOSE
2022
$6K
General Operating Support, support for research by 2025
2022
$6K
DISEASE/DISORDER
2022
$5K
MEDICAL / PUBLIC SERVICES
2022
$3K
GENERAL SUPPORT
2022
$2K
GENERAL OPERATING
2022
$2K
GENERAL OPERATING SUPPORT
2022
$2K
MATCHING GIFTS
2022
$2K
GENERAL OPERATING
2022
$2K
Program Support
2022
$1K
CHARITABLE PURPOSES
2022
$1K
PROGRAM/OPERATING SUPPORT
2022
$1K
General Operating Support
2022
$969
EMPLOYEE MATCHING GIFT DONATION
2022
$757
GENERAL OPERATING
2022
$662
Financial Assistance
2022
$580
EMPLOYEE MATCHING
2022
$550
PROGRAM/OPERATING SUPPORT
2022
$550
CHARITABLE
2022
$500
PROGRAM/OPERATING SUPPORT
2022
$500
PROGRAM/OPERATING SUPPORT
2022
$500
PROGRAM/OPERATING SUPPORT
2022
$500
PROGRAM/OPERATING SUPPORT
2022
$500
PROGRAM/OPERATING SUPPORT
2022
$500
PROGRAM/OPERATING SUPPORT
2022
$400
GENERAL OPERATIONS
2022
$350
PROGRAM/OPERATING SUPPORT
2022
$312
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2022
$230
GENERAL OPERATING PURPOSES
2022
$206
EMPLOYEE MATCHING PROGRAM- FURTHER 501(C)(3) CHARITABLE PURPOSE
2022
$200
PROGRAM/OPERATING SUPPORT
2022
$200
PROGRAM/OPERATING SUPPORT
2022
$200
PROGRAM/OPERATING SUPPORT
2022
$150
MATCHING GIFTS
2022
$129
GENERAL SUPPORT
2022
$100
MATCHING GIFT
2022

Funded by

$9.0M from 125 funders · 374 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$1.1M · 8 grants · 2017–2023

The Robert Wood Johnson Foundation

$950K · 28 grants · 2020–2023

American Online Giving Foundation Inc

$733K · 6 grants · 2019–2024

Paypal Charitable Giving Fund

$717K · 5 grants · 2020–2024

Donor Advised Charitable Giving Inc

$627K · 7 grants · 2017–2023

Vanguard Charitable Endowment Program

$431K · 4 grants · 2020–2023

National Philanthropic Trust

$421K · 5 grants · 2019–2023

T Rowe Price Program For Charitable

$400K · 5 grants · 2020–2024

Details

EIN520856660
NTEE codeG54Z
Subsection03
Ruling date1959-02
Formed1967
Employees94
Volunteers1000
EPILEPSY FOUNDATION OF AMERICA — Mission, Financials & Grants Received | Grantivo