Disease & Medical Research
Epilepsy Foundation Of America
BOWIE, MD
Total revenue
$15.6M
Total expenses
$16.5M
Net assets
$19.8M
Grants received
$9.0M
374 grants
EIN
520856660
Tax year
2023
Mission
To improve the lives of peoples affected by epilepsy through education, advocacy, research, and connection.
Programs
2 programs
Public health, education, and awareness - provides educational and supporting services that create and promote public awareness surrounding epilepsy. The program utilizes traditional and digital media channels including social media and through the direct mail program which serve the dual purpose of raising funds for the foundation and increasing awareness of the foundation's cause. The foundation educates through engagement with media sources, and partnerships with other non-profits and professional and government organizations. In addition, the foundation established the epilepsy learning healthcare system (elhs) network, which is a public health initiative to drive quality health services research to improve medical outcomes for people with epilepsy.
Research, innovation, and new therapies - accelerates the development of innovative therapies, prevention, and cures for all forms of epilepsies, and seeks to address the gap in the research and commercialization continuum. The main objective is to develop an epilepsy research ecosystem that covers all parts of therapy, from idea to market. The foundation's research initiatives include: innovation programs that test new ideas and follow new research leads and engagement programs that improve communication between people with epilepsy, their families, advocates, researchers, and investors. Digital tools that support research infrastructure. Funding that supports young researchers to bring their ideas to life. Practice solutions to eradicate sudden and unexpected death in epilepsy (sudep).
Financials
FY 2023
Revenue
Expenses
People
29 listed
RAHEL ROSNER
CFOO (THROUGH 9/24)
$301K
35 hrs/wk
BRANDY FUREMAN
CHIEF OUTCOMES OFFICER
$253K
35 hrs/wk
LAURA WEIDNER
CHIEF ADVOCACY AND GOV RELATIONS OFFICER
$201K
35 hrs/wk
BERNICE LEE
CHIEF EXECUTIVE OFFICER (BEG 7/23)
$182K
35 hrs/wk
ALISON ZETTERQUIST
INTERIM CEO (THROUGH 6/23)
$131K
35 hrs/wk
JAMES MCALPIN
DIRECTOR
—
1 hrs/wk
MICHAEL MCDONNELL
DIRECTOR
—
1 hrs/wk
MARIA MARTINEZ
DIRECTOR
—
1 hrs/wk
WASIM MALIK
DIRECTOR
—
1 hrs/wk
JEFFREY PARENT
CHAIR
—
1 hrs/wk
DAVID MOORE
DIRECTOR
—
1 hrs/wk
MARY WELDON
DIRECTOR
—
1 hrs/wk
JOSH GOLDEN
DIRECTOR
—
1 hrs/wk
ANGELICA ROIZ
DIRECTOR
—
1 hrs/wk
ABRAHAM GLASER
DIRECTOR
—
1 hrs/wk
MARK THEEUWES
SECRETARY
—
1 hrs/wk
DAVID HAWK
TREASURER
—
1 hrs/wk
COURTNEY WATSON
VICE CHAIR
—
1 hrs/wk
GREG MAYES
DIRECTOR
—
1 hrs/wk
ELI CORBETT
DIRECTOR
—
1 hrs/wk
SUSAN LINN
DIRECTOR
—
1 hrs/wk
JEN GURTCHEFF
DIRECTOR
—
1 hrs/wk
JOHN LANNEN
DIRECTOR
—
1 hrs/wk
NOAH RICHMOND
DIRECTOR
—
1 hrs/wk
NATHAN DEVAULT
VP, MARKETING AND COMMUNICATIONS
$172K
35 hrs/wk
DANIELLE SOLOMON
VP, HUMAN RESOURCES
$156K
35 hrs/wk
GREGG FORT
VP REGIONAL TEAMS
$142K
35 hrs/wk
KATHLEEN FARRELL
VP PUBLIC HEALTH & OUTCOMES
$135K
35 hrs/wk
JACQUELINE AKER
SENIOR DIRECTOR OF PUBLIC RELATIONS
$125K
35 hrs/wk
Independent contractors
CITIZENS UNITED FOR RESEARCH IN EPILEPSY
CONSULTING SERVICES
HH ASSOCIATES US INC
FUNDRAISING CONSULTANT
BENEFACTOR GROUP
CONSULTING SERVICES
PERFICIENT INC
CONSULTING SERVICES
AMAZON WEB SERVICES INC (AWS)
CONSULTING SERVICES
Grants received
Showing 200 of 374
Funded by
$9.0M from 125 funders · 374 grants · 2017–2024
$1.1M · 8 grants · 2017–2023
$950K · 28 grants · 2020–2023
$733K · 6 grants · 2019–2024
$717K · 5 grants · 2020–2024
$627K · 7 grants · 2017–2023
$431K · 4 grants · 2020–2023
$421K · 5 grants · 2019–2023
$400K · 5 grants · 2020–2024