Everylife Foundation For Rare Diseases

Rare disease legislative advocates - rare disease legislative advocates rdla is a collaborative program designed to support the advocacy of all rare disease groups. Rdla works to empower the individual to become an advocate by providing informational meetings, legislative resources, advocacy tools, and special events that support organizations and advocates working to promote rare disease legislation. Rdla's goal is to bring the rare disease community together, grow the patient advocacy community and work collectively to ensure that the many voices of patients with rare diseases have an opportunity to be heard in state government and on capitol hill.

Patient programs and opportunities for patient engagement and community including an artist contest, collaborative workspace, and communications tools.