Nonprofits›Ftd Disorders Registry Llc
Voluntary Health Associations & Medical Disciplines
Ftd Disorders Registry Llc
KNG OF PRUSSA, PA
Total revenue
$871K
Total expenses
$893K
Net assets
$2.0M
Grants received
$2.0M
11 grants
EIN
473601782
Tax year
2024
Mission
Provide a patient registry for those afflicted by ftd, a devastating neurodegenerative disease.
Financials
FY 2024
Revenue
Contributions & grants$800K
Program service revenue—
Investment income$71K
Other revenue—
Total revenue$871K
Expenses
Grants paid—
Salaries & benefits$561K
Fundraising—
Other expenses$331K
Total expenses$893K
Total assets$2.2M
Net assets$2.0M
People
5 listed
NameRoleCompensation
SUSAN DICKINSON
DIRECTOR-AFTD MEMBER REPRE
Board
—
4 hrs/wk
LAURA MITIC
DIRECTOR-BLUEFIELD MEMBER
Board
—
4 hrs/wk
PENNY DACKS
PRESIDENT
Board
—
10 hrs/wk
MITCH APPLESON
COO AND SECRETARY
Board
—
2 hrs/wk
CARRIE MILLIARD
REGISTRY DIRECTOR
Staff
$149K
40 hrs/wk
Grants received
Showing 11 of 11
FromAmountPurposeYear
Funded by
$2.0M from 4 funders · 11 grants · 2018–2024
The Association For Frontotemporal
$837K · 4 grants · 2018–2024
Mayo Clinic
$715K · 4 grants · 2020–2024
Rainwater Charitable Foundation
$311K · 2 grants · 2022–2023
Community Foundation Of North Texas (Tax
$155K · 1 grant · 2020
Details
EIN473601782
NTEE codeG83
Subsection03
Ruling date2016-03
Formed2015
Employees5
Volunteers0