NonprofitsFtd Disorders Registry Llc

Voluntary Health Associations & Medical Disciplines

Ftd Disorders Registry Llc

KNG OF PRUSSA, PA

Total revenue

$871K

Total expenses

$893K

Net assets

$2.0M

Grants received

$2.0M

11 grants

EIN

473601782

Tax year

2024

Mission

Provide a patient registry for those afflicted by ftd, a devastating neurodegenerative disease.

Financials

FY 2024

Revenue

Contributions & grants$800K
Program service revenue
Investment income$71K
Other revenue
Total revenue$871K

Expenses

Grants paid
Salaries & benefits$561K
Fundraising
Other expenses$331K
Total expenses$893K
Total assets$2.2M
Net assets$2.0M

People

5 listed

NameRoleCompensation

SUSAN DICKINSON

DIRECTOR-AFTD MEMBER REPRE

Board

4 hrs/wk

LAURA MITIC

DIRECTOR-BLUEFIELD MEMBER

Board

4 hrs/wk

PENNY DACKS

PRESIDENT

Board

10 hrs/wk

MITCH APPLESON

COO AND SECRETARY

Board

2 hrs/wk

CARRIE MILLIARD

REGISTRY DIRECTOR

Staff

$149K

40 hrs/wk

Grants received

Showing 11 of 11

FromAmountPurposeYear
$287K
FTD PATIENT REGISTRY
2024
$223K
SUPPORT CHARITABLE PROGRAMS
2024
$250K
FTD PATIENT REGISTRY
2023
$175K
SUPPORT CHARITABLE PROGRAMS
2023
$156K
MEDICAL RESEARCH
2023
$221K
SUPPORT CHARITABLE PROGRAMS
2022
$155K
TAUOPATHY RESEARCH
2022
$155K
FOR GENERAL PURPOSES
2020
$150K
FTD PATIENT REGISTRY
2020
$96K
SUPPORT CHARITABLE PROGRAMS
2020
$150K
FTD PATIENT REGISTRY
2018

Funded by

$2.0M from 4 funders · 11 grants · 2018–2024

The Association For Frontotemporal

$837K · 4 grants · 2018–2024

Mayo Clinic

$715K · 4 grants · 2020–2024

Rainwater Charitable Foundation

$311K · 2 grants · 2022–2023

Details

EIN473601782
NTEE codeG83
Subsection03
Ruling date2016-03
Formed2015
Employees5
Volunteers0
FTD DISORDERS REGISTRY LLC — Mission, Financials & Grants Received | Grantivo