NonprofitsHht Foundation International Inc

Community Improvement & Capacity Building

Hht Foundation International Inc

COCKEYSVILLE, MD

Total revenue

$6.8M

Total expenses

$5.3M

Net assets

$4.4M

Grants received

$2.9M

76 grants

EIN

223115041

Tax year

2023

Mission

Find a cure for hht while saving the lives and improving the well-being of individuals and families affected by hht.

Programs

3 programs

Education - the goal of the education program is to promote education, diagnosis, and best practice treatments related to hht through patient support, support of conferences, meetings, and comprehensive hht clinical centers of excellence.

Expenses: $460KGrants: $30K

Public information - the goal of the public information program is to increase public, private, and governmental awareness of the hht disorder through the press and the media.

Expenses: $225K

Advocacy - the goal of the advocacy program is to advocate for and support those with hht by pursuing recognition and funding for awareness, access to expert care and clinical trials.

Expenses: $37K

Financials

FY 2023

Revenue

Contributions & grants$6.6M
Program service revenue$105K
Investment income$135K
Other revenue
Total revenue$6.8M

Expenses

Grants paid$2.9M
Salaries & benefits$1.2M
Fundraising$439K
Other expenses$1.1M
Total expenses$5.3M
Total assets$5.2M
Net assets$4.4M

People

20 listed

NameRoleCompensation

MARIANNE CLANCY

EXECUTIVE DIRECTOR

Board

$183K

40 hrs/wk

STEFANIE-NICOLE SCHAEFER

CHIEF OPERATING OFFICER

Board

$114K

40 hrs/wk

SAVANAH BENHART

SECRETARY

Board

1 hrs/wk

ANTHONY ANZELL PHD

MEMBER

Board

1 hrs/wk

SCOTT BOATWRIGHT

MEMBER

Board

1 hrs/wk

GABRIELLA CHOI

MEMBER

Board

1 hrs/wk

JIM LAPIDES

MEMBER

Board

1 hrs/wk

HOWARD LICHTIG

MEMBER

Board

1 hrs/wk

MARIJO MCCUNE

MEMBER

Board

1 hrs/wk

JOHN DUNN

PRESIDENT

Board

1 hrs/wk

BRANDON PROBST PHD

MEMBER

Board

1 hrs/wk

DENNIS SPRECHER MD

MEMBER

Board

1 hrs/wk

KAREN SILBER WEISSEL PHD

MEMBER

Board

1 hrs/wk

ANN TRUSSELL

MEMBER

Board

1 hrs/wk

ROBERT BERKMAN

MEMBER EMERITUS

Board

1 hrs/wk

DENNIS ROUTLEDGE

MEMBER EMERITUS

Board

1 hrs/wk

SCOTT OLITSKY MD

MEMBER

Board

1 hrs/wk

BENJAMIN HOLT ESQ

VICE-PRESIDENT

Board

1 hrs/wk

MARC TOPAZ ESQ

TREASURER

Board

1 hrs/wk

MELISSA DICKEY

DIRECTOR, NAT'L HHT COORDINATING CENTER

Staff

$141K

40 hrs/wk

Independent contractors

BIORASI LLC

CLINICAL TRIALS AND RESEARCH

$725K

Grants received

Showing 76 of 76

FromAmountPurposeYear
$33K
UNRESTRICTED GENERAL SUPPORT
2024
$14K
GENERAL SUPPORT
2024
$10K
GRANT DISTRIBUTION
2024
$10K
HEALTH/MENTAL HEALTH
2024
$6K
FOR RECIPIENT'S EXEMPT PURPOSE
2024
$5K
TO SUPPORT THE MISSION OF HHT FOUNDATION TO FIND A CURE FOR HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT), WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY THE DISORDER.
2024
$423
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2024
$100
MEDICAL
2024
$50
GENERAL OPERATING PURPOSE
2024
$367K
PUBLIC, SOCIETAL BENEFIT
2023
$153K
For grant recipient's exempt purposes
2023
$31K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$10K
CHARITABLE DONATION
2023
$5K
GENERAL SUPPORT
2023
$5K
TO SUPPORT THE MISSION OF HHT FOUNDATION TO FIND A CURE FOR HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT), WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY THE DISORDER.
2023
$5K
GENERAL CONTRIBUTION
2023
$5K
TO SUPPORT THE MISSION OF HHT FOUNDATION TO FIND A CURE FOR HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT), WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY THE DISORDER.
2023
$105
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2023
$100
CHARITABLE CONTRIBUTION TO PUBLIC CHARITY
2023
$100
EXEMPT PURPOSE
2023
$147K
PUBLIC, SOCIETAL BENEFIT
2022
$144K
For grant recipient's exempt purposes
2022
$10K
TO SUPPORT THE MISSION OF THE HHT FOUNDATION INTERNATIONAL TO FIND A CURE FOR HHT WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY HHT VIA IT'S GENERAL OPERATIONS FUND.
2022
$5K
CHARITABLE DONATION
2022
$5K
GENERAL SUPPORT
2022
$1K
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2022
$25
PROGRAM/OPERATING SUPPORT
2022
$146K
For grant recipient's exempt purposes
2021
$146K
For grant recipient's exempt purposes
2021
$139K
PUBLIC, SOCIETAL BENEFIT
2021
$41K
DATA MANAGEMENT CAPACITY RESEARCH
2021
$12K
GENERAL OPERATING SUPPORT
2021
$8K
For recipient's exempt purpose
2021
$3K
Program Support
2021
$52
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2021
$93K
For grant recipient's exempt purposes
2020
$34K
PUBLIC, SOCIETAL BENEFIT
2020
$13K
DATA MANAGEMENT CAPACITY RESEARCH
2020
$10K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$10K
MATCHING GIFTS
2020
$7K
GENERAL OPERATING SUPPORT
2020
$5K
GENERAL OPERATING PURPOSE
2020
$3K
PROGRAM SUPPORT
2020
$3K
PROGRAM SUPPORT
2020
$26
GENERAL SUPPORT
2020
$55K
For grant recipient's exempt purposes
2019
$35K
PUBLIC, SOCIETAL BENEFIT
2019
$2K
Program Support
2019
$31K
For grant recipient's exempt purposes
2018
$8K
PUBLIC, SOCIETAL BENEFIT
2018
$152
PROGRAM/OPERATING SUPPORT
2018
$38K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
$10K
To support research in gene therapy for HHT conditions
2017
$6K
SUPPORT RESEARCH
2017

Funded by

$2.9M from 31 funders · 76 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$807K · 8 grants · 2017–2023

Donor Advised Charitable Giving Inc

$730K · 6 grants · 2018–2023

Silicon Valley Community Foundation

$615K · 2 grants · 2020–2022

National Philanthropic Trust

$314K · 5 grants · 2019–2023

American Online Giving Foundation Inc

$59K · 6 grants · 2019–2024

American Thrombosis And Hemostasis

$54K · 2 grants · 2020–2021

Natl Christian Charitable Fdn Inc

$40K · 4 grants · 2022–2024

The Us Charitable Gift Trust

$37K · 2 grants · 2023–2024

Details

EIN223115041
NTEE codeS41Z
Subsection03
Ruling date1991-08
Formed1990
Employees15
Volunteers0
HHT FOUNDATION INTERNATIONAL INC — Mission, Financials & Grants Received | Grantivo