Health Care
I Am Als
CHICAGO, IL
Total revenue
$4.1M
Total expenses
$2.6M
Net assets
$3.4M
Grants received
$6.1M
122 grants
EIN
832016277
Tax year
2024
Mission
I am als exists to support and mobilize the als community for the purposes of improving quality of life, raising awareness, increasing funding for research and access, and identifying treatments and cures for als.
Programs
2 programs
Government affairs, policy, and reasearchi am als enables the community advocates to influence changes to federal funding and transform research systems, institutional policy, and regulatory processes with the goals of increasing research funding; improving patient access to treatment; and speeding the development and access of treatments and cures for people living with als.
Community organizing and communicationi am als mobilizes the als community and facilitates weekly topic-based, self-organized teams. Individual advocates engage in virtual, digital, and in-person actions to catalyze policy change and research progress to end als' increase public and professional awareness and competency; change policy outcomes; improve trials and treatment access; and more.
Financials
FY 2024
Revenue
Expenses
People
16 listed
ANDREA GOODMAN
CEO
$258K
40 hrs/wk
PETER BOWEN
BOARD CHAIR
—
2 hrs/wk
JANO CABRERA
BOARD MEMBER
—
2 hrs/wk
LOUISE LANGHEIER
BOARD MEMBER
—
2 hrs/wk
MICHAEL O'NEIL
BOARD MEMBER
—
2 hrs/wk
SANDRA ABREVAYA
CO-FOUNDER
—
2 hrs/wk
JUAN A REYES
BOARD MEMBER
—
2 hrs/wk
MICHAEL SLABY
BOARD MEMBER
—
2 hrs/wk
DAN TATE
BOARD MEMBER
—
2 hrs/wk
NEEL PAREKH
BOARD MEMBER
—
2 hrs/wk
BRIAN WALLACH
CO-FOUNDER
—
2 hrs/wk
PEGGY PLEWS-OGAN
BOARD SECRETARY
—
2 hrs/wk
JENNIFER FORTNER
BOARD TREASURER
—
2 hrs/wk
SONYA ELLING
CHIEF GOVERNMENT AFFAIRS OFFICER
$195K
40 hrs/wk
ADITI NARAYAN MINKOFF
VP OF COMMUNITY SUPPORT
$153K
40 hrs/wk
MICHAEL LECKER
VP OF COMMUNITY ORGANIZING
$140K
40 hrs/wk
Independent contractors
WINNING STRATEGIES WASHINGTON LLC
LOBBYING, GOVERNMENT AFFAIRS AND COUNSEL
Grants received
Showing 122 of 122
Funded by
$6.1M from 76 funders · 122 grants · 2019–2024
$3.7M · 6 grants · 2019–2023
$478K · 5 grants · 2019–2023
$201K · 1 grant · 2023
$198K · 5 grants · 2020–2024
$175K · 1 grant · 2023
$160K · 3 grants · 2021–2023
$132K · 2 grants · 2021–2023
$104K · 1 grant · 2024