NonprofitsKif1Aorg Inc

Mental Health & Crisis Intervention

Kif1Aorg Inc

NEW YORK, NY

Total revenue

$295K

Total expenses

$149K

Net assets

$218K

Grants received

$820K

28 grants

EIN

820714729

Tax year

2024

Mission

Kif1a.org is a global community dedicated to improving the lives of those affected by kif1a-associated neurological disorders and accelerating research to find a cure.

Programs

3 programs

Community & family support - kif1a.org's community and family support program empowers individuals affected by kif1a associated neurological disorder (kand) through direct support, resource development, and family-centered initiatives. This program provides a vital support network for patients, caregivers, and advocates navigating the challenges of a rare neurodegenerative disease. Through virtual meetups, educational webinars, personalized family outreach, and an online community platform, kif1a.org fosters meaningful connections among families around the world. The program also provides guidance on clinical care, access to research opportunities, and emotional support resources. By amplifying the voices of patients and caregivers, the community and family support program helps build resilience, reduce isolation, and ensure that every kand family is equipped with the tools and information needed to face the complex realities of this ultra-rare disorder.

Expenses: $27KGrants: $3K

Medical research and development - kif1a.org's medical research and development program accelerates discovery and therapeutic development for kif1a associated neurological disorder (kand) by driving scientific collaboration and patient-centered research. Led by our chief science officer, this program facilitates coordination among researchers, clinicians, and institutions around the world to align efforts, share data and resources, and advance understanding of kif1a-related symptoms. Through strategic partnerships, research grants, and convening global experts, the program helps identify and prioritize high-impact research projects. Importantly, kif1a.org ensures that the patient and caregiver perspective remains central in all scientific discussions, from basic research to clinical trial design. By bridging the gap between families and the scientific community, the medical research and development program fosters a collaborative ecosystem dedicated to delivering meaningful outcomes for those affected by kand.

Expenses: $19K

Reimbursement other programs - general and conference attendance.

Expenses: $28K

Financials

FY 2024

Revenue

Contributions & grants$292K
Program service revenue$2K
Investment income
Other revenue
Total revenue$295K

Expenses

Grants paid$3K
Salaries & benefits$95K
Fundraising$6K
Other expenses$51K
Total expenses$149K
Total assets$218K
Net assets$218K

People

7 listed

NameRoleCompensation

ANGIE FULLER

CHAIRPERSON, TREASURER

Board

40 hrs/wk

MICHELLE TAO

VICE CHAIRPERSON, SECRETARY

Board

5 hrs/wk

PATRICK SARMIERE

BOARD MEMBER

Board

1 hrs/wk

TAMARA AGAJANOV

BOARD MEMBER

Board

1 hrs/wk

MARIA BARROS

BOARD MEMBER

Board

1 hrs/wk

LUKE ROSEN

BOARD MEMBER

Board

1 hrs/wk

SALLY JACKSON

BOARD MEMBER

Board

1 hrs/wk

Grants received

Showing 28 of 28

FromAmountPurposeYear
$18K
GENERAL SUPPORT
2024
$10K
GENERAL SUPPORT OF MISSION
2024
$2K
GENERAL OPERATING PURPOSE
2024
$5K
For grant recipient's exempt purposes
2023
$1K
UNRESTRICTED
2023
$50K
FUNDING FOR RESEARCH AND SUPPORT FOR FAMILIES WITH KAND AND OTHER RARE CHILDHOOD DISORDERS.
2022
$1K
GENERAL OPERATING PURPOSES
2022
$9K
For grant recipient's exempt purposes
2021
$9K
For grant recipient's exempt purposes
2021
$600
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2021
$10K
2020 RISING TIDES EMERGENCY RESPONSE ORGANIZATION GRANT
2020
$8K
For grant recipient's exempt purposes
2020
$3K
GENERAL OPERATING PURPOSES
2020
$3K
GENERAL OPERATING SUPPORT
2020
$6K
For grant recipient's exempt purposes
2019
$5K
GENERAL PURPOSE
2018
$3K
UNRESTRICTED GIFT
2018
$4K
UNRESTRICTED GIFT
2017

Funded by

$820K from 14 funders · 28 grants · 2017–2024

Silicon Valley Community Foundation

$615K · 2 grants · 2020–2022

The Terra Foundation

$51K · 2 grants · 2022–2023

Fidelity Investments Charitable Gift Fund

$38K · 5 grants · 2019–2023

Paypal Charitable Giving Fund

$34K · 2 grants · 2023–2024

American Online Giving Foundation Inc

$33K · 5 grants · 2020–2024

Daffy Charitable Fund

$10K · 1 grant · 2024

Details

EIN820714729
NTEE codeF01
Subsection03
Ruling date2017-03
Formed2017
Employees1
Volunteers10
KIF1AORG INC — Mission, Financials & Grants Received | Grantivo