National Brain Tumor Society Inc
NEWTON, MA
Total revenue
$13.2M
Total expenses
$12.6M
Net assets
$16.1M
Grants received
$15.2M
688 grants
EIN
043068130
Tax year
2024
Mission
National brain tumor society unrelentingly invests in, mobilizes, andunites our community to discover a cure, deliver effective treatments,and advocate for patients and care partners.
Programs
2 programs
Our connect strategy convenes, educates, and unites the brain tumor community. We bring stakeholders together, to address barriers to the development of new treatments and better health care. Nbts leads several national awareness campaigns to educate the public about brain tumors and the importance of reducing the burden of them. We equip patients and care partners with tools and resources to navigate every step of their unique health care journeyfrom understanding their diagnosis and building their medical team to making decisions about treatment. We organize events that bring the brain tumor community together to honor, learn, develop meaningful relationships, turn grief into action, and fuel momentum for our cause. Our support groups foster connections showing patients and care partners that they are not alone.
Our change strategy fuels the voice of the brain tumor community to advocate public policy. We ensure the community's needs are reflected in national medical research and health care policy. Together, we advocate for the federal government to make strategic investments in brain tumor research, improve health care delivery, reduce health disparities, and raise the priority level for our community's needs. Over 18,000 volunteer advocates across all 50 states affect change at all levels annually. We mobilize our community on policy issues to urge government officials to enact policies that support our vision of conquering and curing brain tumorsonce and for all. Through our advocacy, we affect the lives of nearly one million americans living with a brain tumor today, and those who will be diagnosed.
Financials
FY 2024
Revenue
Expenses
People
27 listed
DAVID ARONS
CEO
$300K
40 hrs/wk
KATIE GERMAIN
CHIEF OF MARKETING & COMMUNICATIONS OFFICER
$176K
40 hrs/wk
MARISA PETRILLO
CHIEF PEOPLE OFFICER
$163K
40 hrs/wk
RICHARD LESCARBEAU
VP OF FINANCE (AS OF 3/24)
$143K
40 hrs/wk
DOROTHY WHALEN
CHIEF FINANCIAL OFFICER (UNTIL 6/24)
$99K
40 hrs/wk
KAREN TURNER
BOARD MEMBER
—
1 hrs/wk
EDJAH NDUOM
CHAIR
—
2 hrs/wk
JIGAR RAYTHATHA
BOARD MEMBER
—
1 hrs/wk
JONATHAN WEINBERG
BOARD MEMBER
—
1 hrs/wk
ERICA BIRKE
VICE CHAIR
—
1 hrs/wk
MIL PAREKH
TREASURER
—
1 hrs/wk
LEAH RECHT JD
CLERK
—
1 hrs/wk
RYAN LANG
BOARD MEMBER (UNTIL 9/24)
—
1 hrs/wk
ALLISON BISHOF
BOARD MEMBER
—
1 hrs/wk
DR JOOHEE SUL
BOARD MEMBER
—
1 hrs/wk
CORIE YUTKIN
BOARD MEMBER
—
1 hrs/wk
ADAM HAYDEN
BOARD MEMBER
—
1 hrs/wk
KABIR SETHI
BOARD MEMBER
—
1 hrs/wk
FRANK MACCHIAROLA
BOARD MEMBER
—
1 hrs/wk
CHRIS BROWN
BOARD MEMBER
—
1 hrs/wk
KIRK TANNER
CHIEF SCIENTIFIC OFFICER
$234K
40 hrs/wk
ASHLEY BRENNAN
VICE PRESIDENT, DEVELOPMENT
$221K
40 hrs/wk
JOHN HIGGINS
MANAGING DIRECTOR, BTIF
$217K
40 hrs/wk
ELIZABETH RYU
DIRECTOR OF RESEARCH
$148K
40 hrs/wk
ANNE STAMESHKIN
SENIOR DIRECTOR OF COMMUNICATIONS
$137K
40 hrs/wk
GARY HEIMBERG
VP AND COUNSEL, GOVERNMENT RELATIONS
$130K
40 hrs/wk
NOEL TWIGG
SENIOR DIRECTOR OF DEVELOPMENT
$128K
40 hrs/wk
Independent contractors
ALSTON & BIRD
DIRECT LOBBYING
TECH SUPER POWERS
IT SUPPORT
Grants received
Showing 200 of 688
Funded by
$15.2M from 285 funders · 688 grants · 2017–2024
$6.8M · 8 grants · 2017–2023
$1.0M · 6 grants · 2019–2024
$1M · 5 grants · 2020–2024
$728K · 5 grants · 2020–2024
$465K · 7 grants · 2017–2023
$400K · 4 grants · 2018–2023
$319K · 5 grants · 2019–2023
$260K · 2 grants · 2020–2024