Disease & Medical Research
National Multiple Sclerosis Society
NEW YORK, NY
Total revenue
$171.8M
Total expenses
$169.1M
Net assets
$127.5M
Grants received
$139.4M
4,616 grants
EIN
135661935
Tax year
2023
Mission
We will cure ms while empowering people affected by ms to live their best lives.
Programs
3 programs
Public education (see schedule o)public education - people with ms can better manage their disease when they have the support and understanding of the people around them-from doctors to employers to family members. That's why we work relentlessly to tell the world what it means to live with ms. We educate the public through the society's awareness campaigns, public service announcements, and momentum, which is the society's flagship magazine distributed quarterly to nearly 500,000 people living with ms, healthcare providers, and supporters of the society. We send bimonthly emails with news and information about ms to 850,000 people and more than 6.2 million people visit the society's website each year to access information and support and get involved.in addition, many people get engaged in conversations and learn more about ms via the society's social media, with more than 1.1 million followers.
Research and scientific studies (see schedule o)research and scientific studies - in fiscal 2024, the society invested $31.2 million to support 271 new and ongoing research projects around the world aimed at stopping ms in its tracks, restoring function, and ending the disease forever. The society engaged 104 expert scientific and peer reviewers to evaluate 369 proposals for research grants, fellowships and early career awards, commercial research and development agreements, and targeted research grants. We also engaged 15 lay community reviewers to help the society identify the most promising and appropriate research investments.research priority areas to drive breakthroughs to a cure include: accelerating promising research to empower people affected by ms to live their best lives and advance the pathways to ms cures roadmap, including: stopping disease activity and progression through precision medicine and early detection; restoring what's been lost by reversing symptoms and disability through regeneration and functional recovery enhanced by rehabilitation and wellness; and ending the disease through prevention by limiting exposure to risk factors across the population and for those most at-risk.
Professional education and training - the society wants scientists and healthcare professionals to be aware of and trained in ms so that the very best expertise worldwide is engaged in finding treatments and solutions for everyone with ms. This includes activities and programs designed to improve the knowledge, skills, and critical judgement of scientists, physicians and other healthcare professionals engaged (directly or indirectly) in providing services to people living with ms by keeping them abreast of new diagnostic techniques and therapies. In fiscal 2024, 86 clinicians, who provide care for approximately 12,500 people with ms, participated in echo ms, which is a continuing medical education program that establishes a peer-to-peer knowledge sharing network to improve overall health outcomes for individuals with ms. 91% of participants reported that they will be making a change to their clinical practice as a result of the program. As of 2024, the society has funded the training of 115 physicians to become ms specialists who are now providing care for nearly 18,000 people living with ms.
Financials
FY 2023
Revenue
Expenses
People
50 listed
TAMI CAESAR THRU 122023
CHIEF OPERATING OFFICER
$705K
40 hrs/wk
CYNTHIA ZAGIEBOYLO
PRESIDENT & CEO (THRU 07/2024)
$630K
40 hrs/wk
LISA GOLDFARB THRU 052024
CHIEF PPL, VOL & COMM ENG OFFICER
$392K
40 hrs/wk
TIMOTHY COETZEE
PRESIDENT & CEO (AS OF 07/2024)
$385K
40 hrs/wk
CYNTHIA BERTRANDO
CHIEF FINANCIAL OFFICER
$276K
40 hrs/wk
WILLIAM HOLLEY
DIRECTOR
—
5 hrs/wk
TIMOTHY HUSKEY
DIRECTOR
—
5 hrs/wk
RICHARD KNUTSON
DIRECTOR (THRU 11/2023)
—
5 hrs/wk
JAMIE LARSEN
DIRECTOR (AS OF 11/2023)
—
5 hrs/wk
ANDREA LINDSLEY
DIRECTOR (AS OF 11/2023)
—
5 hrs/wk
MARK LIVINGSTON
DIRECTOR
—
5 hrs/wk
LINDA MCALEER
DIRECTOR
—
5 hrs/wk
RICK MCDERMOTT
DIRECTOR
—
5 hrs/wk
WILLIAM T MONAHAN
DIRECTOR (THRU 11/2023)
—
5 hrs/wk
HELEN MYERS
DIRECTOR (AS OF 11/2023)
—
5 hrs/wk
ELIZABETH PAGE
DIRECTOR (THRU 11/2023)
—
5 hrs/wk
RUSSELL PARKER
DIRECTOR
—
5 hrs/wk
CHET POREMBSKI
DIRECTOR (THRU 11/2023)
—
5 hrs/wk
TOBI ROGOWSKY
DIRECTOR
—
5 hrs/wk
ROBERT SHIN
DIRECTOR
—
5 hrs/wk
NANCY SICOTTE
DIRECTOR (AS OF 11/2023)
—
5 hrs/wk
JAMI STEWART
DIRECTOR
—
5 hrs/wk
WENDI WASIK
DIRECTOR
—
5 hrs/wk
MALCOLM P WATTMAN ESQ
DIRECTOR (THRU 11/2023)
—
5 hrs/wk
DAVID M ROTTKAMP
DIRECTOR
—
5 hrs/wk
PETER PORRINO
CHAIR
—
5 hrs/wk
DANA M FOOTE
VICE CHAIR
—
5 hrs/wk
BONNIE HIGGINS
VICE CHAIR
—
5 hrs/wk
CAROLINE WHITACRE
VICE CHAIR
—
5 hrs/wk
DIANA TWADELL
SECRETARY
—
5 hrs/wk
HAFIZ CHANDIWALA
TREASURER
—
5 hrs/wk
MICHAEL BOGDONOFF
DIRECTOR (THRU 11/2023)
—
5 hrs/wk
CHRIS CAMPBELL
DIRECTOR
—
5 hrs/wk
MICHELE DINN
DIRECTOR
—
5 hrs/wk
KASSAUNDRA ESCALERA
DIRECTOR
—
5 hrs/wk
DON FRACCHIA
DIRECTOR (AS OF 11/2023)
—
5 hrs/wk
PETER GALLIGAN
DIRECTOR
—
5 hrs/wk
SHYAM GIDUMAL
DIRECTOR
—
5 hrs/wk
ANDY HARRIS
DIRECTOR
—
5 hrs/wk
JENNIFER LEE
EVP, DEVELOPMENT
$292K
40 hrs/wk
PHYLLIS ROBSHAM THRU 072024
EVP, COMMUNITY LEADERSHIP
$277K
40 hrs/wk
BARI TALENTE
EVP, ADVOCACY & HEALTHCARE ACCESS
$272K
40 hrs/wk
WHITNIE GLADDEN
GENERAL COUNSEL
$271K
40 hrs/wk
BRUCE BEBO
EVP, RESEARCH
$233K
40 hrs/wk
RON ZWERIN THRU 062024
EVP, MKT, BRAND & COMMUNICATIONS
$230K
40 hrs/wk
REBECCA FEHLIG
EVP, OPERATIONS (THRU 07/2024)
$222K
40 hrs/wk
RONDA KRIER
EVP, TECHNOLOGY
$218K
40 hrs/wk
KAREN MARINER
EVP, PROGRAMS & SUPPORT
$194K
40 hrs/wk
MISTY FLOWERS AS OF 062024
EVP, FINANCE & OPERATIONS
$164K
40 hrs/wk
GRAHAM MCREYNOLDS
FORMER AVP, GLOBAL INITIATIVES
$123K
0Independent contractors
MERKLE INC
SEE SCHEDULE O
SLALOM INC
IT PROFESSIONAL SERVICES
GLOBAL CLOUD LTD
IT/PROCESSING SERVICES
PROVIDENT CONTRUCTION INC
CONSTRUCTION
INTECROWD LLC
IT PROFESSIONAL SERVICES
Grants received
Showing 200 of 4,616
Funded by
$139.4M from 1,461 funders · 4,616 grants · 2017–2024
$24.0M · 8 grants · 2017–2023
$14.2M · 7 grants · 2019–2024
$14.1M · 19 grants · 2017–2023
$10M · 2 grants · 2023–2024
$8.2M · 2 grants · 2020
$6.4M · 5 grants · 2020–2024
$3.5M · 5 grants · 2018–2024
$2.6M · 4 grants · 2020–2023