NonprofitsNational Multiple Sclerosis Society

Disease & Medical Research

National Multiple Sclerosis Society

NEW YORK, NY

Total revenue

$171.8M

Total expenses

$169.1M

Net assets

$127.5M

Grants received

$139.4M

4,616 grants

EIN

135661935

Tax year

2023

Mission

We will cure ms while empowering people affected by ms to live their best lives.

Programs

3 programs

Public education (see schedule o)public education - people with ms can better manage their disease when they have the support and understanding of the people around them-from doctors to employers to family members. That's why we work relentlessly to tell the world what it means to live with ms. We educate the public through the society's awareness campaigns, public service announcements, and momentum, which is the society's flagship magazine distributed quarterly to nearly 500,000 people living with ms, healthcare providers, and supporters of the society. We send bimonthly emails with news and information about ms to 850,000 people and more than 6.2 million people visit the society's website each year to access information and support and get involved.in addition, many people get engaged in conversations and learn more about ms via the society's social media, with more than 1.1 million followers.

Expenses: $35.7M

Research and scientific studies (see schedule o)research and scientific studies - in fiscal 2024, the society invested $31.2 million to support 271 new and ongoing research projects around the world aimed at stopping ms in its tracks, restoring function, and ending the disease forever. The society engaged 104 expert scientific and peer reviewers to evaluate 369 proposals for research grants, fellowships and early career awards, commercial research and development agreements, and targeted research grants. We also engaged 15 lay community reviewers to help the society identify the most promising and appropriate research investments.research priority areas to drive breakthroughs to a cure include: accelerating promising research to empower people affected by ms to live their best lives and advance the pathways to ms cures roadmap, including: stopping disease activity and progression through precision medicine and early detection; restoring what's been lost by reversing symptoms and disability through regeneration and functional recovery enhanced by rehabilitation and wellness; and ending the disease through prevention by limiting exposure to risk factors across the population and for those most at-risk.

Expenses: $30.7MGrants: $25.5M

Professional education and training - the society wants scientists and healthcare professionals to be aware of and trained in ms so that the very best expertise worldwide is engaged in finding treatments and solutions for everyone with ms. This includes activities and programs designed to improve the knowledge, skills, and critical judgement of scientists, physicians and other healthcare professionals engaged (directly or indirectly) in providing services to people living with ms by keeping them abreast of new diagnostic techniques and therapies. In fiscal 2024, 86 clinicians, who provide care for approximately 12,500 people with ms, participated in echo ms, which is a continuing medical education program that establishes a peer-to-peer knowledge sharing network to improve overall health outcomes for individuals with ms. 91% of participants reported that they will be making a change to their clinical practice as a result of the program. As of 2024, the society has funded the training of 115 physicians to become ms specialists who are now providing care for nearly 18,000 people living with ms.

Expenses: $6.6MGrants: $1.7M

Financials

FY 2023

Revenue

Contributions & grants$164.1M
Program service revenue
Investment income$6.7M
Other revenue$999K
Total revenue$171.8M

Expenses

Grants paid$30.2M
Salaries & benefits$94.3M
Fundraising$33.8M
Other expenses$42.2M
Total expenses$169.1M
Total assets$201.1M
Net assets$127.5M

People

50 listed

NameRoleCompensation

TAMI CAESAR THRU 122023

CHIEF OPERATING OFFICER

Board

$705K

40 hrs/wk

CYNTHIA ZAGIEBOYLO

PRESIDENT & CEO (THRU 07/2024)

Board

$630K

40 hrs/wk

LISA GOLDFARB THRU 052024

CHIEF PPL, VOL & COMM ENG OFFICER

Board

$392K

40 hrs/wk

TIMOTHY COETZEE

PRESIDENT & CEO (AS OF 07/2024)

Board

$385K

40 hrs/wk

CYNTHIA BERTRANDO

CHIEF FINANCIAL OFFICER

Board

$276K

40 hrs/wk

WILLIAM HOLLEY

DIRECTOR

Board

5 hrs/wk

TIMOTHY HUSKEY

DIRECTOR

Board

5 hrs/wk

RICHARD KNUTSON

DIRECTOR (THRU 11/2023)

Board

5 hrs/wk

JAMIE LARSEN

DIRECTOR (AS OF 11/2023)

Board

5 hrs/wk

ANDREA LINDSLEY

DIRECTOR (AS OF 11/2023)

Board

5 hrs/wk

MARK LIVINGSTON

DIRECTOR

Board

5 hrs/wk

LINDA MCALEER

DIRECTOR

Board

5 hrs/wk

RICK MCDERMOTT

DIRECTOR

Board

5 hrs/wk

WILLIAM T MONAHAN

DIRECTOR (THRU 11/2023)

Board

5 hrs/wk

HELEN MYERS

DIRECTOR (AS OF 11/2023)

Board

5 hrs/wk

ELIZABETH PAGE

DIRECTOR (THRU 11/2023)

Board

5 hrs/wk

RUSSELL PARKER

DIRECTOR

Board

5 hrs/wk

CHET POREMBSKI

DIRECTOR (THRU 11/2023)

Board

5 hrs/wk

TOBI ROGOWSKY

DIRECTOR

Board

5 hrs/wk

ROBERT SHIN

DIRECTOR

Board

5 hrs/wk

NANCY SICOTTE

DIRECTOR (AS OF 11/2023)

Board

5 hrs/wk

JAMI STEWART

DIRECTOR

Board

5 hrs/wk

WENDI WASIK

DIRECTOR

Board

5 hrs/wk

MALCOLM P WATTMAN ESQ

DIRECTOR (THRU 11/2023)

Board

5 hrs/wk

DAVID M ROTTKAMP

DIRECTOR

Board

5 hrs/wk

PETER PORRINO

CHAIR

Board

5 hrs/wk

DANA M FOOTE

VICE CHAIR

Board

5 hrs/wk

BONNIE HIGGINS

VICE CHAIR

Board

5 hrs/wk

CAROLINE WHITACRE

VICE CHAIR

Board

5 hrs/wk

DIANA TWADELL

SECRETARY

Board

5 hrs/wk

HAFIZ CHANDIWALA

TREASURER

Board

5 hrs/wk

MICHAEL BOGDONOFF

DIRECTOR (THRU 11/2023)

Board

5 hrs/wk

CHRIS CAMPBELL

DIRECTOR

Board

5 hrs/wk

MICHELE DINN

DIRECTOR

Board

5 hrs/wk

KASSAUNDRA ESCALERA

DIRECTOR

Board

5 hrs/wk

DON FRACCHIA

DIRECTOR (AS OF 11/2023)

Board

5 hrs/wk

PETER GALLIGAN

DIRECTOR

Board

5 hrs/wk

SHYAM GIDUMAL

DIRECTOR

Board

5 hrs/wk

ANDY HARRIS

DIRECTOR

Board

5 hrs/wk

JENNIFER LEE

EVP, DEVELOPMENT

Staff

$292K

40 hrs/wk

PHYLLIS ROBSHAM THRU 072024

EVP, COMMUNITY LEADERSHIP

Staff

$277K

40 hrs/wk

BARI TALENTE

EVP, ADVOCACY & HEALTHCARE ACCESS

Staff

$272K

40 hrs/wk

WHITNIE GLADDEN

GENERAL COUNSEL

Staff

$271K

40 hrs/wk

BRUCE BEBO

EVP, RESEARCH

Staff

$233K

40 hrs/wk

RON ZWERIN THRU 062024

EVP, MKT, BRAND & COMMUNICATIONS

Staff

$230K

40 hrs/wk

REBECCA FEHLIG

EVP, OPERATIONS (THRU 07/2024)

Staff

$222K

40 hrs/wk

RONDA KRIER

EVP, TECHNOLOGY

Staff

$218K

40 hrs/wk

KAREN MARINER

EVP, PROGRAMS & SUPPORT

Staff

$194K

40 hrs/wk

MISTY FLOWERS AS OF 062024

EVP, FINANCE & OPERATIONS

Staff

$164K

40 hrs/wk

GRAHAM MCREYNOLDS

FORMER AVP, GLOBAL INITIATIVES

Staff

$123K

0

Independent contractors

MERKLE INC

SEE SCHEDULE O

$10.0M

SLALOM INC

IT PROFESSIONAL SERVICES

$3.4M

GLOBAL CLOUD LTD

IT/PROCESSING SERVICES

$1.6M

PROVIDENT CONTRUCTION INC

CONSTRUCTION

$849K

INTECROWD LLC

IT PROFESSIONAL SERVICES

$754K

Grants received

Showing 200 of 4,616

FromAmountPurposeYear
$5.5M
GENERAL SUPPORT
2024
$5M
TO ASSIST IN HEALTH AND HUMAN SERVICES
2024
$689K
MEDICAL RESEARCH
2024
$606K
TO SUPPORT GENERAL OPERATIONS.
2024
$405K
To support the organization's annual multiple sclerosis Memorial Outing for MS Research.
2024
$285K
RESEARCH
2024
$223K
Program Support
2024
$203K
FOR RECIPIENT'S EXEMPT PURPOSE
2024
$175K
SCOTT K CANEPA MEMORIAL FUND
2024
$163K
GENERAL SUPPORT
2024
$157K
RESEARCH SUPPORT
2024
$155K
To aid the mission and purpose of the organization
2024
$151K
BIKEMS 150 2024 & 2025
2024
$146K
TO FURTHER THE ORGANIZATION'S EXEMPT PURPOSE
2024
$140K
RESEARCH/PUBLICEDUCATION
2024
$136K
DISEASE/DISORDER
2024
$110K
GENERAL CONT
2024
$108K
OPERATIONAL SUPPORT
2024
$105K
UNRESTRICTED GENERAL SUPPORT
2024
$100K
ORGANIZATION'S PURPOSE.
2024
$100K
NERVOUS SYSTEM REPAIR
2024
$93K
Health, Medicine & Science
2024
$91K
MEDICAL / PUBLIC SERVICES
2024
$87K
MEDICAL / PUBLIC SERVICES
2024
$75K
UNRESTRICTED
2024
$71K
GENERAL OPERATIONS
2024
$69K
GENERAL OPERATIONS
2024
$56K
GENERAL SUPPORT
2024
$54K
GENERAL
2024
$54K
Health, Medicine & Science
2024
$50K
DISEASE / DISORDERS
2024
$50K
Program support
2024
$50K
General & Unrestricted
2024
$50K
MS NAVIGATOR SERVICES NW CHAPTER
2024
$50K
GENERAL SUPPORT
2024
$44K
DONATIONS TO MS SOCIETY BIKE RIDES
2024
$43K
General Operating Support
2024
$41K
GENERAL PURPOSE
2024
$40K
UNRESTRICTED GENERAL SUPPORT
2024
$36K
SUPPORT CHARITABLE PURPOSE
2024
$35K
UNRESTRICTED GENERAL SUPPORT
2024
$35K
GENERAL OPERATING PURPOSE
2024
$33K
PROGRAM SUPPORT
2024
$33K
PROGRAM SUPPORT
2024
$33K
UNRESTRICTED GENERAL SUPPORT
2024
$32K
MULTIPLE SCLEROSIS RESEARCH
2024
$31K
Support of National Multiple Sclerosis Society
2024
$31K
Nerve, Muscle & Bone Diseases
2024
$30K
RESEARCH
2024
$30K
GENERAL SUPPORT
2024
$29K
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$28K
KEYSTONE COUNTRY RIDE 2024 FOR BIKE MS
2024
$25K
FURTHER EXEMPT PURPOSE
2024
$25K
PROGRAM SUPPORT
2024
$25K
General & Unrestricted
2024
$25K
GENERAL PURPOSE
2024
$25K
RESEARCH AND AWARENESS
2024
$25K
TO PROVIDE GENERAL SUPPORT
2024
$25K
CASH DONATION FOR FUNDRAISING
2024
$25K
GENERAL PURPOSE
2024
$25K
GENERAL SUPPORT
2024
$25K
General & Unrestricted
2024
$20K
Operational Support
2024
$20K
TO PROVIDE GENERAL SUPPORT
2024
$20K
RESEARCH CURE FOR MS
2024
$20K
GENERAL FUNDS
2024
$20K
GENERAL SUPPORT FOR THE NYC - SOUTHERN NEW YORK CHAPTER
2024
$20K
RESEARCH FOR A CURE OF MULTIPLE SCLEROSIS
2024
$20K
SUPPORT RESEARCH FOR MS AND HELP PEOPLE AFFECT BY MS TO LIVE THEIR BEST LIVES.
2024
$20K
TO PROVIDE GENERAL SUPPORT
2024
$20K
BIKE MS DECEPTION PASS CLASSIC, WALK MS MADISON, MEMORIAL DONATION FOR B. LEILAND - MIL OF SHARI BRANDT
2024
$19K
SUPPORT MEDICAL RESEARCH RELATING TO MULTIPLE SCLEROSIS
2024
$19K
DONOR DESIGNATION
2024
$19K
CHARITABLE USE
2024
$18K
General Support
2024
$17K
PUBLIC SUPPORT
2024
$17K
UNRESTRICTED GENERAL
2024
$17K
UNRESTRICTED GENERAL SUPPORT
2024
$16K
MATCHING GIFTS
2024
$16K
CHARITABLE
2024
$15K
LOCAL GRANTS
2024
$15K
TO FURTHER THE MISSION OF THE DONEE
2024
$15K
To Be Used at the Organization's Discretion
2024
$15K
COMMUNITY SUPPORT
2024
$15K
COMMUNITY SUPPORT
2024
$15K
WE WILL CURE MS WHILE EMPOWERING PEOPLE AFFECTED BY MS TO LIVE THEIR BEST LIVES.
2024
$15K
DISEASES, DISORDERS & MEDICAL DISCIPLINES N.E.C.
2024
$15K
GENERAL SUPPORT
2024
$15K
TO FURTHER THE EXEMPT PURPOSE OF THE ORGANIZATION
2024
$15K
UNRESTRICTED GENERAL SUPPORT
2024
$14K
CHARITABLE GIFT
2024
$14K
QUALIFIED CHARITABLE PURPOSE
2024
$13K
Program Support
2024
$13K
Sponsorship of annual dinner
2024
$13K
CHALLENGE WALK MS: SOUTHERN CALIFORNIA 2024
2024
$13K
General Support
2024
$11K
OPERATIONS
2024
$11K
GENERAL SUPPORT
2024
$11K
OPERATIONAL SUPPORT
2024
$10K
DONOR ADVISED, HEALTH
2024
$10K
general fund
2024
$10K
Health: Annual Fundraiser Match Support
2024
$10K
GENERAL OPERATING FUND
2024
$10K
DINNER OF CHAMPIONS SPONSORSHIP
2024
$10K
GENERAL PURPOSES
2024
$10K
ABLE TO MAKE GAOLS AND MISSION
2024
$10K
WALK MS VA BEACH & BIKE MS
2024
$10K
Donation to an domestically registered charitable organization.
2024
$10K
General & Unrestricted
2024
$10K
Support education and resources related to multiple sclerosis
2024
$10K
SUPPORT COMMUNITY HEALTH
2024
$10K
PROGRAM SUPPORT
2024
$10K
TO PREVENT MULTIPLE SCLEROSIS, AND TO IMPROVE THE LIVES OF ALL PEOPLE AFFECTED
2024
$10K
CHARITABLE SUPPORT
2024
$10K
YOUTH HEALTH - COMMUNITY IMPACT FUND
2024
$10K
GENERAL SUPPORT
2024
$10K
DELEK US CORPORATE SUPPORT FOR JACK AND BACK IN HONOR OF DON WHALEY
2024
$10K
SPONSORSHIP
2024
$10K
MEDICAL RESEARCH
2024
$10K
GENERAL SUPPORT
2024
$10K
UNRESTRICTED GENERAL SUPPORT
2024
$10K
UNRESTRICTED GENERAL SUPPORT
2024
$10K
General Support
2024
$10K
BIOMEDICAL RESEARCH
2024
$10K
FOR GENERAL SUPPORT.
2024
$10K
CHARITABLE PURPOSE
2024
$10K
UNRESTRICTED
2024
$9K
DONOR DESIGNATION/GRANT
2024
$9K
HEALTH
2024
$9K
BIKE MS - GATEWAY GETAWAY 2024. PLEASE ATTRIBUTE TO THE FUNDRAISING EFFORTS OF TEAM HOGAN, GODFREY IL BIKEMS FUNDRAISING SPONSOR, BIKE MS GATEWAY GETAWAY RIDE SEPTEMBER 7-8, 2024. TO "TEAM WATLOW," TEAM CAPTAIN: KIM DRYDEN
2024
$8K
General Charitable Purposes
2024
$8K
GENERAL SUPPORT
2024
$8K
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2024
$8K
GENERAL SUPPORT
2024
$8K
DELEK US CORPORATE SUPPORT AS GOLD SPONSOR FOR CACTUS AND CRUDE RIDE
2024
$7K
PROGRAMATIC SUPPORT
2024
$7K
PROGRAMATIC SUPPORT
2024
$7K
GENERAL SUPPORT
2024
$7K
MULTIPLE GRANTS FOR MULTIPLE PURPOSES
2024
$7K
Bike MS: Colorado 2024 - Audrey Williams - Team: Ain't Too Proud to SAG
2024
$6K
GENERAL SUPPORT
2024
$6K
GENERAL EXEMPT PURPOSE
2024
$6K
PROGRAMATIC SUPPORT
2024
$6K
PROGRAMATIC SUPPORT
2024
$6K
EMPLOYEE MATCHING
2024
$6K
5 grant(s) for varying purposes
2024
$6K
GENERAL
2024
$6K
DISEASE, DISORDERS, MEDICAL DISCIPLINES
2024
$6K
GENERAL PURPOSES
2024
$6K
GENERAL SUPPORT
2024
$6K
FOR GENERAL SUPPORT.
2024
$6K
GENERAL PURPOSE
2024
$6K
DONATION FOR CHARITABLE PURPOSES
2024
$6K
ANNUAL DRIVES
2024
$5K
DISEASES, DISORDERS & MEDICAL DISCIPLINES
2024
$5K
GENERAL SUPPORT
2024
$5K
COMMUNITY CHARITY
2024
$5K
CHARITABLE DONATION TO CREATE A WORLD FREE OF MS - FOCUSED ON PEOPLE WITH MS
2024
$5K
PROVIDE AID TOWARDS THE RESEARCH FOR THE CURE OF MS
2024
$5K
TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY MS IN AL, LA AND MS AND TO RAISE FUNDS FOR RESEARCH
2024

Funded by

$139.4M from 1,461 funders · 4,616 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$24.0M · 8 grants · 2017–2023

American Online Giving Foundation Inc

$14.2M · 7 grants · 2019–2024

Donor Advised Charitable Giving Inc

$14.1M · 19 grants · 2017–2023

C D Spangler Foundation Inc

$10M · 2 grants · 2023–2024

Conrad N Hilton Foundation

$8.2M · 2 grants · 2020

Paypal Charitable Giving Fund

$6.4M · 5 grants · 2020–2024

The Blackbaud Giving Fund

$3.5M · 5 grants · 2018–2024

Swall Foundation

$2.6M · 4 grants · 2020–2023

Details

EIN135661935
NTEE codeG500
Subsection03
Ruling date1947-10
Formed1946
Employees1035
Volunteers34000