National Tay Sachs & Allied Diseases Association Inc

Family services: provides support to, and advocate for, newly diagnosed families and individuals, families and caregivers actively caring for an affected loved one with tay-sachs, canavan, gm1, or sandhoff disease, and bereaved families and individuals. Connect patient community with researchers and industry partners. Facilitate priviate social media group for affected individuals, families and caregivers.

Education: develop and disseminate resources on tay-sachs, canavan, gm1, and sandhoff diseases to affected individuals, families, and caregivers. Respond to inquiries. Host an annual family conference that includes family interaction, support sessions, and research updates by clinicians, researchers, and industry leaders, consult with members of the scientific community.