Health Care
Rett Syndrome Research Trust Inc
TRUMBULL, CT
Total revenue
$9.3M
Total expenses
$11.7M
Net assets
$4.7M
Grants received
$8.6M
405 grants
EIN
260687439
Tax year
2024
Mission
The organization's mission is focused on the development of treatments and cures for rett syndrome and related mecp2 disorders.
Programs
3 programs
The organization sponsors scientific workshops that bring the leading rett researchers together with elite scientists in synergistic fields to exchange data and set research direction.
The organization provides funding to leading research institutions working on rett syndrome and related mecp2 disorders. Research is aimed at 1) restoring levels of mecp2 protein, 2) identifying objective tools to measure rett symptoms 3) establish a clinical trial network 4) identify function of mecp2 protein.
The organization sponsors scientific workshops that bring the leading rett researchers together with elite scientists in synergistic fields to exchange data and set research direction.
Financials
FY 2024
Revenue
Expenses
People
16 listed
MONICA COENRAADS
CHIEF EXECUTIVE OFFICER
$220K
50 hrs/wk
HEIDI EPSTEIN
VICE CHAIRMAN
—
2 hrs/wk
INGRID HARDING
CO-FOUNDER AND TRUSTEE
—
2 hrs/wk
LAWRENCE MATTIS
SECRETARY
—
2 hrs/wk
AMY GILLIAND
TRUSTEE
—
2 hrs/wk
ADRIAN BIRD
TRUSTEE
—
2 hrs/wk
RACHAEL STEVENSON
TRUSTEE
—
2 hrs/wk
RACHEL ROTHSCHILD
TRUSTEE
—
2 hrs/wk
STEPHANIE BOHN
TRUSTEE
—
2 hrs/wk
MARCI VALNER
TREASURER
—
2 hrs/wk
ALBA TULL
TRUSTEE
—
2 hrs/wk
BRAD ZELINGER
TRUSTEE
—
2 hrs/wk
BRIAN WHITMER
TRUSTEE
—
2 hrs/wk
TIMOTHY J FREEMAN
CHIEF DEVELOPMENT OFFICER
$220K
50 hrs/wk
JANA SE VON HEHN
CHIEF SCIENTIFIC OFFICER
$220K
50 hrs/wk
ROBERT DEANS
CHIEF TECHNOLOGY OFFICER
$215K
50 hrs/wk
Independent contractors
EDRAIN COLINA
MARKETING
Grants received
Showing 200 of 405
Funded by
$8.6M from 171 funders · 405 grants · 2017–2024
$1.5M · 8 grants · 2017–2023
$1.2M · 3 grants · 2020–2023
$753K · 7 grants · 2017–2023
$725K · 6 grants · 2019–2024
$608K · 6 grants · 2017–2023
$485K · 5 grants · 2017–2024
$360K · 3 grants · 2019–2022
$200K · 1 grant · 2023