Spastic Paraplegia Foundation Inc

The Foundation holds an annual conference each year for individuals suffering from the disease, their families, and caregivers. Researchers speak about primary lateral sclerosis and hereditary spastic paraplegia, including updates on the current state of their research. Attendees meet others affected by the disorders, typically the first time these individuals have met others with the same condition in person. Attendees pay a registration fee to attend.

The Foundation prints and distributes "Synapse", a periodical about the disorders, activities of the Foundation, and articles about research.

Printing expenses to update annual report recipients of medical research status; software to facilitate advocacy of rare diseases